Roles and Problems of Stroke Caregivers: A Qualitative Study in Yogyakarta, Indonesia
Background: Caregivers play a central role in post-stroke patients' care. However, the role of and problems managed by caregivers have not been widely studied, particularly in Indonesia. This study aims to explore the roles and problems of caregivers in post- stroke patients’ care. Method: Thi...
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| Format: | Article |
| Language: | English |
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F1000 Research Ltd
2022
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| Online Access: | https://repository.ugm.ac.id/284011/1/178.pdf |
| _version_ | 1826050730412212224 |
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| author | Vidyanti, Amelia Nur Muhrodji, Paryono Wicaksono, Hendrawan Dian Agung Satiti, Sekar Trisnantoro, Laksono Setyopranoto, Ismail |
| author_facet | Vidyanti, Amelia Nur Muhrodji, Paryono Wicaksono, Hendrawan Dian Agung Satiti, Sekar Trisnantoro, Laksono Setyopranoto, Ismail |
| author_sort | Vidyanti, Amelia Nur |
| collection | UGM |
| description | Background: Caregivers play a central role in post-stroke patients' care. However, the role of and problems managed by caregivers have not been widely studied, particularly in Indonesia. This study aims to explore the roles and problems of caregivers in post- stroke patients’ care.
Method: This was a qualitative study. Seven caregivers of post-stroke patients from the homecare clinic of Dr Sardjito General Hospital were purposely selected during January 2017 to June 2018. Focus group discussions were conducted to explore the roles and problems of caregiving.
Results: Themes related to caregivers’ roles were: connecting patients with medical personnel and other family members, maintaining patients’ health conditions by fulfilling basic needs and assisting rehabilitation, as well as maintaining patients’ psychological conditions by encouraging conversation, telling jokes, or recreation. On the other hand, themes related to caregivers’ problems were: lack of knowledge caused by education inadequacy, underappreciated and unconcerned family, suboptimal service including limited physiotherapy and pharmacy resource, unthorough administration, lack of communication, physical limitations, and burnout, as well as uncooperative patients.
Conclusions: Caregivers play essential roles as communicators and help to maintain patient's health conditions. Common problems are related to a lack of knowledge about strokes and a lack of attention from family. Further research to study the effects of these findings on the quality of life of both patient and their caregiver, as well as how to handle the caregiver issues should be investigated. |
| first_indexed | 2024-03-14T00:09:11Z |
| format | Article |
| id | oai:generic.eprints.org:284011 |
| institution | Universiti Gadjah Mada |
| language | English |
| last_indexed | 2024-03-14T00:09:11Z |
| publishDate | 2022 |
| publisher | F1000 Research Ltd |
| record_format | dspace |
| spelling | oai:generic.eprints.org:2840112023-11-27T04:24:42Z https://repository.ugm.ac.id/284011/ Roles and Problems of Stroke Caregivers: A Qualitative Study in Yogyakarta, Indonesia Vidyanti, Amelia Nur Muhrodji, Paryono Wicaksono, Hendrawan Dian Agung Satiti, Sekar Trisnantoro, Laksono Setyopranoto, Ismail Neurology and Neuromuscular Diseases Background: Caregivers play a central role in post-stroke patients' care. However, the role of and problems managed by caregivers have not been widely studied, particularly in Indonesia. This study aims to explore the roles and problems of caregivers in post- stroke patients’ care. Method: This was a qualitative study. Seven caregivers of post-stroke patients from the homecare clinic of Dr Sardjito General Hospital were purposely selected during January 2017 to June 2018. Focus group discussions were conducted to explore the roles and problems of caregiving. Results: Themes related to caregivers’ roles were: connecting patients with medical personnel and other family members, maintaining patients’ health conditions by fulfilling basic needs and assisting rehabilitation, as well as maintaining patients’ psychological conditions by encouraging conversation, telling jokes, or recreation. On the other hand, themes related to caregivers’ problems were: lack of knowledge caused by education inadequacy, underappreciated and unconcerned family, suboptimal service including limited physiotherapy and pharmacy resource, unthorough administration, lack of communication, physical limitations, and burnout, as well as uncooperative patients. Conclusions: Caregivers play essential roles as communicators and help to maintain patient's health conditions. Common problems are related to a lack of knowledge about strokes and a lack of attention from family. Further research to study the effects of these findings on the quality of life of both patient and their caregiver, as well as how to handle the caregiver issues should be investigated. F1000 Research Ltd 2022-07-21 Article PeerReviewed application/pdf en https://repository.ugm.ac.id/284011/1/178.pdf Vidyanti, Amelia Nur and Muhrodji, Paryono and Wicaksono, Hendrawan Dian Agung and Satiti, Sekar and Trisnantoro, Laksono and Setyopranoto, Ismail (2022) Roles and Problems of Stroke Caregivers: A Qualitative Study in Yogyakarta, Indonesia. F1000Research, 10. p. 380. ISSN 20461402 https://f1000research.com/articles/10-380/v2 10.12688/f1000research.52135.2 |
| spellingShingle | Neurology and Neuromuscular Diseases Vidyanti, Amelia Nur Muhrodji, Paryono Wicaksono, Hendrawan Dian Agung Satiti, Sekar Trisnantoro, Laksono Setyopranoto, Ismail Roles and Problems of Stroke Caregivers: A Qualitative Study in Yogyakarta, Indonesia |
| title | Roles and Problems of Stroke Caregivers: A Qualitative Study in Yogyakarta, Indonesia |
| title_full | Roles and Problems of Stroke Caregivers: A Qualitative Study in Yogyakarta, Indonesia |
| title_fullStr | Roles and Problems of Stroke Caregivers: A Qualitative Study in Yogyakarta, Indonesia |
| title_full_unstemmed | Roles and Problems of Stroke Caregivers: A Qualitative Study in Yogyakarta, Indonesia |
| title_short | Roles and Problems of Stroke Caregivers: A Qualitative Study in Yogyakarta, Indonesia |
| title_sort | roles and problems of stroke caregivers a qualitative study in yogyakarta indonesia |
| topic | Neurology and Neuromuscular Diseases |
| url | https://repository.ugm.ac.id/284011/1/178.pdf |
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