Biobanche in bilico tra proprietà privata e beni comuni: brevetti o open data sharing?

The circulation and sharing of contents in biobanks is approached with the study of the normative statutes of these institutions, with careful attention to copyright. Such institutions are an organized set of human biological specimens with diagnostic, therapeutic, and research aims. Since the issue...

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Main Authors: Antonella De Robbio, Antonella Corradi
Format: Article
Language:English
Published: Firenze University Press 2010-11-01
Series:JLIS.it
Subjects:
Online Access:https://www.jlis.it/article/view/4537
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author Antonella De Robbio
Antonella Corradi
author_facet Antonella De Robbio
Antonella Corradi
author_sort Antonella De Robbio
collection DOAJ
description The circulation and sharing of contents in biobanks is approached with the study of the normative statutes of these institutions, with careful attention to copyright. Such institutions are an organized set of human biological specimens with diagnostic, therapeutic, and research aims. Since the issue is quite new, their statutes are controversial; moreover, the exploitation of new detections is particularly complicated. The ownership of samples (tissues, cells, organs) and the ownership of the biobank as the entity managing the database is crucial in order to determine any rights on researches that can be patented. The sui generic right in Europe states some rights for the database builder, whom allocates economic resources to organize information. However, the main issue of this kind of databases is related to the quality of the patented object: organic and living material. Regarding this fact, there exist stances for privatizing those biological specimens, while the majority consider models of open data sharing as a more suitable way, considering organic samples as “commons”. The latter tendency seems to predominate, protecting the human body and its genome from economical exploitation, although acknowledging some kinds of profits related to the intellectual property.
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spelling doaj.art-ff29d7133d5f423f982794f90d275a0c2022-12-21T17:16:53ZengFirenze University PressJLIS.it2038-53662038-10262010-11-01123053294462Biobanche in bilico tra proprietà privata e beni comuni: brevetti o open data sharing?Antonella De Robbio0Antonella Corradi1University of PadovaMiBAC Direzione generale per le biblioteche, gli istituti culturali e il diritto d'autoreThe circulation and sharing of contents in biobanks is approached with the study of the normative statutes of these institutions, with careful attention to copyright. Such institutions are an organized set of human biological specimens with diagnostic, therapeutic, and research aims. Since the issue is quite new, their statutes are controversial; moreover, the exploitation of new detections is particularly complicated. The ownership of samples (tissues, cells, organs) and the ownership of the biobank as the entity managing the database is crucial in order to determine any rights on researches that can be patented. The sui generic right in Europe states some rights for the database builder, whom allocates economic resources to organize information. However, the main issue of this kind of databases is related to the quality of the patented object: organic and living material. Regarding this fact, there exist stances for privatizing those biological specimens, while the majority consider models of open data sharing as a more suitable way, considering organic samples as “commons”. The latter tendency seems to predominate, protecting the human body and its genome from economical exploitation, although acknowledging some kinds of profits related to the intellectual property.https://www.jlis.it/article/view/4537BiobanksBiologyCopyrightDatabaseOpen data sharing
spellingShingle Antonella De Robbio
Antonella Corradi
Biobanche in bilico tra proprietà privata e beni comuni: brevetti o open data sharing?
JLIS.it
Biobanks
Biology
Copyright
Database
Open data sharing
title Biobanche in bilico tra proprietà privata e beni comuni: brevetti o open data sharing?
title_full Biobanche in bilico tra proprietà privata e beni comuni: brevetti o open data sharing?
title_fullStr Biobanche in bilico tra proprietà privata e beni comuni: brevetti o open data sharing?
title_full_unstemmed Biobanche in bilico tra proprietà privata e beni comuni: brevetti o open data sharing?
title_short Biobanche in bilico tra proprietà privata e beni comuni: brevetti o open data sharing?
title_sort biobanche in bilico tra proprieta privata e beni comuni brevetti o open data sharing
topic Biobanks
Biology
Copyright
Database
Open data sharing
url https://www.jlis.it/article/view/4537
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