Challenging Standard Concepts of ‘Humane’ Care through Relational Auto-Ethnography
What is deemed ‘good’ or ‘humane’ care often seems to be underpinned by a standard ideal of an able-bodied, autonomous human being, which not only underlies those ‘social and professional structures within which narratives and decisions regarding various impairments are held’ (Ho, 2008), but also co...
| Main Authors: | , |
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| Format: | Article |
| Language: | English |
| Published: |
Cogitatio
2016-11-01
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| Series: | Social Inclusion |
| Subjects: | |
| Online Access: | https://www.cogitatiopress.com/socialinclusion/article/view/704 |
| _version_ | 1828368192361201664 |
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| author | Alistair Niemeijer Merel Visse |
| author_facet | Alistair Niemeijer Merel Visse |
| author_sort | Alistair Niemeijer |
| collection | DOAJ |
| description | What is deemed ‘good’ or ‘humane’ care often seems to be underpinned by a standard ideal of an able-bodied, autonomous human being, which not only underlies those ‘social and professional structures within which narratives and decisions regarding various impairments are held’ (Ho, 2008), but also co-shapes these structures. This paper aims to explore how a relational form of auto-ethnography can promote good care. Rather than being based on and focused toward this standard ideal, it challenges ‘humanity’ by showing how illness narratives, public discourse, and policy are framed by ethical questions. It illustrates how normative ideas dictate policy and public discourse. It critically questions this constitutive power by shifting attention to the lived experiences of people with chronic illness and disability. By highlighting and reflecting together on the first author’s life with a chronic illness and his son’s disability, and thereby framing the narrative, it will be argued that, in order to improve care practices, personal illness and disability narratives and the way they interlock with public narrative and auto-ethnographic methodologies should be investigated. |
| first_indexed | 2024-04-14T06:08:03Z |
| format | Article |
| id | doaj.art-f82c215742a1405f87db3cff3ffb7b17 |
| institution | Directory Open Access Journal |
| issn | 2183-2803 |
| language | English |
| last_indexed | 2024-04-14T06:08:03Z |
| publishDate | 2016-11-01 |
| publisher | Cogitatio |
| record_format | Article |
| series | Social Inclusion |
| spelling | doaj.art-f82c215742a1405f87db3cff3ffb7b172022-12-22T02:08:28ZengCogitatioSocial Inclusion2183-28032016-11-014416817510.17645/si.v4i4.704409Challenging Standard Concepts of ‘Humane’ Care through Relational Auto-EthnographyAlistair Niemeijer0Merel Visse1Ethics of Care, University of Humanistic Studies, The NetherlandsEthics of Care, University of Humanistic Studies, The NetherlandsWhat is deemed ‘good’ or ‘humane’ care often seems to be underpinned by a standard ideal of an able-bodied, autonomous human being, which not only underlies those ‘social and professional structures within which narratives and decisions regarding various impairments are held’ (Ho, 2008), but also co-shapes these structures. This paper aims to explore how a relational form of auto-ethnography can promote good care. Rather than being based on and focused toward this standard ideal, it challenges ‘humanity’ by showing how illness narratives, public discourse, and policy are framed by ethical questions. It illustrates how normative ideas dictate policy and public discourse. It critically questions this constitutive power by shifting attention to the lived experiences of people with chronic illness and disability. By highlighting and reflecting together on the first author’s life with a chronic illness and his son’s disability, and thereby framing the narrative, it will be argued that, in order to improve care practices, personal illness and disability narratives and the way they interlock with public narrative and auto-ethnographic methodologies should be investigated.https://www.cogitatiopress.com/socialinclusion/article/view/704auto-ethnographycare ethicsdisabilitychronic illnesshumane care |
| spellingShingle | Alistair Niemeijer Merel Visse Challenging Standard Concepts of ‘Humane’ Care through Relational Auto-Ethnography Social Inclusion auto-ethnography care ethics disability chronic illness humane care |
| title | Challenging Standard Concepts of ‘Humane’ Care through Relational Auto-Ethnography |
| title_full | Challenging Standard Concepts of ‘Humane’ Care through Relational Auto-Ethnography |
| title_fullStr | Challenging Standard Concepts of ‘Humane’ Care through Relational Auto-Ethnography |
| title_full_unstemmed | Challenging Standard Concepts of ‘Humane’ Care through Relational Auto-Ethnography |
| title_short | Challenging Standard Concepts of ‘Humane’ Care through Relational Auto-Ethnography |
| title_sort | challenging standard concepts of humane care through relational auto ethnography |
| topic | auto-ethnography care ethics disability chronic illness humane care |
| url | https://www.cogitatiopress.com/socialinclusion/article/view/704 |
| work_keys_str_mv | AT alistairniemeijer challengingstandardconceptsofhumanecarethroughrelationalautoethnography AT merelvisse challengingstandardconceptsofhumanecarethroughrelationalautoethnography |