ListeningTime; participatory development of a web-based preparatory communication tool for elderly cancer patients and their healthcare providers

Objective: This paper outlines the participatory development process of a web-based preparatory communication tool for elderly cancer patients and their oncological healthcare providers (HCPs). This tool aims to support them to (better) prepare their encounters. An overarching aim of the project is...

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Main Authors: Janneke Noordman, Jeanine A. Driesenaar, Inge R. van Bruinessen, Sandra van Dulmen
Format: Article
Language:English
Published: Elsevier 2017-09-01
Series:Internet Interventions
Online Access:http://www.sciencedirect.com/science/article/pii/S2214782917300283
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author Janneke Noordman
Jeanine A. Driesenaar
Inge R. van Bruinessen
Sandra van Dulmen
author_facet Janneke Noordman
Jeanine A. Driesenaar
Inge R. van Bruinessen
Sandra van Dulmen
author_sort Janneke Noordman
collection DOAJ
description Objective: This paper outlines the participatory development process of a web-based preparatory communication tool for elderly cancer patients and their oncological healthcare providers (HCPs). This tool aims to support them to (better) prepare their encounters. An overarching aim of the project is to develop the tool in a participatory way to increase uptake and use. Methods: Scrum, a participatory framework originated from software development, was applied to develop the tool. Using constant feedback loops, elderly (former) cancer patients, oncological HCPs and their representatives were, as end-users, involved. Results: During six ‘sprints’, the communication tool ‘ListeningTime’ was developed with input from end-users. The use of scrum in developing an innovative tool was challenging in this context, because of time constraints of seriously-ill patients and busy HCPs and the co-creation involving non-profit scientific researchers and a for-profit development company. Conclusions: The collaboration with end-users facilitated the development process of ListeningTime. Early involvement of end-users and flexibility in terms of planning and setup appear to be preconditions for creating a bottom-up inspired development procedure. Several challenges emerged from using scrum as participatory framework. Nevertheless, the ‘pressure cooking situation’, using scrum, resulted in a quick development process and a product ready for implementation.
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spelling doaj.art-ff527207c6eb4c2ea86bedd38ea54fb82022-12-21T17:48:36ZengElsevierInternet Interventions2214-78292017-09-019C515610.1016/j.invent.2017.05.002ListeningTime; participatory development of a web-based preparatory communication tool for elderly cancer patients and their healthcare providersJanneke Noordman0Jeanine A. Driesenaar1Inge R. van Bruinessen2Sandra van Dulmen3NIVEL, Netherlands Institute for Health Services Research, Utrecht, The NetherlandsNIVEL, Netherlands Institute for Health Services Research, Utrecht, The NetherlandsNIVEL, Netherlands Institute for Health Services Research, Utrecht, The NetherlandsNIVEL, Netherlands Institute for Health Services Research, Utrecht, The NetherlandsObjective: This paper outlines the participatory development process of a web-based preparatory communication tool for elderly cancer patients and their oncological healthcare providers (HCPs). This tool aims to support them to (better) prepare their encounters. An overarching aim of the project is to develop the tool in a participatory way to increase uptake and use. Methods: Scrum, a participatory framework originated from software development, was applied to develop the tool. Using constant feedback loops, elderly (former) cancer patients, oncological HCPs and their representatives were, as end-users, involved. Results: During six ‘sprints’, the communication tool ‘ListeningTime’ was developed with input from end-users. The use of scrum in developing an innovative tool was challenging in this context, because of time constraints of seriously-ill patients and busy HCPs and the co-creation involving non-profit scientific researchers and a for-profit development company. Conclusions: The collaboration with end-users facilitated the development process of ListeningTime. Early involvement of end-users and flexibility in terms of planning and setup appear to be preconditions for creating a bottom-up inspired development procedure. Several challenges emerged from using scrum as participatory framework. Nevertheless, the ‘pressure cooking situation’, using scrum, resulted in a quick development process and a product ready for implementation.http://www.sciencedirect.com/science/article/pii/S2214782917300283
spellingShingle Janneke Noordman
Jeanine A. Driesenaar
Inge R. van Bruinessen
Sandra van Dulmen
ListeningTime; participatory development of a web-based preparatory communication tool for elderly cancer patients and their healthcare providers
Internet Interventions
title ListeningTime; participatory development of a web-based preparatory communication tool for elderly cancer patients and their healthcare providers
title_full ListeningTime; participatory development of a web-based preparatory communication tool for elderly cancer patients and their healthcare providers
title_fullStr ListeningTime; participatory development of a web-based preparatory communication tool for elderly cancer patients and their healthcare providers
title_full_unstemmed ListeningTime; participatory development of a web-based preparatory communication tool for elderly cancer patients and their healthcare providers
title_short ListeningTime; participatory development of a web-based preparatory communication tool for elderly cancer patients and their healthcare providers
title_sort listeningtime participatory development of a web based preparatory communication tool for elderly cancer patients and their healthcare providers
url http://www.sciencedirect.com/science/article/pii/S2214782917300283
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