Regulating the Secondary Use of Data for Research: Arguments Against Genetic Exceptionalism

Regulating the Secondary Use of Data for Research: Arguments Against Genetic Exceptionalism

As accessing, collecting, and storing personal information become increasingly easier, the secondary use of data has the potential to make healthcare research more cost and time effective. The widespread reuse of data, however, raises important ethical and policy issues, especially because of the se...

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Bibliographic Details
Main Authors: Andrea Martani, Lester Darryl Geneviève, Christiane Pauli-Magnus, Stuart McLennan, Bernice Simone Elger
Format: Article
Language:English
Published: Frontiers Media S.A. 2019-12-01
Series:Frontiers in Genetics
Subjects:
secondary use
research policy
genetic data
genetic exceptionalism
data protection
Online Access:https://www.frontiersin.org/article/10.3389/fgene.2019.01254/full

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