Family empowerment and quality of life of parents raising children with Developmental Disabilities in 78 Japanese families
Objectives: The families of these children experience distress both at the time of diagnosis and afterward. A top priority is to understand family empowerment, family function, and family members' quality of life (QoL) and to effectively support these families in Japan. The objective of this st...
| Main Authors: | , , |
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| Format: | Article |
| Language: | English |
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Elsevier
2017-01-01
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| Series: | International Journal of Nursing Sciences |
| Online Access: | http://www.sciencedirect.com/science/article/pii/S2352013216300989 |
| _version_ | 1819236204670877696 |
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| author | Rie Wakimizu Keiko Yamaguchi Hiroshi Fujioka |
| author_facet | Rie Wakimizu Keiko Yamaguchi Hiroshi Fujioka |
| author_sort | Rie Wakimizu |
| collection | DOAJ |
| description | Objectives: The families of these children experience distress both at the time of diagnosis and afterward. A top priority is to understand family empowerment, family function, and family members' quality of life (QoL) and to effectively support these families in Japan. The objective of this study was to assess the actual conditions of families living with children having DDs and to explore the factors associated with family empowerment and parents' QoL. Methods: We surveyed ninety-three parents (78 mothers, 15 fathers) from 78 families which lived with children with DDs in the capital region of Japan. We assessed two main outcomes using the Japanese versions of the following instruments: Family Empowerment Scale (FES), World Health Organization Quality of Life 26 (WHOQOL26), and other six outcomes. Correlation and multiple regression analyses were conducted. Results: No medication, cooperation with child rearing, assistance from a developmental support center, solved problems related to child rearing, and higher scores in Problem Solving contributed to higher FES scores. Higher WHOQOL26 scores were related to being a full-time housewife, higher self-esteem, no developmental support, a broad emotional support network, higher scores in Problem Solving and Role Function, and lower scores in Affective Reaction and General Function. Conclusions: We revealed that family empowerment and QoL of parents rearing children with DDs in Japan were affected by various subscales of family function and other family attributes. Effective interventions for improving family empowerment and QoL should be researched in the future. Keywords: Developmental disabilities, Family empowerment, Japan, Multiple regression analysis, Quality of life, Social support |
| first_indexed | 2024-12-23T13:00:43Z |
| format | Article |
| id | doaj.art-fcf1e131a1b14b06b0bf97d6e4c3dbe2 |
| institution | Directory Open Access Journal |
| issn | 2352-0132 |
| language | English |
| last_indexed | 2024-12-23T13:00:43Z |
| publishDate | 2017-01-01 |
| publisher | Elsevier |
| record_format | Article |
| series | International Journal of Nursing Sciences |
| spelling | doaj.art-fcf1e131a1b14b06b0bf97d6e4c3dbe22022-12-21T17:46:02ZengElsevierInternational Journal of Nursing Sciences2352-01322017-01-01413845Family empowerment and quality of life of parents raising children with Developmental Disabilities in 78 Japanese familiesRie Wakimizu0Keiko Yamaguchi1Hiroshi Fujioka2Department of Child Health Care Nursing, Division of Health Innovation and Nursing, Faculty of Medicine, University of Tsukuba, 1-1-1 Tennodai, Tsukuba City, Ibaraki 305-8575, Japan; Corresponding author.Department of Nursing Science Doctor's Program, Graduate School of Comprehensive Human Sciences, University of Tsukuba, 1-1-1 Tennodai, Tsukuba City, Ibaraki 305-8575, JapanDepartment of Nursing, Tsukuba International University, 6-8-33 Manabe, Tsuchiura City, Ibaraki 300-0051, JapanObjectives: The families of these children experience distress both at the time of diagnosis and afterward. A top priority is to understand family empowerment, family function, and family members' quality of life (QoL) and to effectively support these families in Japan. The objective of this study was to assess the actual conditions of families living with children having DDs and to explore the factors associated with family empowerment and parents' QoL. Methods: We surveyed ninety-three parents (78 mothers, 15 fathers) from 78 families which lived with children with DDs in the capital region of Japan. We assessed two main outcomes using the Japanese versions of the following instruments: Family Empowerment Scale (FES), World Health Organization Quality of Life 26 (WHOQOL26), and other six outcomes. Correlation and multiple regression analyses were conducted. Results: No medication, cooperation with child rearing, assistance from a developmental support center, solved problems related to child rearing, and higher scores in Problem Solving contributed to higher FES scores. Higher WHOQOL26 scores were related to being a full-time housewife, higher self-esteem, no developmental support, a broad emotional support network, higher scores in Problem Solving and Role Function, and lower scores in Affective Reaction and General Function. Conclusions: We revealed that family empowerment and QoL of parents rearing children with DDs in Japan were affected by various subscales of family function and other family attributes. Effective interventions for improving family empowerment and QoL should be researched in the future. Keywords: Developmental disabilities, Family empowerment, Japan, Multiple regression analysis, Quality of life, Social supporthttp://www.sciencedirect.com/science/article/pii/S2352013216300989 |
| spellingShingle | Rie Wakimizu Keiko Yamaguchi Hiroshi Fujioka Family empowerment and quality of life of parents raising children with Developmental Disabilities in 78 Japanese families International Journal of Nursing Sciences |
| title | Family empowerment and quality of life of parents raising children with Developmental Disabilities in 78 Japanese families |
| title_full | Family empowerment and quality of life of parents raising children with Developmental Disabilities in 78 Japanese families |
| title_fullStr | Family empowerment and quality of life of parents raising children with Developmental Disabilities in 78 Japanese families |
| title_full_unstemmed | Family empowerment and quality of life of parents raising children with Developmental Disabilities in 78 Japanese families |
| title_short | Family empowerment and quality of life of parents raising children with Developmental Disabilities in 78 Japanese families |
| title_sort | family empowerment and quality of life of parents raising children with developmental disabilities in 78 japanese families |
| url | http://www.sciencedirect.com/science/article/pii/S2352013216300989 |
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