Quality of life assessment instruments for adults: a systematic review of population-based studies
Abstract Background Against a backdrop of population aging and improving survival rates for chronic noncommunicable diseases (CNCD), researchers are placing growing emphasis on health-related quality of life (HRQoL). The aim of this study was to identify the QoL assessment instruments used in popula...
| Main Authors: | , , , , |
|---|---|
| Format: | Article |
| Language: | English |
| Published: |
BMC
2020-06-01
|
| Series: | Health and Quality of Life Outcomes |
| Subjects: | |
| Online Access: | http://link.springer.com/article/10.1186/s12955-020-01347-7 |
| _version_ | 1818187812247175168 |
|---|---|
| author | Nila Patrícia Freire Pequeno Natália Louise de Araújo Cabral Dirce Maria Marchioni Severina Carla Vieira Cunha Lima Clélia de Oliveira Lyra |
| author_facet | Nila Patrícia Freire Pequeno Natália Louise de Araújo Cabral Dirce Maria Marchioni Severina Carla Vieira Cunha Lima Clélia de Oliveira Lyra |
| author_sort | Nila Patrícia Freire Pequeno |
| collection | DOAJ |
| description | Abstract Background Against a backdrop of population aging and improving survival rates for chronic noncommunicable diseases (CNCD), researchers are placing growing emphasis on health-related quality of life (HRQoL). The aim of this study was to identify the QoL assessment instruments used in population-based studies with adults conducted around the world. Methods A systematic review of original research published in all languages between 2008 and 2018 was conducted. Systematic reviews and meta-analyses were excluded. Results Sixty-three articles (38.1% conducted in the Americas) fitted the eligibility criteria. Based on the AHRQ checklist for cross-sectional studies and the Newcastle-Ottawa scale for cohort studies, methodological quality was shown to be fair in the majority of studies (55.6%) and good in 44.4%. The country with the highest number of publications was Brazil (20.6%). Twelve types of generic instruments and 11 specific instruments were identified. The generic instrument SF-36 was the most frequently used measure (33.3% of studies). In-home interviewing was exclusively used by 47.6% of the studies, while 39 studies (61.9%) reported the use of self-administered questionnaires. Over two-thirds of the studies (34.9%) used questionnaires to investigate the association between chronic diseases and/or associated factors. Conclusions It was concluded that the wide range of instruments and modes of questionnaire administration used by the studies may hinder comparisons between population groups with the same characteristics or needs. There is a lack of research on QoL and the factors affecting productive capacity. Studies of QoL in older persons should focus not only on the effects of disease and treatment, but also on the determinants of active aging and actions designed to promote it. Further research is recommended to determine which QoL instruments are best suited for population-based studies. |
| first_indexed | 2024-12-11T23:16:58Z |
| format | Article |
| id | doaj.art-fda30b3963774b0485885e277a1087ad |
| institution | Directory Open Access Journal |
| issn | 1477-7525 |
| language | English |
| last_indexed | 2024-12-11T23:16:58Z |
| publishDate | 2020-06-01 |
| publisher | BMC |
| record_format | Article |
| series | Health and Quality of Life Outcomes |
| spelling | doaj.art-fda30b3963774b0485885e277a1087ad2022-12-22T00:46:30ZengBMCHealth and Quality of Life Outcomes1477-75252020-06-0118111310.1186/s12955-020-01347-7Quality of life assessment instruments for adults: a systematic review of population-based studiesNila Patrícia Freire Pequeno0Natália Louise de Araújo Cabral1Dirce Maria Marchioni2Severina Carla Vieira Cunha Lima3Clélia de Oliveira Lyra4Postgraduate Program in Public Health at the Federal University of Rio Grande do NortePostgraduate Program in Public Health at the Federal University of Rio Grande do NorteDepartment of Nutrition of the School of Public Health at the University of São PauloDepartment of Nutrition at the Federal University of Rio Grande do NorteDepartment of Nutrition at the Federal University of Rio Grande do NorteAbstract Background Against a backdrop of population aging and improving survival rates for chronic noncommunicable diseases (CNCD), researchers are placing growing emphasis on health-related quality of life (HRQoL). The aim of this study was to identify the QoL assessment instruments used in population-based studies with adults conducted around the world. Methods A systematic review of original research published in all languages between 2008 and 2018 was conducted. Systematic reviews and meta-analyses were excluded. Results Sixty-three articles (38.1% conducted in the Americas) fitted the eligibility criteria. Based on the AHRQ checklist for cross-sectional studies and the Newcastle-Ottawa scale for cohort studies, methodological quality was shown to be fair in the majority of studies (55.6%) and good in 44.4%. The country with the highest number of publications was Brazil (20.6%). Twelve types of generic instruments and 11 specific instruments were identified. The generic instrument SF-36 was the most frequently used measure (33.3% of studies). In-home interviewing was exclusively used by 47.6% of the studies, while 39 studies (61.9%) reported the use of self-administered questionnaires. Over two-thirds of the studies (34.9%) used questionnaires to investigate the association between chronic diseases and/or associated factors. Conclusions It was concluded that the wide range of instruments and modes of questionnaire administration used by the studies may hinder comparisons between population groups with the same characteristics or needs. There is a lack of research on QoL and the factors affecting productive capacity. Studies of QoL in older persons should focus not only on the effects of disease and treatment, but also on the determinants of active aging and actions designed to promote it. Further research is recommended to determine which QoL instruments are best suited for population-based studies.http://link.springer.com/article/10.1186/s12955-020-01347-7Quality of lifeHealth-related quality of lifePopulation surveysSystematic review |
| spellingShingle | Nila Patrícia Freire Pequeno Natália Louise de Araújo Cabral Dirce Maria Marchioni Severina Carla Vieira Cunha Lima Clélia de Oliveira Lyra Quality of life assessment instruments for adults: a systematic review of population-based studies Health and Quality of Life Outcomes Quality of life Health-related quality of life Population surveys Systematic review |
| title | Quality of life assessment instruments for adults: a systematic review of population-based studies |
| title_full | Quality of life assessment instruments for adults: a systematic review of population-based studies |
| title_fullStr | Quality of life assessment instruments for adults: a systematic review of population-based studies |
| title_full_unstemmed | Quality of life assessment instruments for adults: a systematic review of population-based studies |
| title_short | Quality of life assessment instruments for adults: a systematic review of population-based studies |
| title_sort | quality of life assessment instruments for adults a systematic review of population based studies |
| topic | Quality of life Health-related quality of life Population surveys Systematic review |
| url | http://link.springer.com/article/10.1186/s12955-020-01347-7 |
| work_keys_str_mv | AT nilapatriciafreirepequeno qualityoflifeassessmentinstrumentsforadultsasystematicreviewofpopulationbasedstudies AT natalialouisedearaujocabral qualityoflifeassessmentinstrumentsforadultsasystematicreviewofpopulationbasedstudies AT dircemariamarchioni qualityoflifeassessmentinstrumentsforadultsasystematicreviewofpopulationbasedstudies AT severinacarlavieiracunhalima qualityoflifeassessmentinstrumentsforadultsasystematicreviewofpopulationbasedstudies AT cleliadeoliveiralyra qualityoflifeassessmentinstrumentsforadultsasystematicreviewofpopulationbasedstudies |