STRATEGI COPING ORANGTUA YANG MEMPUNYAI ANAK DENGAN DISORDERS OF SEX DEVELOPMENT KROMOSOM SEKS MOSAIK

This study aims to explore coping strategies used by parents’ of children with mosaic sex chromosome Disorders of Sex Development (DSD). The study applied the sequential explanatory mixed-methods approach that collected quantitative data prior to qualitative data.  Participants were parents of the a...

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Main Authors: Iit Fitrianingrum, Annastasia Ediati, Sultana MH Faradz
Format: Article
Language:Indonesian
Published: Universitas Diponegoro 2019-01-01
Series:Jurnal Psikologi Undip
Subjects:
Online Access:https://ejournal.undip.ac.id/index.php/psikologi/article/view/21491
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author Iit Fitrianingrum
Annastasia Ediati
Sultana MH Faradz
author_facet Iit Fitrianingrum
Annastasia Ediati
Sultana MH Faradz
author_sort Iit Fitrianingrum
collection DOAJ
description This study aims to explore coping strategies used by parents’ of children with mosaic sex chromosome Disorders of Sex Development (DSD). The study applied the sequential explanatory mixed-methods approach that collected quantitative data prior to qualitative data.  Participants were parents of the affected patients diagnosed with DSD with the following karyotype XX/XY, X/XY, XYY, or XXY variants. In total, 14 mothers and 12 fathers of 14 patients with a mosaic sex chromosome DSD participated in this study. We used the Indonesian version of BRIEF COPE to collect quantitative data on coping strategies. Furthermore, an invidual interview was conducted to all participants to elaborate the coping strategies applied by parents in raising their children. The data analysis identified the four most preferred parental coping strategies:  religion, positive reframing, acceptance, and active coping whereas the least preferred coping strategies were humor, substance use, and behavior disengagement. Mothers and fathers in the study did not significantly differ in applying their coping strategies (p>.05). The study suggests health practitioners working with parents of patients affected with mosaic sex chromosome DSD to promote the religion, positive reframing, acceptance, and active coping strategies to facilitate a better acceptance of the affected children.
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spelling doaj.art-f8bdcbd44c2143febcbf3f455f900fe82022-12-22T02:28:51ZindUniversitas DiponegoroJurnal Psikologi Undip2302-10982019-01-0117218920310.14710/jp.17.2.189-20314386STRATEGI COPING ORANGTUA YANG MEMPUNYAI ANAK DENGAN DISORDERS OF SEX DEVELOPMENT KROMOSOM SEKS MOSAIKIit Fitrianingrum0Annastasia Ediati1Sultana MH Faradz2Magister Biomedical Science Majoring Genetic Counseling, Faculty of Medicine Diponegoro University Departement of Bioethic, Faculty of Medicine, Tanjungpura UniversityFakultas Psikologi Universitas DiponegoroCenter for Biomedical Research (CEBIOR) Fakultas Kedokteran Universitas DiponegoroThis study aims to explore coping strategies used by parents’ of children with mosaic sex chromosome Disorders of Sex Development (DSD). The study applied the sequential explanatory mixed-methods approach that collected quantitative data prior to qualitative data.  Participants were parents of the affected patients diagnosed with DSD with the following karyotype XX/XY, X/XY, XYY, or XXY variants. In total, 14 mothers and 12 fathers of 14 patients with a mosaic sex chromosome DSD participated in this study. We used the Indonesian version of BRIEF COPE to collect quantitative data on coping strategies. Furthermore, an invidual interview was conducted to all participants to elaborate the coping strategies applied by parents in raising their children. The data analysis identified the four most preferred parental coping strategies:  religion, positive reframing, acceptance, and active coping whereas the least preferred coping strategies were humor, substance use, and behavior disengagement. Mothers and fathers in the study did not significantly differ in applying their coping strategies (p>.05). The study suggests health practitioners working with parents of patients affected with mosaic sex chromosome DSD to promote the religion, positive reframing, acceptance, and active coping strategies to facilitate a better acceptance of the affected children.https://ejournal.undip.ac.id/index.php/psikologi/article/view/21491mosaic sex chromosomedisorders of sex developmentcoping strategymix methods
spellingShingle Iit Fitrianingrum
Annastasia Ediati
Sultana MH Faradz
STRATEGI COPING ORANGTUA YANG MEMPUNYAI ANAK DENGAN DISORDERS OF SEX DEVELOPMENT KROMOSOM SEKS MOSAIK
Jurnal Psikologi Undip
mosaic sex chromosome
disorders of sex development
coping strategy
mix methods
title STRATEGI COPING ORANGTUA YANG MEMPUNYAI ANAK DENGAN DISORDERS OF SEX DEVELOPMENT KROMOSOM SEKS MOSAIK
title_full STRATEGI COPING ORANGTUA YANG MEMPUNYAI ANAK DENGAN DISORDERS OF SEX DEVELOPMENT KROMOSOM SEKS MOSAIK
title_fullStr STRATEGI COPING ORANGTUA YANG MEMPUNYAI ANAK DENGAN DISORDERS OF SEX DEVELOPMENT KROMOSOM SEKS MOSAIK
title_full_unstemmed STRATEGI COPING ORANGTUA YANG MEMPUNYAI ANAK DENGAN DISORDERS OF SEX DEVELOPMENT KROMOSOM SEKS MOSAIK
title_short STRATEGI COPING ORANGTUA YANG MEMPUNYAI ANAK DENGAN DISORDERS OF SEX DEVELOPMENT KROMOSOM SEKS MOSAIK
title_sort strategi coping orangtua yang mempunyai anak dengan disorders of sex development kromosom seks mosaik
topic mosaic sex chromosome
disorders of sex development
coping strategy
mix methods
url https://ejournal.undip.ac.id/index.php/psikologi/article/view/21491
work_keys_str_mv AT iitfitrianingrum strategicopingorangtuayangmempunyaianakdengandisordersofsexdevelopmentkromosomseksmosaik
AT annastasiaediati strategicopingorangtuayangmempunyaianakdengandisordersofsexdevelopmentkromosomseksmosaik
AT sultanamhfaradz strategicopingorangtuayangmempunyaianakdengandisordersofsexdevelopmentkromosomseksmosaik