The "loci" of misinformation and its correction in peer- and expert-led online communities for mental health: content analysis

Background: Mental health problems are recognized as a pressing public health issue, and an increasing number of individuals are turning to online communities for mental health to search for information and support. Although these virtual platforms have the potential to provide emotional support and...

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Main Authors: Bizzotto, Nicole, Schulz, Peter Johannes, de Bruijn, Gert-Jan
Other Authors: Wee Kim Wee School of Communication and Information
Format: Journal Article
Language:English
Published: 2023
Subjects:
Online Access:https://hdl.handle.net/10356/171588
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author Bizzotto, Nicole
Schulz, Peter Johannes
de Bruijn, Gert-Jan
author2 Wee Kim Wee School of Communication and Information
author_facet Wee Kim Wee School of Communication and Information
Bizzotto, Nicole
Schulz, Peter Johannes
de Bruijn, Gert-Jan
author_sort Bizzotto, Nicole
collection NTU
description Background: Mental health problems are recognized as a pressing public health issue, and an increasing number of individuals are turning to online communities for mental health to search for information and support. Although these virtual platforms have the potential to provide emotional support and access to anecdotal experiences, they can also present users with large amounts of potentially inaccurate information. Despite the importance of this issue, limited research has been conducted, especially on the differences that might emerge due to the type of content moderation of online communities: peer-led or expert-led. Objective: We aim to fill this gap by examining the prevalence, the communicative context, and the persistence of mental health misinformation on Facebook online communities for mental health, with a focus on understanding the mechanisms that enable effective correction of inaccurate information and differences between expert-led and peer-led groups. Methods: We conducted a content analysis of 1534 statements (from 144 threads) in 2 Italian-speaking Facebook groups. Results: The study found that an alarming number of comments (26.1%) contained medically inaccurate information. Furthermore, nearly 60% of the threads presented at least one misinformation statement without any correction attempt. Moderators were more likely to correct misinformation than members; however, they were not immune to posting content containing misinformation, which was an unexpected finding. Discussions about aspects of treatment (including side effects or treatment interruption) significantly increased the probability of encountering misinformation. Additionally, the study found that misinformation produced in the comments of a thread, rather than as the first post, had a lower probability of being corrected, particularly in peer-led communities. Conclusions: The high prevalence of misinformation in online communities, particularly when left uncorrected, underscores the importance of conducting additional research to identify effective mechanisms to prevent its spread. This is especially important given the study’s finding that misinformation tends to be more prevalent around specific “loci” of discussion that, once identified, can serve as a starting point to develop strategies for preventing and correcting misinformation within them.
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spelling ntu-10356/1715882023-11-05T15:33:25Z The "loci" of misinformation and its correction in peer- and expert-led online communities for mental health: content analysis Bizzotto, Nicole Schulz, Peter Johannes de Bruijn, Gert-Jan Wee Kim Wee School of Communication and Information Social sciences::Communication Online Communities Social Media Background: Mental health problems are recognized as a pressing public health issue, and an increasing number of individuals are turning to online communities for mental health to search for information and support. Although these virtual platforms have the potential to provide emotional support and access to anecdotal experiences, they can also present users with large amounts of potentially inaccurate information. Despite the importance of this issue, limited research has been conducted, especially on the differences that might emerge due to the type of content moderation of online communities: peer-led or expert-led. Objective: We aim to fill this gap by examining the prevalence, the communicative context, and the persistence of mental health misinformation on Facebook online communities for mental health, with a focus on understanding the mechanisms that enable effective correction of inaccurate information and differences between expert-led and peer-led groups. Methods: We conducted a content analysis of 1534 statements (from 144 threads) in 2 Italian-speaking Facebook groups. Results: The study found that an alarming number of comments (26.1%) contained medically inaccurate information. Furthermore, nearly 60% of the threads presented at least one misinformation statement without any correction attempt. Moderators were more likely to correct misinformation than members; however, they were not immune to posting content containing misinformation, which was an unexpected finding. Discussions about aspects of treatment (including side effects or treatment interruption) significantly increased the probability of encountering misinformation. Additionally, the study found that misinformation produced in the comments of a thread, rather than as the first post, had a lower probability of being corrected, particularly in peer-led communities. Conclusions: The high prevalence of misinformation in online communities, particularly when left uncorrected, underscores the importance of conducting additional research to identify effective mechanisms to prevent its spread. This is especially important given the study’s finding that misinformation tends to be more prevalent around specific “loci” of discussion that, once identified, can serve as a starting point to develop strategies for preventing and correcting misinformation within them. Published version This work was funded by the Swiss National Science Foundation (grant 200396). 2023-10-31T07:36:00Z 2023-10-31T07:36:00Z 2023 Journal Article Bizzotto, N., Schulz, P. J. & de Bruijn, G. (2023). The "loci" of misinformation and its correction in peer- and expert-led online communities for mental health: content analysis. Journal of Medical Internet Research, 25(1), e44656-. https://dx.doi.org/10.2196/44656 1438-8871 https://hdl.handle.net/10356/171588 10.2196/44656 37721800 2-s2.0-85168520853 1 25 e44656 en Journal of Medical Internet Research © Nicole Bizzotto, Peter Johannes Schulz, Gert-Jan de Bruijn. Originally published in the Journal of Medical Internet Research (https://www.jmir.org), 18.09.2023. This is an open-access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work, first published in the Journal of Medical Internet Research, is properly cited. The complete bibliographic information, a link to the original publication on https://www.jmir.org/, as well as this copyright and license information must be included. application/pdf
spellingShingle Social sciences::Communication
Online Communities
Social Media
Bizzotto, Nicole
Schulz, Peter Johannes
de Bruijn, Gert-Jan
The "loci" of misinformation and its correction in peer- and expert-led online communities for mental health: content analysis
title The "loci" of misinformation and its correction in peer- and expert-led online communities for mental health: content analysis
title_full The "loci" of misinformation and its correction in peer- and expert-led online communities for mental health: content analysis
title_fullStr The "loci" of misinformation and its correction in peer- and expert-led online communities for mental health: content analysis
title_full_unstemmed The "loci" of misinformation and its correction in peer- and expert-led online communities for mental health: content analysis
title_short The "loci" of misinformation and its correction in peer- and expert-led online communities for mental health: content analysis
title_sort loci of misinformation and its correction in peer and expert led online communities for mental health content analysis
topic Social sciences::Communication
Online Communities
Social Media
url https://hdl.handle.net/10356/171588
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