Participation in leisure activities from the perception of children with disabilities and their families in Brazil

Objective: To understand the perception of children with disabilities and their families regarding factors that interfere with participation in leisure activities in Brazil. Methods: This qualitative study included 14 focus groups, involving a total of 80 participants (40 children with disabilities...

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Main Authors: Janice Souza Marques, Isabelly Cristina Regalado, Élida Rayanne Viana Pinheiro Galvão, Haryelle Náryma Ferreira, Egmar Longo, Ana Raquel Rodrigues Lindquist
Format: Article
Language:English
Published: Medical Journals Sweden 2021-01-01
Series:Journal of Rehabilitation Medicine
Subjects:
Online Access: https://www.medicaljournals.se/jrm/content/html/10.2340/16501977-2768
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author Janice Souza Marques
Isabelly Cristina Regalado
Élida Rayanne Viana Pinheiro Galvão
Haryelle Náryma Ferreira
Egmar Longo
Ana Raquel Rodrigues Lindquist
author_facet Janice Souza Marques
Isabelly Cristina Regalado
Élida Rayanne Viana Pinheiro Galvão
Haryelle Náryma Ferreira
Egmar Longo
Ana Raquel Rodrigues Lindquist
author_sort Janice Souza Marques
collection DOAJ
description Objective: To understand the perception of children with disabilities and their families regarding factors that interfere with participation in leisure activities in Brazil. Methods: This qualitative study included 14 focus groups, involving a total of 80 participants (40 children with disabilities and 40 family members). Discus-sions were recorded and transcribed. Coding was based on the International Classification of Functioning Disability and Health, following linking rules. Results: A total of 80 individuals participated in the study. For parents and children the most-cited barriers to participation in leisure activities were relat-ed to environmental factors. For children, the main barriers were the attitudes of their nuclear family, acquaintances, and friends. Access to products and technology for personal mobility were also important obstacles. For them, support from immediate family was both a facilitator and barrier. Other barriers identified by family members were open-space planning services and assets. As facilitators, the atti-tudes and support of people in positions of authority also were reported by this group. Conclusion: For parents and children, most disabling barriers were related to environmental factors, such as access to products and technology, support, and attitudes. Some differences in perception were observed between comments from children and parents; for example, regarding barriers due to immediate family. Parents showed greater awareness of barriers and facilitators to participation in leisure activities.
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spelling doaj.art-fccf2b1c94c64541b968871747ea7fea2022-12-22T04:05:46ZengMedical Journals SwedenJournal of Rehabilitation Medicine1650-19771651-20812021-01-01531jrm0013610.2340/16501977-27682730Participation in leisure activities from the perception of children with disabilities and their families in BrazilJanice Souza Marques0Isabelly Cristina RegaladoÉlida Rayanne Viana Pinheiro GalvãoHaryelle Náryma FerreiraEgmar LongoAna Raquel Rodrigues Lindquist Department of Physical Therapy, Federal University of Rio Grande do Norte, 59082-080 Natal, Brazil. Objective: To understand the perception of children with disabilities and their families regarding factors that interfere with participation in leisure activities in Brazil. Methods: This qualitative study included 14 focus groups, involving a total of 80 participants (40 children with disabilities and 40 family members). Discus-sions were recorded and transcribed. Coding was based on the International Classification of Functioning Disability and Health, following linking rules. Results: A total of 80 individuals participated in the study. For parents and children the most-cited barriers to participation in leisure activities were relat-ed to environmental factors. For children, the main barriers were the attitudes of their nuclear family, acquaintances, and friends. Access to products and technology for personal mobility were also important obstacles. For them, support from immediate family was both a facilitator and barrier. Other barriers identified by family members were open-space planning services and assets. As facilitators, the atti-tudes and support of people in positions of authority also were reported by this group. Conclusion: For parents and children, most disabling barriers were related to environmental factors, such as access to products and technology, support, and attitudes. Some differences in perception were observed between comments from children and parents; for example, regarding barriers due to immediate family. Parents showed greater awareness of barriers and facilitators to participation in leisure activities. https://www.medicaljournals.se/jrm/content/html/10.2340/16501977-2768 disability children parents participation environment focus group international classification of functioning disability and health.
spellingShingle Janice Souza Marques
Isabelly Cristina Regalado
Élida Rayanne Viana Pinheiro Galvão
Haryelle Náryma Ferreira
Egmar Longo
Ana Raquel Rodrigues Lindquist
Participation in leisure activities from the perception of children with disabilities and their families in Brazil
Journal of Rehabilitation Medicine
disability
children
parents
participation
environment
focus group
international classification of functioning disability and health.
title Participation in leisure activities from the perception of children with disabilities and their families in Brazil
title_full Participation in leisure activities from the perception of children with disabilities and their families in Brazil
title_fullStr Participation in leisure activities from the perception of children with disabilities and their families in Brazil
title_full_unstemmed Participation in leisure activities from the perception of children with disabilities and their families in Brazil
title_short Participation in leisure activities from the perception of children with disabilities and their families in Brazil
title_sort participation in leisure activities from the perception of children with disabilities and their families in brazil
topic disability
children
parents
participation
environment
focus group
international classification of functioning disability and health.
url https://www.medicaljournals.se/jrm/content/html/10.2340/16501977-2768
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