Privacy Tools project response to Common Rule Notice of Proposed Rule Making
This is a Comment on the Department of Health and Human Services (HHS) Proposed Rule: Federal Policy for the Protection of Human Subjects. We recognize the exciting research opportunities enabled by new data sources and technologies for collecting, analyzing, and sharing data about individuals. With...
| Main Authors: | , , , , , , |
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| Format: | Other |
| Language: | en_US |
| Published: |
2019
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| Online Access: | https://hdl.handle.net/1721.1/121255 |
| _version_ | 1811096850060541952 |
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| author | Wood, Alexandra Airoldi, Edo Altman, Micah de Montandre, Yves Gasser, Urs O'Brien, David Vadhan, Salil |
| author_facet | Wood, Alexandra Airoldi, Edo Altman, Micah de Montandre, Yves Gasser, Urs O'Brien, David Vadhan, Salil |
| author_sort | Wood, Alexandra |
| collection | MIT |
| description | This is a Comment on the Department of Health and Human Services (HHS) Proposed Rule: Federal Policy for the Protection of Human Subjects. We recognize the exciting research opportunities enabled by new data sources and technologies for collecting, analyzing, and sharing data about individuals. With the ability to collect and analyze massive quantities of data related to human characteristics, behaviors, and interactions, researchers are increasingly able to explore phenomena in finer detail and with greater confidence. At the same time, a 2 major challenge for realizing the full potential of these recent advances will be protecting the privacy of human subjects. Approaches to privacy protection in common use in both research and industry contexts often provide limited real-world privacy protection. We believe institutional review boards (IRBs) and investigators require new guidance to inform their selection and implementation of appropriate measures for privacy protection in human subjects research. |
| first_indexed | 2024-09-23T16:50:00Z |
| format | Other |
| id | mit-1721.1/121255 |
| institution | Massachusetts Institute of Technology |
| language | en_US |
| last_indexed | 2024-09-23T16:50:00Z |
| publishDate | 2019 |
| record_format | dspace |
| spelling | mit-1721.1/1212552019-06-15T03:01:03Z Privacy Tools project response to Common Rule Notice of Proposed Rule Making Wood, Alexandra Airoldi, Edo Altman, Micah de Montandre, Yves Gasser, Urs O'Brien, David Vadhan, Salil This is a Comment on the Department of Health and Human Services (HHS) Proposed Rule: Federal Policy for the Protection of Human Subjects. We recognize the exciting research opportunities enabled by new data sources and technologies for collecting, analyzing, and sharing data about individuals. With the ability to collect and analyze massive quantities of data related to human characteristics, behaviors, and interactions, researchers are increasingly able to explore phenomena in finer detail and with greater confidence. At the same time, a 2 major challenge for realizing the full potential of these recent advances will be protecting the privacy of human subjects. Approaches to privacy protection in common use in both research and industry contexts often provide limited real-world privacy protection. We believe institutional review boards (IRBs) and investigators require new guidance to inform their selection and implementation of appropriate measures for privacy protection in human subjects research. 2019-06-12T15:34:51Z 2019-06-12T15:34:51Z 2016-01-06 Other https://hdl.handle.net/1721.1/121255 en_US Attribution-NonCommercial-ShareAlike 3.0 United States http://creativecommons.org/licenses/by-nc-sa/3.0/us/ application/pdf |
| spellingShingle | Wood, Alexandra Airoldi, Edo Altman, Micah de Montandre, Yves Gasser, Urs O'Brien, David Vadhan, Salil Privacy Tools project response to Common Rule Notice of Proposed Rule Making |
| title | Privacy Tools project response to Common Rule Notice of Proposed Rule Making |
| title_full | Privacy Tools project response to Common Rule Notice of Proposed Rule Making |
| title_fullStr | Privacy Tools project response to Common Rule Notice of Proposed Rule Making |
| title_full_unstemmed | Privacy Tools project response to Common Rule Notice of Proposed Rule Making |
| title_short | Privacy Tools project response to Common Rule Notice of Proposed Rule Making |
| title_sort | privacy tools project response to common rule notice of proposed rule making |
| url | https://hdl.handle.net/1721.1/121255 |
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