Development and Pilot Evaluation of a Novel Dignity-Conserving End-of-Life (EoL) Care Model for Nursing Homes in Chinese Societies

Purpose of the Study: The provision of end-of-life (EoL) care in long-term-care settings remains largely underdeveloped in most Chinese societies, and nursing home residents often fail to obtain good care as they approach death. This paper systematically describes the development and implementation...

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Main Authors: Ho, Andy H. Y., Dai, Annie A. N., Lam, Shu-hang, Wong, Sandy W. P., Tsui, Amy L. M., Tang, Jervis C. S., Lou, Vivian W. Q.
Other Authors: School of Humanities and Social Sciences
Format: Journal Article
Language:English
Published: 2017
Subjects:
Online Access:https://hdl.handle.net/10356/80763
http://hdl.handle.net/10220/42217
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author Ho, Andy H. Y.
Dai, Annie A. N.
Lam, Shu-hang
Wong, Sandy W. P.
Tsui, Amy L. M.
Tang, Jervis C. S.
Lou, Vivian W. Q.
author2 School of Humanities and Social Sciences
author_facet School of Humanities and Social Sciences
Ho, Andy H. Y.
Dai, Annie A. N.
Lam, Shu-hang
Wong, Sandy W. P.
Tsui, Amy L. M.
Tang, Jervis C. S.
Lou, Vivian W. Q.
author_sort Ho, Andy H. Y.
collection NTU
description Purpose of the Study: The provision of end-of-life (EoL) care in long-term-care settings remains largely underdeveloped in most Chinese societies, and nursing home residents often fail to obtain good care as they approach death. This paper systematically describes the development and implementation mechanisms of a novel Dignity-Conserving EoL Care model that has been successfully adopted by three nursing homes in Hong Kong and presents preliminary evidence of its effectiveness on enhancing dignity and quality of life (QoL) of terminally ill residents. Design and Methods: Nine terminally ill nursing home residents completed the McGill Quality of Life Questionnaire and the Nursing Facilities Quality of Life Questionnaire at baseline and 6 months post-EoL program enrollment. Wilcoxon signed rank test was used to detect significance changes in each QoL domains across time. Results: Although significant deterioration was recorded for physical QoL, significant improvement was observed for social QoL. Moreover, a clear trend toward significant improvements was identified for the QoL domains of individuality and relationships. Implications: A holistic and compassionate caring environment, together with the core principles of family-centered care, interagency and interdisciplinary teamwork, as well as cultural-specific psycho-socio-spiritual support, are all essential elements for optimizing QoL and promoting death with dignity for nursing home residents facing morality. This study provides a useful framework to facilitate the future development of EoL care in long-term-care settings in the Chinese context.
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spelling ntu-10356/807632020-03-07T12:10:37Z Development and Pilot Evaluation of a Novel Dignity-Conserving End-of-Life (EoL) Care Model for Nursing Homes in Chinese Societies Ho, Andy H. Y. Dai, Annie A. N. Lam, Shu-hang Wong, Sandy W. P. Tsui, Amy L. M. Tang, Jervis C. S. Lou, Vivian W. Q. School of Humanities and Social Sciences End-of-life care Dignity Purpose of the Study: The provision of end-of-life (EoL) care in long-term-care settings remains largely underdeveloped in most Chinese societies, and nursing home residents often fail to obtain good care as they approach death. This paper systematically describes the development and implementation mechanisms of a novel Dignity-Conserving EoL Care model that has been successfully adopted by three nursing homes in Hong Kong and presents preliminary evidence of its effectiveness on enhancing dignity and quality of life (QoL) of terminally ill residents. Design and Methods: Nine terminally ill nursing home residents completed the McGill Quality of Life Questionnaire and the Nursing Facilities Quality of Life Questionnaire at baseline and 6 months post-EoL program enrollment. Wilcoxon signed rank test was used to detect significance changes in each QoL domains across time. Results: Although significant deterioration was recorded for physical QoL, significant improvement was observed for social QoL. Moreover, a clear trend toward significant improvements was identified for the QoL domains of individuality and relationships. Implications: A holistic and compassionate caring environment, together with the core principles of family-centered care, interagency and interdisciplinary teamwork, as well as cultural-specific psycho-socio-spiritual support, are all essential elements for optimizing QoL and promoting death with dignity for nursing home residents facing morality. This study provides a useful framework to facilitate the future development of EoL care in long-term-care settings in the Chinese context. Accepted version 2017-03-31T05:13:59Z 2019-12-06T13:58:24Z 2017-03-31T05:13:59Z 2019-12-06T13:58:24Z 2016 Journal Article Ho, A. H. Y., Dai, A. A. N., Lam, S.-h., Wong, S. W. P., Tsui, A. L. M., Tang, J. C. S., et al. (2016). Development and Pilot Evaluation of a Novel Dignity-Conserving End-of-Life (EoL) Care Model for Nursing Homes in Chinese Societies. The Gerontologist, 56(3), 578-589. 0016-9013 https://hdl.handle.net/10356/80763 http://hdl.handle.net/10220/42217 10.1093/geront/gnv037 en The Gerontologist © 2016 The Author(s). This is the author created version of a work that has been peer reviewed and accepted for publication in The Gerontologist, published by Oxford University Press on behalf of The Gerontological Society of America on behalf of The Author(s). It incorporates referee’s comments but changes resulting from the publishing process, such as copyediting, structural formatting, may not be reflected in this document.  The published version is available at: [http://dx.doi.org/10.1093/geront/gnv037]. 32 p. application/pdf
spellingShingle End-of-life care
Dignity
Ho, Andy H. Y.
Dai, Annie A. N.
Lam, Shu-hang
Wong, Sandy W. P.
Tsui, Amy L. M.
Tang, Jervis C. S.
Lou, Vivian W. Q.
Development and Pilot Evaluation of a Novel Dignity-Conserving End-of-Life (EoL) Care Model for Nursing Homes in Chinese Societies
title Development and Pilot Evaluation of a Novel Dignity-Conserving End-of-Life (EoL) Care Model for Nursing Homes in Chinese Societies
title_full Development and Pilot Evaluation of a Novel Dignity-Conserving End-of-Life (EoL) Care Model for Nursing Homes in Chinese Societies
title_fullStr Development and Pilot Evaluation of a Novel Dignity-Conserving End-of-Life (EoL) Care Model for Nursing Homes in Chinese Societies
title_full_unstemmed Development and Pilot Evaluation of a Novel Dignity-Conserving End-of-Life (EoL) Care Model for Nursing Homes in Chinese Societies
title_short Development and Pilot Evaluation of a Novel Dignity-Conserving End-of-Life (EoL) Care Model for Nursing Homes in Chinese Societies
title_sort development and pilot evaluation of a novel dignity conserving end of life eol care model for nursing homes in chinese societies
topic End-of-life care
Dignity
url https://hdl.handle.net/10356/80763
http://hdl.handle.net/10220/42217
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