“The Pandemic is Just Happening on Top of a Pandemic for Us”. Unpaid Carers’ Experiences of Lockdown in the UK: A Thematic Analysis

Context: With reduced access to medical and social support during the COVID-19 pandemic, the level of support provided by unpaid carers over the lockdown period in the UK was higher than ever. However, the experience of unpaid carers during this period is often overlooked. Objective: The aim of t...

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Main Authors: Emily Moultrie, Jaimee Sheila Mallion, Charlotte Taylor-Page
Format: Article
Language:English
Published: LSE Press 2024-01-01
Series:Journal of Long-Term Care
Subjects:
Online Access:https://account.journal.ilpnetwork.org/index.php/lse-j-jltc/article/view/156
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author Emily Moultrie
Jaimee Sheila Mallion
Charlotte Taylor-Page
author_facet Emily Moultrie
Jaimee Sheila Mallion
Charlotte Taylor-Page
author_sort Emily Moultrie
collection DOAJ
description Context: With reduced access to medical and social support during the COVID-19 pandemic, the level of support provided by unpaid carers over the lockdown period in the UK was higher than ever. However, the experience of unpaid carers during this period is often overlooked. Objective: The aim of this study was to explore the question ‘what has been the experience of unpaid carers during lockdown?’. Method: Eighteen unpaid carers, caring for a family member(s) with physical, learning, mental health, or behavioral disabilities, were interviewed about their experience of lockdown in the UK. Thematic analysis was utilized. Findings: Three overarching themes created: (a) The value of support, (b) Non-stop care, and (c) Risk to health. A central theme of mental health was also created and discussed across the three overarching themes, rather than individually, due to its extensivity. Support for unpaid carers during the lockdown became more important than ever due to the higher risk to physical and mental health (of both the carer and dependent) and the lack of respite available. Limitations: Due to volunteer sampling, the evidence in this report is largely based on the perspectives of female carers’, with all but two participants being female. Implications: Findings raise implications for prioritizing the return of in-person medical appointments post-pandemic and ensuring the continuation of support services for unpaid carers during a pandemic.
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spelling doaj.art-f7e9dde22e1241c1907283e1c4416c042024-01-11T01:42:17ZengLSE PressJournal of Long-Term Care2516-91222024-01-0110.31389/jltc.156“The Pandemic is Just Happening on Top of a Pandemic for Us”. Unpaid Carers’ Experiences of Lockdown in the UK: A Thematic AnalysisEmily Moultrie0Jaimee Sheila Mallion1Charlotte Taylor-Page2London South Bank UniversityLondon South Bank UniversityLondon South Bank University Context: With reduced access to medical and social support during the COVID-19 pandemic, the level of support provided by unpaid carers over the lockdown period in the UK was higher than ever. However, the experience of unpaid carers during this period is often overlooked. Objective: The aim of this study was to explore the question ‘what has been the experience of unpaid carers during lockdown?’. Method: Eighteen unpaid carers, caring for a family member(s) with physical, learning, mental health, or behavioral disabilities, were interviewed about their experience of lockdown in the UK. Thematic analysis was utilized. Findings: Three overarching themes created: (a) The value of support, (b) Non-stop care, and (c) Risk to health. A central theme of mental health was also created and discussed across the three overarching themes, rather than individually, due to its extensivity. Support for unpaid carers during the lockdown became more important than ever due to the higher risk to physical and mental health (of both the carer and dependent) and the lack of respite available. Limitations: Due to volunteer sampling, the evidence in this report is largely based on the perspectives of female carers’, with all but two participants being female. Implications: Findings raise implications for prioritizing the return of in-person medical appointments post-pandemic and ensuring the continuation of support services for unpaid carers during a pandemic. https://account.journal.ilpnetwork.org/index.php/lse-j-jltc/article/view/156Unpaid carersCOVID-19coronavirusfamily carersinformal carers
spellingShingle Emily Moultrie
Jaimee Sheila Mallion
Charlotte Taylor-Page
“The Pandemic is Just Happening on Top of a Pandemic for Us”. Unpaid Carers’ Experiences of Lockdown in the UK: A Thematic Analysis
Journal of Long-Term Care
Unpaid carers
COVID-19
coronavirus
family carers
informal carers
title “The Pandemic is Just Happening on Top of a Pandemic for Us”. Unpaid Carers’ Experiences of Lockdown in the UK: A Thematic Analysis
title_full “The Pandemic is Just Happening on Top of a Pandemic for Us”. Unpaid Carers’ Experiences of Lockdown in the UK: A Thematic Analysis
title_fullStr “The Pandemic is Just Happening on Top of a Pandemic for Us”. Unpaid Carers’ Experiences of Lockdown in the UK: A Thematic Analysis
title_full_unstemmed “The Pandemic is Just Happening on Top of a Pandemic for Us”. Unpaid Carers’ Experiences of Lockdown in the UK: A Thematic Analysis
title_short “The Pandemic is Just Happening on Top of a Pandemic for Us”. Unpaid Carers’ Experiences of Lockdown in the UK: A Thematic Analysis
title_sort ldquo the pandemic is just happening on top of a pandemic for us rdquo unpaid carers rsquo experiences of lockdown in the uk a thematic analysis
topic Unpaid carers
COVID-19
coronavirus
family carers
informal carers
url https://account.journal.ilpnetwork.org/index.php/lse-j-jltc/article/view/156
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