Building a data sharing model for global genomic research.

Building a data sharing model for global genomic research.

Data sharing models designed to facilitate global business provide insights for improving transborder genomic data sharing. We argue that a flexible, externally endorsed, multilateral arrangement, combined with an objective third-party assurance mechanism, can effectively balance privacy with the ne...

Bibliográfalaš dieđut
Váldodahkkit:	Kosseim, P, Dove, E, Baggaley, C, Meslin, E, Cate, F, Kaye, J, Harris, JR, Knoppers, B
Materiálatiipa:	Journal article
Giella:	English
Almmustuhtton:	2014

Geahča maid

Towards a data sharing Code of Conduct for international genomic research.
Dahkki: Knoppers, B, et al.
Almmustuhtton: (2011)

Data sharing in the post-genomic world: the experience of the International Cancer Genome Consortium (ICGC) Data Access Compliance Office (DACO).
Dahkki: Yann Joly, et al.
Almmustuhtton: (2012-01-01)

The tension between data sharing and the protection of privacy in genomics research.
Dahkki: Kaye, J
Almmustuhtton: (2012)

Data sharing in large research consortia: experiences and recommendations from ENGAGE.
Dahkki: Budin-Ljøsne, I, et al.
Almmustuhtton: (2014)

From the principles of genomic data sharing to the practices of data access committees
Dahkki: Mahsa Shabani, et al.
Almmustuhtton: (2015-03-01)

Research priorities. ELSI 2.0 for genomics and society.
Dahkki: Kaye, J, et al.
Almmustuhtton: (2012)

The politics of privacy, confidentiality, and ethics: Opening research methods: Data sharing in genomics-is it lawful?
Dahkki: Kaye, J, et al.
Almmustuhtton: (2010)

Bridging the European Data Sharing Divide in Genomic Science
Dahkki: Fruzsina Molnár-Gábor, et al.
Almmustuhtton: (2022-10-01)

Assessing the privacy risks of data sharing in genomics.
Dahkki: Heeney, C, et al.
Almmustuhtton: (2011)

Research ethics recommendations for whole-genome research: Consensus statement
Dahkki: Caulfield, T, et al.
Almmustuhtton: (2008)

Research ethics recommendations for whole-genome research: consensus statement
Dahkki: Caulfield, T, et al.
Almmustuhtton: (2008)

Data sharing in genomics--re-shaping scientific practice.
Dahkki: Kaye, J, et al.
Almmustuhtton: (2009)

From genomic databases to translation: A call to action
Dahkki: Knoppers, B, et al.
Almmustuhtton: (2011)

From genomic databases to translation: a call to action.
Dahkki: Knoppers, B, et al.
Almmustuhtton: (2011)

Including all voices in international data-sharing governance.
Dahkki: Kaye, J, et al.
Almmustuhtton: (2018)

Establishing a shared research data service for UK universities
Dahkki: John Kaye, et al.
Almmustuhtton: (2017-03-01)

Sharing genomic research data: launch of an international ethics study
Dahkki: Middleton, A, et al.
Almmustuhtton: (2012)

Clinical trial data sharing: here’s the challenge
Dahkki: Carrol Gamble, et al.
Almmustuhtton: (2019-08-01)

Emerging issues in paediatric health research consent forms in Canada: working towards best practices
Dahkki: Dove Edward S, et al.
Almmustuhtton: (2013-01-01)

A Strategy for Archiving Government Data to Meet the Needs of the Research Community
Dahkki: Jake Knoppers
Almmustuhtton: (1981-01-01)

Whole genome sequencing of foodborne pathogens and global data sharing development
Dahkki: Xiaoran LI, et al.
Almmustuhtton: (2020-05-01)

Sharing and Safeguarding Pediatric Data
Dahkki: Dimitri Patrinos, et al.
Almmustuhtton: (2022-06-01)

Shared data science infrastructure for genomics data
Dahkki: Hamid Bagheri, et al.
Almmustuhtton: (2019-08-01)

An international policy on returning genomic research results
Dahkki: Anna C. F. Lewis, et al.
Almmustuhtton: (2021-07-01)

Global Aspects of Emerging and Potential Zoonoses: a WHO Perspective
Dahkki: F.-X. Meslin
Almmustuhtton: (1997-06-01)

Computational tools for genomic data de-identification: facilitating data protection law compliance
Dahkki: Alexander Bernier, et al.
Almmustuhtton: (2021-11-01)

No expectation to share incidental findings in genomic research.
Dahkki: Middleton, A, et al.
Almmustuhtton: (2015)

Optimal capacity sharing for global genomic surveillance
Dahkki: Zsombor Z. Méder, et al.
Almmustuhtton: (2023-06-01)

Research ethics recommendations for whole-genome research: consensus statement.
Dahkki: Timothy Caulfield, et al.
Almmustuhtton: (2008-03-01)

Advancing global health research through digital technology and sharing data.
Dahkki: Lang, T
Almmustuhtton: (2011)

Data sharing policy design for consortia: challenges for sustainability.
Dahkki: Kaye, J, et al.
Almmustuhtton: (2014)

Data sharing ethics toolkit: The Human Cell Atlas
Dahkki: Emily Kirby, et al.
Almmustuhtton: (2024-11-01)

GA4GH: International policies and standards for data sharing across genomic research and healthcare
Dahkki: Heidi L. Rehm, et al.
Almmustuhtton: (2021-11-01)

A call to action to scale up research and clinical genomic data sharing
Dahkki: Stark, Z, et al.
Almmustuhtton: (2024)

Sharing genomic data for health research: institutional trust and trustworthiness, and informed consent
Dahkki: Graham, MS
Almmustuhtton: (2022)

Upgrading Data Sharing Policies to Maximize Utility and Impact in Genetics and Genomics Research
Dahkki: Yuming Hu, et al.
Almmustuhtton: (2024-12-01)

Editorial: Toward a better understanding and application of benefit sharing in genomic and global health research
Dahkki: Aminu Yakubu, et al.
Almmustuhtton: (2023-09-01)

Including all voices in international data-sharing governance
Dahkki: Jane Kaye, et al.
Almmustuhtton: (2018-03-01)

Mind the Gap: Global Data Sharing
Dahkki: Susan Noble, et al.
Almmustuhtton: (2012-01-01)

Prepublication data sharing.
Dahkki: Birney, E, et al.
Almmustuhtton: (2009)