Digital health solution for monitoring and surveillance of Amyotrophic Lateral Sclerosis in Brazil

Digital health solution for monitoring and surveillance of Amyotrophic Lateral Sclerosis in Brazil

Amyotrophic Lateral Sclerosis (ALS) is a complex and rare neurodegenerative disease given its heterogeneity. Despite being known for many years, few countries have accurate information about the characteristics of people diagnosed with ALS, such as data regarding diagnosis and clinical features of t...

Full description

Bibliographic Details
Main Authors:	Ingridy M. P. Barbalho, Aleika L. A. Fonseca, Felipe Fernandes, Jorge Henriques, Paulo Gil, Danilo Nagem, Raquel Lindquist, Thaisa Lima, João Paulo Queiroz dos Santos, Jailton Paiva, Antonio H. F. Morais, Mário E. T. Dourado Júnior, Ricardo A. M. Valentim
Format:	Article
Language:	English
Published:	Frontiers Media S.A. 2023-08-01
Series:	Frontiers in Public Health
Subjects:	public health rare diseases public policy health indicators health information system epidemiological monitoring
Online Access:	https://www.frontiersin.org/articles/10.3389/fpubh.2023.1209633/full

Similar Items

Public Health and Rare Diseases: Oxymoron No More
by: Rodolfo Valdez, PhD, et al.
Published: (2016-01-01)

Computational methods applied to syphilis: where are we, and where are we going?
by: Gabriela Albuquerque, et al.
Published: (2023-08-01)

Developing public health surveillance dashboards: a scoping review on the design principles
by: Reza Rabiei, et al.
Published: (2024-02-01)

Public Health Surveillance for Mental Health
by: Elsie J. Freeman, MD, MPH, et al.
Published: (2010-01-01)

Prevalence of amyotrophic lateral sclerosis in Latium region, Italy
by: Maria Puopolo, et al.
Published: (2021-12-01)

Spatial and syndromic surveillance for public health /
by: Lawson, Andrew (Andrew B.), et al.
Published: (2005)

Leveraging genomic sequencing data to evaluate disease surveillance strategies
by: Benjamin Anderson, et al.
Published: (2023-12-01)

Electronic health records in Brazil: Prospects and technological challenges
by: Ingridy M. P. Barbalho, et al.
Published: (2022-11-01)

Public health nursing: regulation and public health policies
by: Carmen Maria dos Santos Lopes Monteiro da Cunha, et al.
Published: (2020-09-01)

Digital Alternative Communication for Individuals with Amyotrophic Lateral Sclerosis: What We Have
by: Felipe Fernandes, et al.
Published: (2023-08-01)

Context-aware ontology for dengue surveillance /
by: Siti Zulaikha Mohd. Zuki, 1994-, author 611928, et al.
Published: (2019)

Context-aware ontology for dengue surveillance /
by: Siti Zulaikha Mohd. Zuki, 1994-, author 611928
Published: (2019)

Mastering public health : a postgraduate guide to examinations and revalidation /
by: 533799 Lewis, Geraint H., et al.
Published: (2011)

Public health 101 : healthy people--healthy populations /
by: Riegelman, Richard K., author, et al.
Published: (2015)

The future public health /
by: Hanlon, Phil
Published: (2012)

Public health : social context and action /
by: Scriven, Angela, et al.
Published: (2007)

Community health /
by: 322915 Green, Lawrence W., et al.
Published: (1994)

Asia Pacific journal of public health
Published: (1998)

Technical report /
by: 586784 Jabatan Kesihatan Negeri Perlis
Published: (200-)

The impact of an enhanced health surveillance system for COVID-19 management in Serrana, Brazil
by: Natasha N. Ferreira, et al.
Published: (2022-12-01)

A Formative Study of the Implementation of Whole Genome Sequencing in Northern Ireland
by: Katie Kerr, et al.
Published: (2022-06-01)

Essentials of global health /
by: 185722 Skolnik, Richard
Published: (2008)

FVIII inhibitor surveillance in children with hemophilia A in Indonesia: a report from the Indonesian Pediatric Hematology-Oncology Working Group
by: Chozie, Novie Amelia, et al.
Published: (2022)

Advancing rare disease policy in Latin America: a call to action
by: Daniel Wainstock, et al.
Published: (2023-02-01)

Information systems for vaccine safety surveillance
by: Jim P Buttery, et al.
Published: (2022-11-01)

GIS for health and the environment : development in the Asia-Pacific Regions /
by: International Conference in GIS and Health (2006 : Hong Kong, China), et al.
Published: (2007)

Views, values and vision Tan Sri Dato' Seri Dr. Hj. Mohd Ismail Merican : a collection of selected keynote addresses and speeches presented by the Director general of Health Malaysia 2005-2010
Published: (2010)

Makmal Kesihatan Awam Kebangsaan 2012 : service handbook /
by: Makmal Kesihatan Awam Kebangsaan
Published: (2012)

Purchasing to improve health systems performance /
by: Figueras, Josep, et al.
Published: (2005)

Malaysia national health accounts project : health expenditure report 1997-2002 /
by: Malaysia. Kementerian Kesihatan
Published: (2006)

Principles of public health practice /
by: Scutchfield, F. Douglas, et al.
Published: (2009)

Applying the Findings of Public Health Research to Communities: Balancing Ideal Conditions With Real-World Circumstances
by: Jaya K. Rao, MD, MHS
Published: (2008-04-01)

An Organizing Framework for Translation in Public Health: The Knowledge to Action Framework
by: Katherine M. Wilson, PhD, MPH, CHES, et al.
Published: (2011-03-01)

GIS in public health practice /
by: Maheswaran, Ravi 187930, et al.
Published: (2004)

Use of Peer Groupings to Assess County Public Health Status
by: Norma Kanarek, PhD, et al.
Published: (2008-07-01)

Epstein-Barr virus-based prognostic model in nodular sclerosis classic Hodgkin lymphoma
by: Chen Jiang, et al.
Published: (2024-01-01)

Medical surveillance on the staff of UiTM Pahang/Zainul Akramin Kambali, Pauzi Ibrahim, Khadijah Daud and et. al.
by: Kambali, Zainul Akramin, et al.
Published: (2007)

Medical surveillance on the staff of UiTM Pahang / Zainul Akramin Kambali, Pauzi Ibrahim, Khadijah Daud and Noorshaliza Sakyon Mohammad Notan
by: Ibrahim, Pauzi, et al.
Published: (2007)

Syphilis response policies and their assessments: A scoping review
by: Milena C. D. Almeida, et al.
Published: (2022-09-01)

Data Needs and Uses for Older Adult Health Surveillance: Perspectives From State Health Agencies
by: Christopher Maylahn, MPH, et al.
Published: (2005-07-01)