Involving adolescents in the design, implementation, evaluation and dissemination of health research: an umbrella review protocol

Introduction A lack of awareness on how to engage adolescents in research has been reported as one of the barriers to meaningful youth involvement in health research. Currently, available guidelines on youth involvement are limited in terms of the scope (e.g., focused on limited health research area...

Full description

Bibliographic Details
Main Authors: Maria Lee, Azza Warraitch, Delali Bruce, Paul Curran, Qusai Khraisha, Kristin Hadfield
Format: Article
Language:English
Published: BMJ Publishing Group 2023-06-01
Series:BMJ Open
Online Access:https://bmjopen.bmj.com/content/13/6/e069695.full
_version_ 1797812631641260032
author Maria Lee
Azza Warraitch
Delali Bruce
Paul Curran
Qusai Khraisha
Kristin Hadfield
author_facet Maria Lee
Azza Warraitch
Delali Bruce
Paul Curran
Qusai Khraisha
Kristin Hadfield
author_sort Maria Lee
collection DOAJ
description Introduction A lack of awareness on how to engage adolescents in research has been reported as one of the barriers to meaningful youth involvement in health research. Currently, available guidelines on youth involvement are limited in terms of the scope (e.g., focused on limited health research areas), content (e.g., include broad principles) and context (e.g., most guidelines are from high-income countries) for which the guidelines are applicable. To address this, we will develop a set of comprehensive guidelines based on consolidated evidence on youth involvement in health research. To inform these guidelines, we are first conducting an umbrella review to (1) summarise and synthesise findings from reviews on involving adolescents in health research, (2) consolidate the challenges experienced in youth involvement and the recommendations to mitigate these challenges, (3) identify best practices and (4) identify gaps and methodological weaknesses in the extant literature on involving adolescents in health research.Methods and analysis We will include review articles exploring adolescents’ involvement in studies aiming to improve their physical or mental health. Databases to be searched include Cochrane Database of Systematic Reviews, Medical Literature Analysis and Retrieval System Online (MEDLINE), Scopus, Embase, PsycINFO, PsycArticles, Cumulative Index to Nursing and Allied Health Literature (CINAHL), Epistemonikos and Health Systems Evidence. A grey literature search will be conducted in Web of Science, ProQuest, Google Scholar and PROSPERO, supplemented by a handsearch of the reference lists of eligible reviews, relevant journals, websites of related organisations and input from experts. Data will be analysed using narrative synthesis.Ethics and dissemination Ethical approval is not required as we are not collecting participant data as part of this review. The findings of this umbrella review will be disseminated through peer-reviewed publications, participatory workshops and academic conferences.PROSPERO registration number CRD42021287467.
first_indexed 2024-03-13T07:41:17Z
format Article
id doaj.art-ff0d34be42094840ad28859930b033e8
institution Directory Open Access Journal
issn 2044-6055
language English
last_indexed 2024-03-13T07:41:17Z
publishDate 2023-06-01
publisher BMJ Publishing Group
record_format Article
series BMJ Open
spelling doaj.art-ff0d34be42094840ad28859930b033e82023-06-03T08:00:06ZengBMJ Publishing GroupBMJ Open2044-60552023-06-0113610.1136/bmjopen-2022-069695Involving adolescents in the design, implementation, evaluation and dissemination of health research: an umbrella review protocolMaria Lee0Azza Warraitch1Delali Bruce2Paul Curran3Qusai Khraisha4Kristin Hadfield5Division of Gynecologic Oncology, Department of Obstetrics and Gynecology, Kangdong Sacred Heart Hospital, Hallym University; andTrinity Centre for Global Health, Trinity College Dublin, Dublin, IrelandTrinity Centre for Global Health, Trinity College Dublin, Dublin, IrelandSchool of Psychology, Trinity College Dublin, Dublin, IrelandTrinity Centre for Global Health, Trinity College Dublin, Dublin, IrelandTrinity Centre for Global Health, Trinity College Dublin, Dublin, IrelandIntroduction A lack of awareness on how to engage adolescents in research has been reported as one of the barriers to meaningful youth involvement in health research. Currently, available guidelines on youth involvement are limited in terms of the scope (e.g., focused on limited health research areas), content (e.g., include broad principles) and context (e.g., most guidelines are from high-income countries) for which the guidelines are applicable. To address this, we will develop a set of comprehensive guidelines based on consolidated evidence on youth involvement in health research. To inform these guidelines, we are first conducting an umbrella review to (1) summarise and synthesise findings from reviews on involving adolescents in health research, (2) consolidate the challenges experienced in youth involvement and the recommendations to mitigate these challenges, (3) identify best practices and (4) identify gaps and methodological weaknesses in the extant literature on involving adolescents in health research.Methods and analysis We will include review articles exploring adolescents’ involvement in studies aiming to improve their physical or mental health. Databases to be searched include Cochrane Database of Systematic Reviews, Medical Literature Analysis and Retrieval System Online (MEDLINE), Scopus, Embase, PsycINFO, PsycArticles, Cumulative Index to Nursing and Allied Health Literature (CINAHL), Epistemonikos and Health Systems Evidence. A grey literature search will be conducted in Web of Science, ProQuest, Google Scholar and PROSPERO, supplemented by a handsearch of the reference lists of eligible reviews, relevant journals, websites of related organisations and input from experts. Data will be analysed using narrative synthesis.Ethics and dissemination Ethical approval is not required as we are not collecting participant data as part of this review. The findings of this umbrella review will be disseminated through peer-reviewed publications, participatory workshops and academic conferences.PROSPERO registration number CRD42021287467.https://bmjopen.bmj.com/content/13/6/e069695.full
spellingShingle Maria Lee
Azza Warraitch
Delali Bruce
Paul Curran
Qusai Khraisha
Kristin Hadfield
Involving adolescents in the design, implementation, evaluation and dissemination of health research: an umbrella review protocol
BMJ Open
title Involving adolescents in the design, implementation, evaluation and dissemination of health research: an umbrella review protocol
title_full Involving adolescents in the design, implementation, evaluation and dissemination of health research: an umbrella review protocol
title_fullStr Involving adolescents in the design, implementation, evaluation and dissemination of health research: an umbrella review protocol
title_full_unstemmed Involving adolescents in the design, implementation, evaluation and dissemination of health research: an umbrella review protocol
title_short Involving adolescents in the design, implementation, evaluation and dissemination of health research: an umbrella review protocol
title_sort involving adolescents in the design implementation evaluation and dissemination of health research an umbrella review protocol
url https://bmjopen.bmj.com/content/13/6/e069695.full
work_keys_str_mv AT marialee involvingadolescentsinthedesignimplementationevaluationanddisseminationofhealthresearchanumbrellareviewprotocol
AT azzawarraitch involvingadolescentsinthedesignimplementationevaluationanddisseminationofhealthresearchanumbrellareviewprotocol
AT delalibruce involvingadolescentsinthedesignimplementationevaluationanddisseminationofhealthresearchanumbrellareviewprotocol
AT paulcurran involvingadolescentsinthedesignimplementationevaluationanddisseminationofhealthresearchanumbrellareviewprotocol
AT qusaikhraisha involvingadolescentsinthedesignimplementationevaluationanddisseminationofhealthresearchanumbrellareviewprotocol
AT kristinhadfield involvingadolescentsinthedesignimplementationevaluationanddisseminationofhealthresearchanumbrellareviewprotocol