Best practices for ethical sharing of individual-level health research data from low- and middle-income settings

Best practices for ethical sharing of individual-level health research data from low- and middle-income settings

Sharing individual-level data from clinical and public health research is increasingly being seen as a core requirement for effective and efficient biomedical research. This article discusses the results of a systematic review and multisite qualitative study of key stakeholders' perspectives on...

Full description

Bibliographic Details
Main Authors:	Bull, S, Cheah, P, Denny, S, Jao, I, Marsh, V, Merson, L, Shah More, N, Nhan, L, Osrin, D, Tangseefa, D, Wassenaar, D, Parker, M
Format:	Journal article
Language:	English
Published:	SAGE Publications 2015

Similar Items

Trust, respect, and reciprocity: Informing culturally appropriate data-sharing practice in Vietnam
by: Merson, L, et al.
Published: (2015)

Interventions to address antimicrobial resistance: an ethical analysis of key tensions and how they apply in low-income and middle-income countries
by: Pokharel, S, et al.
Published: (2024)

Interventions to address antimicrobial resistance: an ethical analysis of key tensions and how they apply in low- income and middle-income countries
by: Sunil Pokharel, et al.
Published: (2024-04-01)

What constitutes equitable data sharing in global health research? A scoping review of the literature on low-income and middle-income country stakeholders’ perspectives
by: Bridget Pratt, et al.
Published: (2023-03-01)

Best Practices of Blood Cultures in Low- and Middle-Income Countries
by: Sien Ombelet, et al.
Published: (2019-06-01)

Psychiatric genomics: Ethical implications for public health in lower- and middle-income countries
by: de Vries, J, et al.
Published: (2017)

Are WHO “best buys” for non-communicable diseases effective in low-income and lower-middle-income countries? A systematic review
by: Luke N Allen, MPH, et al.
Published: (2017-04-01)

Best practices in scaling digital health in low and middle income countries
by: Alain B. Labrique, et al.
Published: (2018-11-01)

Integrating ethics, health policy and health systems in low- and middle-income countries: case studies from Malaysia and Pakistan
by: Adnan A Hyder, et al.
Published: (2008-08-01)

Hidden concerns of sharing research data by low/middle-income country scientists
by: Bezuidenhout, L, et al.
Published: (2018)

Sharing individual-level health research data: Experiences, challenges and a research agenda.
by: Cheah, P, et al.
Published: (2017)

Integrating ethics, health policy and health systems in low and middle income countries : case studies from Malaysia and Pakistan.
by: Hyder, Adnan A, et al.
Published: (2008)

Community engagement for the rapid elimination of malaria: the case of Kayin State, Myanmar.
by: Kajeechiwa, L, et al.
Published: (2017)

Are WHO “best buys” for non-communicable diseases effective in low-income and lower-middle-income countries? A systematic review
by: Allen, L, et al.
Published: (2017)

Ethical Challenges Faced by Development Researchers in Low and Middle-Income Countries
by: Ayah Nayfeh, et al.
Published: (2018-02-01)

The ethics of mental health survey research in low- and middle- income countries
by: S. M. Murray, et al.
Published: (2016-01-01)

Social and ethical implications of psychiatric classification for low- and middle-income countries
by: Jonathan K Burns
Published: (2014-08-01)

Growth of Global Health Spending Share in Low and Middle Income Countries
by: Mihajlo (Michael) Jakovljevic, et al.
Published: (2016-02-01)

Implementation of Best-Evidence Osteoarthritis Care: Perspectives on Challenges for, and Opportunities From, Low and Middle-Income Countries
by: Jillian P. Eyles, et al.
Published: (2022-01-01)

Ethical considerations around volunteer payments in a malaria human infection study in Kenya: an embedded empirical ethics study
by: Chi, PC, et al.
Published: (2022)

Ethical Issues in Long-term Care in Low-, Middle- and High-Income Countries During the COVID-19 Pandemic
by: Preet Gandhi MSc, et al.
Published: (2023-01-01)

Hidden concerns of sharing research data by low/middle-income country scientists
by: Louise Bezuidenhout, et al.
Published: (2018-01-01)

Progressive Realisation of Universal Health Coverage in Low- and Middle-Income Countries: Beyond the “Best Buys”
by: Melanie Y. Bertram, et al.
Published: (2021-11-01)

Commentary 1: sharing and responding to day-to-day ethics challenges in health research
by: Molyneux, S, et al.
Published: (2019)

Pediatric Surgery and Anesthesia in Low-Middle Income Countries: Current Situation and Ethical Challenges
by: Rebecca Pulvirenti, et al.
Published: (2022-07-01)

Ethics is the best professional policy
by: Aracy Pereira Silveira Balbani

Achieving affordable critical care in low-income and middle-income countries
by: Turner, H, et al.
Published: (2019)

Research ethics committees in a tight spot: Approving consent strategies for child research that are prima facie illegal but are ethical in terms of national guidelines
by: P Singh, et al.
Published: (2018-10-01)

Reducing the impact of emerging infections through data sharing
by: Merson, L, et al.
Published: (2016)

Evaluation of research on interventions aligned to WHO ‘Best Buys’ for NCDs in low-income and lower-middle-income countries: a systematic review from 1990 to 2015
by: Allen, L, et al.
Published: (2018)

Electronic data collection, management and analysis tools used for outbreak response in low- and middle-income countries: a systematic review and stakeholder survey
by: Keating, P, et al.
Published: (2021)

Thrombotic and hemorrhagic complications of COVID-19 in adults hospitalized in high-income countries compared with those in adults hospitalized in low-and middle-income countries in an international registry
by: Griffee, MJ, et al.
Published: (2023)

Imaging and cancer of the cervix in low- and middle-income countries
by: J. Olpin, et al.
Published: (2018-08-01)

The Global Cohort of Doctoral Students: Building Shared Global Health Research Capacity in High- Income and Low- and Middle-Income Countries
by: Semira Abdelmenan, et al.
Published: (2021-01-01)

Consent and assent in paediatric research in low-income settings.
by: Cheah, P, et al.
Published: (2014)

Consent and assent in paediatric research in low-income settings
by: Cheah, P, et al.
Published: (2014)

Ethical issues in cluster randomized trials conducted in low- and middle-income countries: an analysis of two case studies
by: Augustine T. Choko, et al.
Published: (2020-04-01)

Task sharing with non-physician health-care workers for management of blood pressure in low-income and middle-income countries: a systematic review and meta-analysis
by: T N Anand, MPH, et al.
Published: (2019-06-01)

Cost Analysis of Operating an Anatomic Pathology Laboratory in a Middle-Income Country
by: Cheah, Phaik Leng, et al.
Published: (2017)

Expanding Architectures of Sharing: Public-Housing Authority-Supported Middle-Income Limited-Equity Cooperatives
by: Moyer, Christopher Masahiko
Published: (2022)