Palliative Care Education to Enhance Informal Caregivers’ Skills in Caring for Patients with Cancer: A Scoping Review
BACKGROUND: Living with cancer causes stress for both patients and caregivers. Empowering family caregivers is critical in palliative care. It is well known that a lack of proper knowledge and training of informal caregivers is a barrier to palliative care provision at home. AIM: This scoping review...
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| Format: | Article |
| Language: | English |
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Scientific Foundation SPIROSKI
2022
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| Online Access: | https://repository.ugm.ac.id/283940/1/oamjms-10g-069.pdf |
| _version_ | 1826050716058255360 |
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| author | Effendy, Christantie Kurianto, Endar Darmayanti, Anisa Rayu Ike Noviana, Uki Nurjannah, Intansari |
| author_facet | Effendy, Christantie Kurianto, Endar Darmayanti, Anisa Rayu Ike Noviana, Uki Nurjannah, Intansari |
| author_sort | Effendy, Christantie |
| collection | UGM |
| description | BACKGROUND: Living with cancer causes stress for both patients and caregivers. Empowering family caregivers is critical in palliative care. It is well known that a lack of proper knowledge and training of informal caregivers is a barrier to palliative care provision at home. AIM: This scoping review aimed to explore palliative care education to enhance informal caregiver skills in caring for a cancer patient. METHODS: A scoping literature review was conducted with systematic searches in multiple databases – PubMed, Cochrane, PsycINFO, and SCOPUS (2000–2021). Studies were selected based on programs content and its impact evaluation. RESULTS: The remaining 181 citations were examined at full-text level; 173 studies did not meet inclusion criteria, yielding eight included papers. Four papers focused on palliative care educational programs for family caregivers, and four papers included patients and caregivers. There was a diverse variation in the mode of delivery and duration of educational input. The programs offered an insight into the main elements of working with individuals in a palliative care bundle. Most studies reported participants improved their knowledge, self-efficacy, and competency and prepared for their roles. CONCLUSION: The findings show the need for family caregivers for more regular and reliable palliative education programs. Randomized controlled trials with rigorous randomization processes, more significant sample numbers and more appropriate control groups focused explicitly on caregiver education may improve the evidence. © 2022 Christantie Effendy, Endar Kurianto, Anisa Rayu Ike Darmayanti, Uki Noviana, Intansari Nurjannah. |
| first_indexed | 2024-03-14T00:08:59Z |
| format | Article |
| id | oai:generic.eprints.org:283940 |
| institution | Universiti Gadjah Mada |
| language | English |
| last_indexed | 2024-03-14T00:08:59Z |
| publishDate | 2022 |
| publisher | Scientific Foundation SPIROSKI |
| record_format | dspace |
| spelling | oai:generic.eprints.org:2839402023-11-24T07:40:33Z https://repository.ugm.ac.id/283940/ Palliative Care Education to Enhance Informal Caregivers’ Skills in Caring for Patients with Cancer: A Scoping Review Effendy, Christantie Kurianto, Endar Darmayanti, Anisa Rayu Ike Noviana, Uki Nurjannah, Intansari Pathology Cancer Diagnosis Cancer Therapy (excl. Chemotherapy and Radiation Therapy) BACKGROUND: Living with cancer causes stress for both patients and caregivers. Empowering family caregivers is critical in palliative care. It is well known that a lack of proper knowledge and training of informal caregivers is a barrier to palliative care provision at home. AIM: This scoping review aimed to explore palliative care education to enhance informal caregiver skills in caring for a cancer patient. METHODS: A scoping literature review was conducted with systematic searches in multiple databases – PubMed, Cochrane, PsycINFO, and SCOPUS (2000–2021). Studies were selected based on programs content and its impact evaluation. RESULTS: The remaining 181 citations were examined at full-text level; 173 studies did not meet inclusion criteria, yielding eight included papers. Four papers focused on palliative care educational programs for family caregivers, and four papers included patients and caregivers. There was a diverse variation in the mode of delivery and duration of educational input. The programs offered an insight into the main elements of working with individuals in a palliative care bundle. Most studies reported participants improved their knowledge, self-efficacy, and competency and prepared for their roles. CONCLUSION: The findings show the need for family caregivers for more regular and reliable palliative education programs. Randomized controlled trials with rigorous randomization processes, more significant sample numbers and more appropriate control groups focused explicitly on caregiver education may improve the evidence. © 2022 Christantie Effendy, Endar Kurianto, Anisa Rayu Ike Darmayanti, Uki Noviana, Intansari Nurjannah. Scientific Foundation SPIROSKI 2022 Article PeerReviewed application/pdf en https://repository.ugm.ac.id/283940/1/oamjms-10g-069.pdf Effendy, Christantie and Kurianto, Endar and Darmayanti, Anisa Rayu Ike and Noviana, Uki and Nurjannah, Intansari (2022) Palliative Care Education to Enhance Informal Caregivers’ Skills in Caring for Patients with Cancer: A Scoping Review. Open Access Macedonian Journal of Medical Sciences, 10. 69 -75. https://www.scopus.com/inward/record.uri?eid=2-s2.0-85123898823&doi=10.3889%2foamjms.2022.7796&partnerID=40&md5=189f5c9f3648383484393805ee35d71f 10.3889/oamjms.2022.7796 |
| spellingShingle | Pathology Cancer Diagnosis Cancer Therapy (excl. Chemotherapy and Radiation Therapy) Effendy, Christantie Kurianto, Endar Darmayanti, Anisa Rayu Ike Noviana, Uki Nurjannah, Intansari Palliative Care Education to Enhance Informal Caregivers’ Skills in Caring for Patients with Cancer: A Scoping Review |
| title | Palliative Care Education to Enhance Informal Caregivers’ Skills in Caring for Patients with Cancer: A Scoping Review |
| title_full | Palliative Care Education to Enhance Informal Caregivers’ Skills in Caring for Patients with Cancer: A Scoping Review |
| title_fullStr | Palliative Care Education to Enhance Informal Caregivers’ Skills in Caring for Patients with Cancer: A Scoping Review |
| title_full_unstemmed | Palliative Care Education to Enhance Informal Caregivers’ Skills in Caring for Patients with Cancer: A Scoping Review |
| title_short | Palliative Care Education to Enhance Informal Caregivers’ Skills in Caring for Patients with Cancer: A Scoping Review |
| title_sort | palliative care education to enhance informal caregivers skills in caring for patients with cancer a scoping review |
| topic | Pathology Cancer Diagnosis Cancer Therapy (excl. Chemotherapy and Radiation Therapy) |
| url | https://repository.ugm.ac.id/283940/1/oamjms-10g-069.pdf |
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