Best practices for ethical sharing of individual-level health research data from low- and middle-income settings
Sharing individual-level data from clinical and public health research is increasingly being seen as a core requirement for effective and efficient biomedical research. This article discusses the results of a systematic review and multisite qualitative study of key stakeholders' perspectives on...
| Main Authors: | , , , , , , , , , , , |
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| Format: | Journal article |
| Language: | English |
| Published: |
SAGE Publications
2015
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| _version_ | 1797050451787513856 |
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| author | Bull, S Cheah, P Denny, S Jao, I Marsh, V Merson, L Shah More, N Nhan, L Osrin, D Tangseefa, D Wassenaar, D Parker, M |
| author_facet | Bull, S Cheah, P Denny, S Jao, I Marsh, V Merson, L Shah More, N Nhan, L Osrin, D Tangseefa, D Wassenaar, D Parker, M |
| author_sort | Bull, S |
| collection | OXFORD |
| description | Sharing individual-level data from clinical and public health research is increasingly being seen as a core requirement for effective and efficient biomedical research. This article discusses the results of a systematic review and multisite qualitative study of key stakeholders' perspectives on best practices in ethical data sharing in low- and middle-income settings. Our research suggests that for data sharing to be effective and sustainable, multiple social and ethical requirements need to be met. An effective model of data sharing will be one in which considered judgments will need to be made about how best to achieve scientific progress, minimize risks of harm, promote fairness and reciprocity, and build and sustain trust. |
| first_indexed | 2024-03-06T18:05:21Z |
| format | Journal article |
| id | oxford-uuid:01405b95-07ca-40dc-959d-04732fc9661d |
| institution | University of Oxford |
| language | English |
| last_indexed | 2024-03-06T18:05:21Z |
| publishDate | 2015 |
| publisher | SAGE Publications |
| record_format | dspace |
| spelling | oxford-uuid:01405b95-07ca-40dc-959d-04732fc9661d2022-03-26T08:33:57ZBest practices for ethical sharing of individual-level health research data from low- and middle-income settingsJournal articlehttp://purl.org/coar/resource_type/c_dcae04bcuuid:01405b95-07ca-40dc-959d-04732fc9661dEnglishSymplectic Elements at OxfordSAGE Publications2015Bull, SCheah, PDenny, SJao, IMarsh, VMerson, LShah More, NNhan, LOsrin, DTangseefa, DWassenaar, DParker, MSharing individual-level data from clinical and public health research is increasingly being seen as a core requirement for effective and efficient biomedical research. This article discusses the results of a systematic review and multisite qualitative study of key stakeholders' perspectives on best practices in ethical data sharing in low- and middle-income settings. Our research suggests that for data sharing to be effective and sustainable, multiple social and ethical requirements need to be met. An effective model of data sharing will be one in which considered judgments will need to be made about how best to achieve scientific progress, minimize risks of harm, promote fairness and reciprocity, and build and sustain trust. |
| spellingShingle | Bull, S Cheah, P Denny, S Jao, I Marsh, V Merson, L Shah More, N Nhan, L Osrin, D Tangseefa, D Wassenaar, D Parker, M Best practices for ethical sharing of individual-level health research data from low- and middle-income settings |
| title | Best practices for ethical sharing of individual-level health research data from low- and middle-income settings |
| title_full | Best practices for ethical sharing of individual-level health research data from low- and middle-income settings |
| title_fullStr | Best practices for ethical sharing of individual-level health research data from low- and middle-income settings |
| title_full_unstemmed | Best practices for ethical sharing of individual-level health research data from low- and middle-income settings |
| title_short | Best practices for ethical sharing of individual-level health research data from low- and middle-income settings |
| title_sort | best practices for ethical sharing of individual level health research data from low and middle income settings |
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