Evaluation of Turner Syndrome Knowledge among Physicians and Parents

Objective:Turner syndrome (TS) is one of the most common chromosomal abnormalities and an important cause of short stature and infertility due to ovarian failure in females. The aim was to evaluate the knowledge of TS among physicians and parents of children with TS and to enhance awareness about th...

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Main Authors: Berna Eroğlu Filibeli, Nesrin Havare, Huriye Erbak Yılmaz, Jülide Gülizar Yıldırım, Gönül Çatlı, Bumin N. Dündar
Format: Article
Language:English
Published: Galenos Yayincilik 2020-03-01
Series:JCRPE
Subjects:
Online Access: http://www.jcrpe.org/archives/archive-detail/article-preview/evaluation-of-turner-syndrome-knowledge-among-phys/30132
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author Berna Eroğlu Filibeli
Nesrin Havare
Huriye Erbak Yılmaz
Jülide Gülizar Yıldırım
Gönül Çatlı
Bumin N. Dündar
author_facet Berna Eroğlu Filibeli
Nesrin Havare
Huriye Erbak Yılmaz
Jülide Gülizar Yıldırım
Gönül Çatlı
Bumin N. Dündar
author_sort Berna Eroğlu Filibeli
collection DOAJ
description Objective:Turner syndrome (TS) is one of the most common chromosomal abnormalities and an important cause of short stature and infertility due to ovarian failure in females. The aim was to evaluate the knowledge of TS among physicians and parents of children with TS and to enhance awareness about this subject.Methods:One hundred and forty physicians were included in the study. The study population comprised 37 pediatricians (26.4%), 15 gynecologists (10.7%), 88 family physicians (62.9%) and 30 parents who had daughters with a diagnosis of TS. Two separate questionnaires were administered to evaluate TS knowledge of physicians and parents.Results:According to the self-reports of physicians, 49% had insufficient knowledge of TS, while 15.7% indicated that they had no knowledge of TS. The mean percentage of correct answers was 50.71±16.17% for all physicians. When the entire group of physicians was considered, 67.1% of them did not know the approximate incidence of TS, while 14.3% of them incorrectly indicated that TS was a condition that was seen in boys. The mean percentage of correct answers among parents was 68±15%, and there was no difference between the mothers’ and fathers’ correct answer rates (p=0.063). The majority of parents was not aware of TS-associated diseases and increased malignancy risk in TS.Conclusion:Physician knowledge of TS was poor and that there is a need for continued education about TS at the medical faculty and post-graduate levels.
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spelling doaj.art-fcf1b6c1ddfd4eabaa9c12c28e7400852023-02-15T16:08:35ZengGalenos YayincilikJCRPE1308-57271308-57352020-03-011219510310.4274/jcrpe.galenos.2019.2019.004113049054Evaluation of Turner Syndrome Knowledge among Physicians and ParentsBerna Eroğlu Filibeli0Nesrin Havare1Huriye Erbak Yılmaz2Jülide Gülizar Yıldırım3Gönül Çatlı4Bumin N. Dündar5 University of Health Sciences Turkey, Tepecik Training and Research Hospital, Clinic of Pediatric Endocrinology, İzmir, Turkey University of Health Sciences Turkey, Tepecik Training and Research Hospital, Clinic of Pediatrics, İzmir, Turkey Katip Çelebi University, Atatürk Traning and Research Hospital, Clinic of Biochemistry, İzmir, Turkey Katip Çelebi University Faculty of Health Sciences, Department of Public Health Nursing, İzmir, Turkey Katip Çelebi University Faculty of Medicine, Department of Pediatric Endocrinology, İzmir, Turkey Katip Çelebi University Faculty of Medicine, Department of Pediatric Endocrinology, İzmir, Turkey Objective:Turner syndrome (TS) is one of the most common chromosomal abnormalities and an important cause of short stature and infertility due to ovarian failure in females. The aim was to evaluate the knowledge of TS among physicians and parents of children with TS and to enhance awareness about this subject.Methods:One hundred and forty physicians were included in the study. The study population comprised 37 pediatricians (26.4%), 15 gynecologists (10.7%), 88 family physicians (62.9%) and 30 parents who had daughters with a diagnosis of TS. Two separate questionnaires were administered to evaluate TS knowledge of physicians and parents.Results:According to the self-reports of physicians, 49% had insufficient knowledge of TS, while 15.7% indicated that they had no knowledge of TS. The mean percentage of correct answers was 50.71±16.17% for all physicians. When the entire group of physicians was considered, 67.1% of them did not know the approximate incidence of TS, while 14.3% of them incorrectly indicated that TS was a condition that was seen in boys. The mean percentage of correct answers among parents was 68±15%, and there was no difference between the mothers’ and fathers’ correct answer rates (p=0.063). The majority of parents was not aware of TS-associated diseases and increased malignancy risk in TS.Conclusion:Physician knowledge of TS was poor and that there is a need for continued education about TS at the medical faculty and post-graduate levels. http://www.jcrpe.org/archives/archive-detail/article-preview/evaluation-of-turner-syndrome-knowledge-among-phys/30132 turner syndromeknowledge levelsquestionnaireeducation
spellingShingle Berna Eroğlu Filibeli
Nesrin Havare
Huriye Erbak Yılmaz
Jülide Gülizar Yıldırım
Gönül Çatlı
Bumin N. Dündar
Evaluation of Turner Syndrome Knowledge among Physicians and Parents
JCRPE
turner syndrome
knowledge levels
questionnaire
education
title Evaluation of Turner Syndrome Knowledge among Physicians and Parents
title_full Evaluation of Turner Syndrome Knowledge among Physicians and Parents
title_fullStr Evaluation of Turner Syndrome Knowledge among Physicians and Parents
title_full_unstemmed Evaluation of Turner Syndrome Knowledge among Physicians and Parents
title_short Evaluation of Turner Syndrome Knowledge among Physicians and Parents
title_sort evaluation of turner syndrome knowledge among physicians and parents
topic turner syndrome
knowledge levels
questionnaire
education
url http://www.jcrpe.org/archives/archive-detail/article-preview/evaluation-of-turner-syndrome-knowledge-among-phys/30132
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AT huriyeerbakyılmaz evaluationofturnersyndromeknowledgeamongphysiciansandparents
AT julidegulizaryıldırım evaluationofturnersyndromeknowledgeamongphysiciansandparents
AT gonulcatlı evaluationofturnersyndromeknowledgeamongphysiciansandparents
AT buminndundar evaluationofturnersyndromeknowledgeamongphysiciansandparents