Navigating conflicts of justice in the use of race and ethnicity in precision medicine
Given the sordid history of injustices linking genetics to race and ethnicity, considerations of justice are central to ensuring the responsible development of precision medicine programmes around the world. While considerations of justice may be in tension with other areas of concern, such as scien...
| Main Authors: | , , |
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| Format: | Journal Article |
| Language: | English |
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2020
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| Online Access: | https://hdl.handle.net/10356/144498 |
| _version_ | 1826122429651484672 |
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| author | Schaefer, G. Owen Tai, E. Shyong Sun, Shirley Hsiao-Li |
| author2 | School of Social Sciences |
| author_facet | School of Social Sciences Schaefer, G. Owen Tai, E. Shyong Sun, Shirley Hsiao-Li |
| author_sort | Schaefer, G. Owen |
| collection | NTU |
| description | Given the sordid history of injustices linking genetics to race and ethnicity, considerations of justice are central to ensuring the responsible development of precision medicine programmes around the world. While considerations of justice may be in tension with other areas of concern, such as scientific value or privacy, there are also tensions between different aspects of justice. This paper focuses on three particular aspects of justice relevant to this precision medicine: social justice, distributive justice and human rights. We describe the implications of each for the use of race and ethnicity in precision medicine, and also how they intersect and potentially conflict with each another. By attending to these intersections, we aim to enrich and add nuance to debates over how best to proceed with precision medicine initiatives. |
| first_indexed | 2024-10-01T05:48:22Z |
| format | Journal Article |
| id | ntu-10356/144498 |
| institution | Nanyang Technological University |
| language | English |
| last_indexed | 2024-10-01T05:48:22Z |
| publishDate | 2020 |
| record_format | dspace |
| spelling | ntu-10356/1444982023-02-28T16:59:18Z Navigating conflicts of justice in the use of race and ethnicity in precision medicine Schaefer, G. Owen Tai, E. Shyong Sun, Shirley Hsiao-Li School of Social Sciences School of Biological Sciences Lee Kong Chian School of Medicine (LKCMedicine) Social sciences::Sociology Justice Precision Medicine Given the sordid history of injustices linking genetics to race and ethnicity, considerations of justice are central to ensuring the responsible development of precision medicine programmes around the world. While considerations of justice may be in tension with other areas of concern, such as scientific value or privacy, there are also tensions between different aspects of justice. This paper focuses on three particular aspects of justice relevant to this precision medicine: social justice, distributive justice and human rights. We describe the implications of each for the use of race and ethnicity in precision medicine, and also how they intersect and potentially conflict with each another. By attending to these intersections, we aim to enrich and add nuance to debates over how best to proceed with precision medicine initiatives. Accepted version National Medical Research Council. Grant Number: Funding Initiative Grant: SHAPES 2020-11-10T00:57:33Z 2020-11-10T00:57:33Z 2020 Journal Article Schaefer, G. O., Tai, E. S., & Sun, S. H.-L. (2020). Navigating conflicts of justice in the use of race and ethnicity in precision medicine. Bioethics, 34(8), 849-856. doi:10.1111/bioe.12757 0269-9702 https://hdl.handle.net/10356/144498 10.1111/bioe.12757 32426883 8 34 849 856 en Bioethics This is the accepted version of the following article: Schaefer, G. O., Tai, E. S., & Sun, S. H.-L. (2020). Navigating conflicts of justice in the use of race and ethnicity in precision medicine. Bioethics, 34(8), 849-856, which has been published in final form at http://doi.org/10.1111/bioe.12757. This article may be used for non-commercial purposes in accordance with the Wiley Self-Archiving Policy [https://authorservices.wiley.com/authorresources/Journal-Authors/licensing/self-archiving.html]. application/pdf |
| spellingShingle | Social sciences::Sociology Justice Precision Medicine Schaefer, G. Owen Tai, E. Shyong Sun, Shirley Hsiao-Li Navigating conflicts of justice in the use of race and ethnicity in precision medicine |
| title | Navigating conflicts of justice in the use of race and ethnicity in precision medicine |
| title_full | Navigating conflicts of justice in the use of race and ethnicity in precision medicine |
| title_fullStr | Navigating conflicts of justice in the use of race and ethnicity in precision medicine |
| title_full_unstemmed | Navigating conflicts of justice in the use of race and ethnicity in precision medicine |
| title_short | Navigating conflicts of justice in the use of race and ethnicity in precision medicine |
| title_sort | navigating conflicts of justice in the use of race and ethnicity in precision medicine |
| topic | Social sciences::Sociology Justice Precision Medicine |
| url | https://hdl.handle.net/10356/144498 |
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