Parental care for infants with feeding tube: psychosocial repercussions
ABSTRACT Objectives: to understand the psychosocial repercussions experienced by caregiving parents, resulting from care for the child with dysphagic cleft lip and palate. Methods: qualitative study, developed in a tertiary hospital in September 2016. The sample defined by theoretical saturation c...
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Format: | Article |
Language: | English |
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Associação Brasileira de Enfermagem
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Series: | Revista Brasileira de Enfermagem |
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Online Access: | http://www.scielo.br/scielo.php?script=sci_arttext&pid=S0034-71672020000200160&lng=en&tlng=en |
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author | Fábio Luiz Banhara Francely Tineli Farinha Gesiane Cristina Bom Ana Paula Ribeiro Razera Maria de Lourdes Merighi Tabaquim Armando dos Santos Trettene |
author_facet | Fábio Luiz Banhara Francely Tineli Farinha Gesiane Cristina Bom Ana Paula Ribeiro Razera Maria de Lourdes Merighi Tabaquim Armando dos Santos Trettene |
author_sort | Fábio Luiz Banhara |
collection | DOAJ |
description | ABSTRACT Objectives: to understand the psychosocial repercussions experienced by caregiving parents, resulting from care for the child with dysphagic cleft lip and palate. Methods: qualitative study, developed in a tertiary hospital in September 2016. The sample defined by theoretical saturation consisted of seven mothers. Data collection was performed by unstructured interview, being audio-recorded and fully transcribed. Symbolic Interactionism was used as theoretical framework, and Thematic Content Analysis as methodological framework. Results: the following themes emerged: diagnosisimpact and coping; coping with overload and stress; interaction between caregivers as an acceptance and coping strategy; impact on family and social life of caregivers; and curiosity coping, and family and community prejudice. Final considerations: despite the physical and emotional overload, the mother figure plays the main and determining role in care, reflecting the complexity of care. |
first_indexed | 2024-12-10T08:55:38Z |
format | Article |
id | doaj.art-f8711e3451a7420fa3efe67668109e37 |
institution | Directory Open Access Journal |
issn | 0034-7167 1984-0446 |
language | English |
last_indexed | 2024-12-10T08:55:38Z |
publisher | Associação Brasileira de Enfermagem |
record_format | Article |
series | Revista Brasileira de Enfermagem |
spelling | doaj.art-f8711e3451a7420fa3efe67668109e372022-12-22T01:55:27ZengAssociação Brasileira de EnfermagemRevista Brasileira de Enfermagem0034-71671984-044673210.1590/0034-7167-2018-0360S0034-71672020000200160Parental care for infants with feeding tube: psychosocial repercussionsFábio Luiz BanharaFrancely Tineli FarinhaGesiane Cristina BomAna Paula Ribeiro RazeraMaria de Lourdes Merighi TabaquimArmando dos Santos TretteneABSTRACT Objectives: to understand the psychosocial repercussions experienced by caregiving parents, resulting from care for the child with dysphagic cleft lip and palate. Methods: qualitative study, developed in a tertiary hospital in September 2016. The sample defined by theoretical saturation consisted of seven mothers. Data collection was performed by unstructured interview, being audio-recorded and fully transcribed. Symbolic Interactionism was used as theoretical framework, and Thematic Content Analysis as methodological framework. Results: the following themes emerged: diagnosisimpact and coping; coping with overload and stress; interaction between caregivers as an acceptance and coping strategy; impact on family and social life of caregivers; and curiosity coping, and family and community prejudice. Final considerations: despite the physical and emotional overload, the mother figure plays the main and determining role in care, reflecting the complexity of care.http://www.scielo.br/scielo.php?script=sci_arttext&pid=S0034-71672020000200160&lng=en&tlng=entrastornos de la degluciónrelaciones familiareslabio leporinopaladar hendidocuidadores |
spellingShingle | Fábio Luiz Banhara Francely Tineli Farinha Gesiane Cristina Bom Ana Paula Ribeiro Razera Maria de Lourdes Merighi Tabaquim Armando dos Santos Trettene Parental care for infants with feeding tube: psychosocial repercussions Revista Brasileira de Enfermagem trastornos de la deglución relaciones familiares labio leporino paladar hendido cuidadores |
title | Parental care for infants with feeding tube: psychosocial repercussions |
title_full | Parental care for infants with feeding tube: psychosocial repercussions |
title_fullStr | Parental care for infants with feeding tube: psychosocial repercussions |
title_full_unstemmed | Parental care for infants with feeding tube: psychosocial repercussions |
title_short | Parental care for infants with feeding tube: psychosocial repercussions |
title_sort | parental care for infants with feeding tube psychosocial repercussions |
topic | trastornos de la deglución relaciones familiares labio leporino paladar hendido cuidadores |
url | http://www.scielo.br/scielo.php?script=sci_arttext&pid=S0034-71672020000200160&lng=en&tlng=en |
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