Contribution of participation and resilience to quality of life among persons living with stroke in Sweden: a qualitative study

Purpose Resilience contributes to positive adaptation after many health conditions, but little is known about its contribution to long-term recovery after stroke. This study investigated the lived experience of resilience and participation and their relationship to quality of life after stroke in Sw...

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Main Authors: Marie Matérne, Grahame Simpson, Gustav Jarl, Peter Appelros, Mialinn Arvidsson-Lindvall
Format: Article
Language:English
Published: Taylor & Francis Group 2022-12-01
Series:International Journal of Qualitative Studies on Health & Well-Being
Subjects:
Online Access:http://dx.doi.org/10.1080/17482631.2022.2119676
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author Marie Matérne
Grahame Simpson
Gustav Jarl
Peter Appelros
Mialinn Arvidsson-Lindvall
author_facet Marie Matérne
Grahame Simpson
Gustav Jarl
Peter Appelros
Mialinn Arvidsson-Lindvall
author_sort Marie Matérne
collection DOAJ
description Purpose Resilience contributes to positive adaptation after many health conditions, but little is known about its contribution to long-term recovery after stroke. This study investigated the lived experience of resilience and participation and their relationship to quality of life after stroke in Sweden. Material and method Semi-structured telephone interviews were conducted with 19 informants (10 male, 9 female), aged from 44–89 years and between 1 and 19 years post-stroke. Stroke severity ranged from mild (n = 8), moderate (n = 9) to severe (n = 2). Interviews were analysed using content analysis. Results The analysis resulted in an overarching theme; Life with stroke has been adapted to but not accepted, built on five subthemes: 1) Adapting and adjusting life, 2) Meaningful values in life, 3) Inner resources, 4) Support and treatment from social relations, and 5) Support and treatment from external resources. Conclusion Participants described a tension between adapting and accepting life after stroke. Resilience was a useful framework, highlighting the contribution of inner, social and societal resources to recovery and quality of life, both directly and as enhanced through increased participation. Important factors for adaptation are meaningful values in life, individual strategies for adaptation and support from both social relationship and the society.
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spelling doaj.art-f8f67e4c6c294f68a07d12eaddfa715e2023-01-05T12:01:27ZengTaylor & Francis GroupInternational Journal of Qualitative Studies on Health & Well-Being1748-26231748-26312022-12-0117110.1080/17482631.2022.21196762119676Contribution of participation and resilience to quality of life among persons living with stroke in Sweden: a qualitative studyMarie Matérne0Grahame Simpson1Gustav Jarl2Peter Appelros3Mialinn Arvidsson-Lindvall4Örebro UniversityUniversity of SydneyÖrebro UniversityÖrebro UniversityÖrebro UniversityPurpose Resilience contributes to positive adaptation after many health conditions, but little is known about its contribution to long-term recovery after stroke. This study investigated the lived experience of resilience and participation and their relationship to quality of life after stroke in Sweden. Material and method Semi-structured telephone interviews were conducted with 19 informants (10 male, 9 female), aged from 44–89 years and between 1 and 19 years post-stroke. Stroke severity ranged from mild (n = 8), moderate (n = 9) to severe (n = 2). Interviews were analysed using content analysis. Results The analysis resulted in an overarching theme; Life with stroke has been adapted to but not accepted, built on five subthemes: 1) Adapting and adjusting life, 2) Meaningful values in life, 3) Inner resources, 4) Support and treatment from social relations, and 5) Support and treatment from external resources. Conclusion Participants described a tension between adapting and accepting life after stroke. Resilience was a useful framework, highlighting the contribution of inner, social and societal resources to recovery and quality of life, both directly and as enhanced through increased participation. Important factors for adaptation are meaningful values in life, individual strategies for adaptation and support from both social relationship and the society.http://dx.doi.org/10.1080/17482631.2022.2119676content analysishealthinterviewrehabilitation
spellingShingle Marie Matérne
Grahame Simpson
Gustav Jarl
Peter Appelros
Mialinn Arvidsson-Lindvall
Contribution of participation and resilience to quality of life among persons living with stroke in Sweden: a qualitative study
International Journal of Qualitative Studies on Health & Well-Being
content analysis
health
interview
rehabilitation
title Contribution of participation and resilience to quality of life among persons living with stroke in Sweden: a qualitative study
title_full Contribution of participation and resilience to quality of life among persons living with stroke in Sweden: a qualitative study
title_fullStr Contribution of participation and resilience to quality of life among persons living with stroke in Sweden: a qualitative study
title_full_unstemmed Contribution of participation and resilience to quality of life among persons living with stroke in Sweden: a qualitative study
title_short Contribution of participation and resilience to quality of life among persons living with stroke in Sweden: a qualitative study
title_sort contribution of participation and resilience to quality of life among persons living with stroke in sweden a qualitative study
topic content analysis
health
interview
rehabilitation
url http://dx.doi.org/10.1080/17482631.2022.2119676
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