Epidemiologic Questionnaire (EPI-Q) – a scalable, app-based health survey linked to electronic health record and genotype data
The Epidemiologic Questionnaire (EPI-Q) was established to collect broad, uniform, self-reported health data to supplement electronic health record (EHR) and genotype information from participants in the University of Michigan (UM) Precision Health cohorts. Recruitment of EPI-Q participants, who wer...
| Main Authors: | , , , , , , , , , , , |
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| Format: | Article |
| Language: | English |
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Korean Society of Epidemiology
2023-08-01
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| Series: | Epidemiology and Health |
| Subjects: | |
| Online Access: | http://www.e-epih.org/upload/pdf/epih-45-e2023074.pdf |
| _version_ | 1827246973123559424 |
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| author | Maxwell Salvatore Dylan Clark-Boucher Lars G. Fritsche Jacob Ortlieb Janet Houghtby Anisa Driscoll Bryanne Caldwell-Larkins Jennifer A. Smith Chad M. Brummett Sachin Kheterpal Lynda Lisabeth Bhramar Mukherjee |
| author_facet | Maxwell Salvatore Dylan Clark-Boucher Lars G. Fritsche Jacob Ortlieb Janet Houghtby Anisa Driscoll Bryanne Caldwell-Larkins Jennifer A. Smith Chad M. Brummett Sachin Kheterpal Lynda Lisabeth Bhramar Mukherjee |
| author_sort | Maxwell Salvatore |
| collection | DOAJ |
| description | The Epidemiologic Questionnaire (EPI-Q) was established to collect broad, uniform, self-reported health data to supplement electronic health record (EHR) and genotype information from participants in the University of Michigan (UM) Precision Health cohorts. Recruitment of EPI-Q participants, who were already enrolled in 1 of 3 ongoing UM Precision Health cohorts—the Michigan Genomics Initiative, Mental Health Biobank, and Metabolism, Endocrinology, and Diabetes cohorts—began in March 2020. Of 54,043 retrospective invitations, 5,577 individuals enrolled, representing a 10.3% response rate. Of these, 3,502 (63.7%) were female, and the average age was 56.1 years (standard deviation, 15.4). The baseline survey comprises 11 modules on topics including personal and family health history, lifestyle, and cancer screening and history. Additionally, 11 optional modules cover topics including financial toxicity, occupational exposure, and life meaning. The questions are based on standardized and validated instruments used in other cohorts, and we share resources to expedite development of similar surveys. Data are collected via the MyDataHelps platform, which enables current and future participants to share non-Michigan Medicine EHR data. Recruitment is ongoing. Cohort data are available to those with institutional review board approval; for details, contact the Data Office for Clinical and Translational Research (DataOffice@umich.edu). |
| first_indexed | 2024-03-08T00:24:26Z |
| format | Article |
| id | doaj.art-f97da905cc2344679060f096546b1c8d |
| institution | Directory Open Access Journal |
| issn | 2092-7193 |
| language | English |
| last_indexed | 2025-03-21T23:08:27Z |
| publishDate | 2023-08-01 |
| publisher | Korean Society of Epidemiology |
| record_format | Article |
| series | Epidemiology and Health |
| spelling | doaj.art-f97da905cc2344679060f096546b1c8d2024-05-22T04:59:27ZengKorean Society of EpidemiologyEpidemiology and Health2092-71932023-08-014510.4178/epih.e20230741436Epidemiologic Questionnaire (EPI-Q) – a scalable, app-based health survey linked to electronic health record and genotype dataMaxwell Salvatore0Dylan Clark-Boucher1Lars G. Fritsche2Jacob Ortlieb3Janet Houghtby4Anisa Driscoll5Bryanne Caldwell-Larkins6Jennifer A. Smith7Chad M. Brummett8Sachin Kheterpal9Lynda Lisabeth10Bhramar Mukherjee11 Department of Biostatistics, University of Michigan, Ann Arbor, MI, USA Department of Biostatistics, University of Michigan, Ann Arbor, MI, USA Department of Biostatistics, University of Michigan, Ann Arbor, MI, USA Precision Health, University of Michigan, Ann Arbor, MI, USA Precision Health, University of Michigan, Ann Arbor, MI, USA Precision Health, University of Michigan, Ann Arbor, MI, USA Precision Health, University of Michigan, Ann Arbor, MI, USA Department of Epidemiology, University of Michigan, Ann Arbor, MI, USA Anesthesiology, Michigan Medicine, Ann Arbor, MI, USA Precision Health, University of Michigan, Ann Arbor, MI, USA Department of Epidemiology, University of Michigan, Ann Arbor, MI, USA Department of Biostatistics, University of Michigan, Ann Arbor, MI, USAThe Epidemiologic Questionnaire (EPI-Q) was established to collect broad, uniform, self-reported health data to supplement electronic health record (EHR) and genotype information from participants in the University of Michigan (UM) Precision Health cohorts. Recruitment of EPI-Q participants, who were already enrolled in 1 of 3 ongoing UM Precision Health cohorts—the Michigan Genomics Initiative, Mental Health Biobank, and Metabolism, Endocrinology, and Diabetes cohorts—began in March 2020. Of 54,043 retrospective invitations, 5,577 individuals enrolled, representing a 10.3% response rate. Of these, 3,502 (63.7%) were female, and the average age was 56.1 years (standard deviation, 15.4). The baseline survey comprises 11 modules on topics including personal and family health history, lifestyle, and cancer screening and history. Additionally, 11 optional modules cover topics including financial toxicity, occupational exposure, and life meaning. The questions are based on standardized and validated instruments used in other cohorts, and we share resources to expedite development of similar surveys. Data are collected via the MyDataHelps platform, which enables current and future participants to share non-Michigan Medicine EHR data. Recruitment is ongoing. Cohort data are available to those with institutional review board approval; for details, contact the Data Office for Clinical and Translational Research (DataOffice@umich.edu).http://www.e-epih.org/upload/pdf/epih-45-e2023074.pdfsurveyelectronic health recordsgeneticsepidemiologybiobank |
| spellingShingle | Maxwell Salvatore Dylan Clark-Boucher Lars G. Fritsche Jacob Ortlieb Janet Houghtby Anisa Driscoll Bryanne Caldwell-Larkins Jennifer A. Smith Chad M. Brummett Sachin Kheterpal Lynda Lisabeth Bhramar Mukherjee Epidemiologic Questionnaire (EPI-Q) – a scalable, app-based health survey linked to electronic health record and genotype data Epidemiology and Health survey electronic health records genetics epidemiology biobank |
| title | Epidemiologic Questionnaire (EPI-Q) – a scalable, app-based health survey linked to electronic health record and genotype data |
| title_full | Epidemiologic Questionnaire (EPI-Q) – a scalable, app-based health survey linked to electronic health record and genotype data |
| title_fullStr | Epidemiologic Questionnaire (EPI-Q) – a scalable, app-based health survey linked to electronic health record and genotype data |
| title_full_unstemmed | Epidemiologic Questionnaire (EPI-Q) – a scalable, app-based health survey linked to electronic health record and genotype data |
| title_short | Epidemiologic Questionnaire (EPI-Q) – a scalable, app-based health survey linked to electronic health record and genotype data |
| title_sort | epidemiologic questionnaire epi q a scalable app based health survey linked to electronic health record and genotype data |
| topic | survey electronic health records genetics epidemiology biobank |
| url | http://www.e-epih.org/upload/pdf/epih-45-e2023074.pdf |
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