Parental care for infants with feeding tube: psychosocial repercussions

ABSTRACT Objectives: to understand the psychosocial repercussions experienced by caregiving parents, resulting from care for the child with dysphagic cleft lip and palate. Methods: qualitative study, developed in a tertiary hospital in September 2016. The sample defined by theoretical saturation c...

Full description

Bibliographic Details
Main Authors: Fábio Luiz Banhara, Francely Tineli Farinha, Gesiane Cristina Bom, Ana Paula Ribeiro Razera, Maria de Lourdes Merighi Tabaquim, Armando dos Santos Trettene
Format: Article
Language:English
Published: Associação Brasileira de Enfermagem
Series:Revista Brasileira de Enfermagem
Subjects:
Online Access:http://www.scielo.br/scielo.php?script=sci_arttext&pid=S0034-71672020000200160&lng=en&tlng=en
_version_ 1818043024428498944
author Fábio Luiz Banhara
Francely Tineli Farinha
Gesiane Cristina Bom
Ana Paula Ribeiro Razera
Maria de Lourdes Merighi Tabaquim
Armando dos Santos Trettene
author_facet Fábio Luiz Banhara
Francely Tineli Farinha
Gesiane Cristina Bom
Ana Paula Ribeiro Razera
Maria de Lourdes Merighi Tabaquim
Armando dos Santos Trettene
author_sort Fábio Luiz Banhara
collection DOAJ
description ABSTRACT Objectives: to understand the psychosocial repercussions experienced by caregiving parents, resulting from care for the child with dysphagic cleft lip and palate. Methods: qualitative study, developed in a tertiary hospital in September 2016. The sample defined by theoretical saturation consisted of seven mothers. Data collection was performed by unstructured interview, being audio-recorded and fully transcribed. Symbolic Interactionism was used as theoretical framework, and Thematic Content Analysis as methodological framework. Results: the following themes emerged: diagnosisimpact and coping; coping with overload and stress; interaction between caregivers as an acceptance and coping strategy; impact on family and social life of caregivers; and curiosity coping, and family and community prejudice. Final considerations: despite the physical and emotional overload, the mother figure plays the main and determining role in care, reflecting the complexity of care.
first_indexed 2024-12-10T08:55:38Z
format Article
id doaj.art-f8711e3451a7420fa3efe67668109e37
institution Directory Open Access Journal
issn 0034-7167
1984-0446
language English
last_indexed 2024-12-10T08:55:38Z
publisher Associação Brasileira de Enfermagem
record_format Article
series Revista Brasileira de Enfermagem
spelling doaj.art-f8711e3451a7420fa3efe67668109e372022-12-22T01:55:27ZengAssociação Brasileira de EnfermagemRevista Brasileira de Enfermagem0034-71671984-044673210.1590/0034-7167-2018-0360S0034-71672020000200160Parental care for infants with feeding tube: psychosocial repercussionsFábio Luiz BanharaFrancely Tineli FarinhaGesiane Cristina BomAna Paula Ribeiro RazeraMaria de Lourdes Merighi TabaquimArmando dos Santos TretteneABSTRACT Objectives: to understand the psychosocial repercussions experienced by caregiving parents, resulting from care for the child with dysphagic cleft lip and palate. Methods: qualitative study, developed in a tertiary hospital in September 2016. The sample defined by theoretical saturation consisted of seven mothers. Data collection was performed by unstructured interview, being audio-recorded and fully transcribed. Symbolic Interactionism was used as theoretical framework, and Thematic Content Analysis as methodological framework. Results: the following themes emerged: diagnosisimpact and coping; coping with overload and stress; interaction between caregivers as an acceptance and coping strategy; impact on family and social life of caregivers; and curiosity coping, and family and community prejudice. Final considerations: despite the physical and emotional overload, the mother figure plays the main and determining role in care, reflecting the complexity of care.http://www.scielo.br/scielo.php?script=sci_arttext&pid=S0034-71672020000200160&lng=en&tlng=entrastornos de la degluciónrelaciones familiareslabio leporinopaladar hendidocuidadores
spellingShingle Fábio Luiz Banhara
Francely Tineli Farinha
Gesiane Cristina Bom
Ana Paula Ribeiro Razera
Maria de Lourdes Merighi Tabaquim
Armando dos Santos Trettene
Parental care for infants with feeding tube: psychosocial repercussions
Revista Brasileira de Enfermagem
trastornos de la deglución
relaciones familiares
labio leporino
paladar hendido
cuidadores
title Parental care for infants with feeding tube: psychosocial repercussions
title_full Parental care for infants with feeding tube: psychosocial repercussions
title_fullStr Parental care for infants with feeding tube: psychosocial repercussions
title_full_unstemmed Parental care for infants with feeding tube: psychosocial repercussions
title_short Parental care for infants with feeding tube: psychosocial repercussions
title_sort parental care for infants with feeding tube psychosocial repercussions
topic trastornos de la deglución
relaciones familiares
labio leporino
paladar hendido
cuidadores
url http://www.scielo.br/scielo.php?script=sci_arttext&pid=S0034-71672020000200160&lng=en&tlng=en
work_keys_str_mv AT fabioluizbanhara parentalcareforinfantswithfeedingtubepsychosocialrepercussions
AT francelytinelifarinha parentalcareforinfantswithfeedingtubepsychosocialrepercussions
AT gesianecristinabom parentalcareforinfantswithfeedingtubepsychosocialrepercussions
AT anapaularibeirorazera parentalcareforinfantswithfeedingtubepsychosocialrepercussions
AT mariadelourdesmerighitabaquim parentalcareforinfantswithfeedingtubepsychosocialrepercussions
AT armandodossantostrettene parentalcareforinfantswithfeedingtubepsychosocialrepercussions