The experiences and impact of the COVID-19 pandemic on young carers: practice implications and planning for future health emergencies

Abstract Background Young carers are children or young people aged up to 25 years old who undertake unpaid caring responsibilities for a friend or family member. Young carers faced significant challenges brought on by the COVID-19 pandemic. We explored the impact of the pandemic and associated restr...

Full description

Bibliographic Details
Main Authors: D Hayes, D Fancourt, A Burton
Format: Article
Language:English
Published: BMC 2024-01-01
Series:Child and Adolescent Psychiatry and Mental Health
Subjects:
Online Access:https://doi.org/10.1186/s13034-023-00697-6
_version_ 1797363709133193216
author D Hayes
D Fancourt
A Burton
author_facet D Hayes
D Fancourt
A Burton
author_sort D Hayes
collection DOAJ
description Abstract Background Young carers are children or young people aged up to 25 years old who undertake unpaid caring responsibilities for a friend or family member. Young carers faced significant challenges brought on by the COVID-19 pandemic. We explored the impact of the pandemic and associated restrictions on mental health, wellbeing and access to support in young carers in the United Kingdom (UK) to understand how to improve services, as well as support this population in future health emergencies. Method We conducted 22 qualitative semi-structured interviews from May to November 2021 with 14 young carers and eight staff working in organisations that supported them. Interviews took place remotely over video or telephone call and explored participant experiences of the pandemic and its impact on their health, wellbeing and caring responsibilities. We used reflexive thematic analysis to analyse interview transcripts. Results We identified four overarching themes pertaining to the impact of the pandemic and associated restrictions on mental health, wellbeing and access to support in young carers in the UK: (1) challenges in protecting loved ones from the virus, (2) changes to and loss of routine, (3) reduced access to pre-pandemic informal and formal support structures and (4) better understanding of inner resilience and goals. Many participants struggled with their mental health and wellbeing as a result of pandemic related restrictions which impacted on support structures for themselves and the individual they cared for. However, positive impacts pertained to additional support provided by local authority and third sector organisations. Conclusions Our findings highlight some of the changes that affected young carers during the COVID-19 pandemic. The impact of changes to routine and a reduction in pre-pandemic support were the greatest concerns reported by participants in this study. The additional support provided by local authority and third sector organisations during social restrictions suggests such organisations could play a greater role in supporting this population going forward and that schools and Governments may wish to put in additional strategies and provisions to protect young carers in the future.
first_indexed 2024-03-08T16:23:54Z
format Article
id doaj.art-fe9a0536d8e04d498479eda5948bcebb
institution Directory Open Access Journal
issn 1753-2000
language English
last_indexed 2024-03-08T16:23:54Z
publishDate 2024-01-01
publisher BMC
record_format Article
series Child and Adolescent Psychiatry and Mental Health
spelling doaj.art-fe9a0536d8e04d498479eda5948bcebb2024-01-07T12:11:31ZengBMCChild and Adolescent Psychiatry and Mental Health1753-20002024-01-0118111410.1186/s13034-023-00697-6The experiences and impact of the COVID-19 pandemic on young carers: practice implications and planning for future health emergenciesD Hayes0D Fancourt1A Burton2The Social Biobehavioural Research Group, Research Department of Behavioural Science and Health, Institute of Epidemiology & Health Care, University College London (UCL)The Social Biobehavioural Research Group, Research Department of Behavioural Science and Health, Institute of Epidemiology & Health Care, University College London (UCL)The Social Biobehavioural Research Group, Research Department of Behavioural Science and Health, Institute of Epidemiology & Health Care, University College London (UCL)Abstract Background Young carers are children or young people aged up to 25 years old who undertake unpaid caring responsibilities for a friend or family member. Young carers faced significant challenges brought on by the COVID-19 pandemic. We explored the impact of the pandemic and associated restrictions on mental health, wellbeing and access to support in young carers in the United Kingdom (UK) to understand how to improve services, as well as support this population in future health emergencies. Method We conducted 22 qualitative semi-structured interviews from May to November 2021 with 14 young carers and eight staff working in organisations that supported them. Interviews took place remotely over video or telephone call and explored participant experiences of the pandemic and its impact on their health, wellbeing and caring responsibilities. We used reflexive thematic analysis to analyse interview transcripts. Results We identified four overarching themes pertaining to the impact of the pandemic and associated restrictions on mental health, wellbeing and access to support in young carers in the UK: (1) challenges in protecting loved ones from the virus, (2) changes to and loss of routine, (3) reduced access to pre-pandemic informal and formal support structures and (4) better understanding of inner resilience and goals. Many participants struggled with their mental health and wellbeing as a result of pandemic related restrictions which impacted on support structures for themselves and the individual they cared for. However, positive impacts pertained to additional support provided by local authority and third sector organisations. Conclusions Our findings highlight some of the changes that affected young carers during the COVID-19 pandemic. The impact of changes to routine and a reduction in pre-pandemic support were the greatest concerns reported by participants in this study. The additional support provided by local authority and third sector organisations during social restrictions suggests such organisations could play a greater role in supporting this population going forward and that schools and Governments may wish to put in additional strategies and provisions to protect young carers in the future.https://doi.org/10.1186/s13034-023-00697-6Mental healthWellbeingCOVID-19QualitativeYoung carersHealth emergencies
spellingShingle D Hayes
D Fancourt
A Burton
The experiences and impact of the COVID-19 pandemic on young carers: practice implications and planning for future health emergencies
Child and Adolescent Psychiatry and Mental Health
Mental health
Wellbeing
COVID-19
Qualitative
Young carers
Health emergencies
title The experiences and impact of the COVID-19 pandemic on young carers: practice implications and planning for future health emergencies
title_full The experiences and impact of the COVID-19 pandemic on young carers: practice implications and planning for future health emergencies
title_fullStr The experiences and impact of the COVID-19 pandemic on young carers: practice implications and planning for future health emergencies
title_full_unstemmed The experiences and impact of the COVID-19 pandemic on young carers: practice implications and planning for future health emergencies
title_short The experiences and impact of the COVID-19 pandemic on young carers: practice implications and planning for future health emergencies
title_sort experiences and impact of the covid 19 pandemic on young carers practice implications and planning for future health emergencies
topic Mental health
Wellbeing
COVID-19
Qualitative
Young carers
Health emergencies
url https://doi.org/10.1186/s13034-023-00697-6
work_keys_str_mv AT dhayes theexperiencesandimpactofthecovid19pandemiconyoungcarerspracticeimplicationsandplanningforfuturehealthemergencies
AT dfancourt theexperiencesandimpactofthecovid19pandemiconyoungcarerspracticeimplicationsandplanningforfuturehealthemergencies
AT aburton theexperiencesandimpactofthecovid19pandemiconyoungcarerspracticeimplicationsandplanningforfuturehealthemergencies
AT dhayes experiencesandimpactofthecovid19pandemiconyoungcarerspracticeimplicationsandplanningforfuturehealthemergencies
AT dfancourt experiencesandimpactofthecovid19pandemiconyoungcarerspracticeimplicationsandplanningforfuturehealthemergencies
AT aburton experiencesandimpactofthecovid19pandemiconyoungcarerspracticeimplicationsandplanningforfuturehealthemergencies