GOVERNING GENETIC DATABASES: COLLECTION, STORAGE AND USE.
This paper provides an introduction to a collection of five papers, published as a special symposium journal issue, under the title: "Governing Genetic Databases: Collection, Storage and Use". It begins by setting the scene, to provide a backdrop and context for the papers. It describes th...
| Main Authors: | , |
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| Format: | Journal article |
| Language: | English |
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2007
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| _version_ | 1797051697574445056 |
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| author | Gibbons, S Kaye, J |
| author_facet | Gibbons, S Kaye, J |
| author_sort | Gibbons, S |
| collection | OXFORD |
| description | This paper provides an introduction to a collection of five papers, published as a special symposium journal issue, under the title: "Governing Genetic Databases: Collection, Storage and Use". It begins by setting the scene, to provide a backdrop and context for the papers. It describes the evolving scientific landscape around genetic databases and genomic research, particularly within the biomedical and criminal forensic investigation fields. It notes the lack of any clear, coherent or coordinated legal governance regime, either at the national or international level. It then identifies and reflects on key cross-cutting issues and themes that emerge from the five papers, in particular: terminology and definitions; consent; special concerns around population genetic databases (biobanks) and forensic databases; international harmonisation; data protection; data access; boundary-setting; governance; and issues around balancing individual interests against public good values. |
| first_indexed | 2024-03-06T18:23:13Z |
| format | Journal article |
| id | oxford-uuid:070698a0-36d2-4c84-b194-4dee47a8c48c |
| institution | University of Oxford |
| language | English |
| last_indexed | 2024-03-06T18:23:13Z |
| publishDate | 2007 |
| record_format | dspace |
| spelling | oxford-uuid:070698a0-36d2-4c84-b194-4dee47a8c48c2022-03-26T09:05:29ZGOVERNING GENETIC DATABASES: COLLECTION, STORAGE AND USE.Journal articlehttp://purl.org/coar/resource_type/c_dcae04bcuuid:070698a0-36d2-4c84-b194-4dee47a8c48cEnglishSymplectic Elements at Oxford2007Gibbons, SKaye, JThis paper provides an introduction to a collection of five papers, published as a special symposium journal issue, under the title: "Governing Genetic Databases: Collection, Storage and Use". It begins by setting the scene, to provide a backdrop and context for the papers. It describes the evolving scientific landscape around genetic databases and genomic research, particularly within the biomedical and criminal forensic investigation fields. It notes the lack of any clear, coherent or coordinated legal governance regime, either at the national or international level. It then identifies and reflects on key cross-cutting issues and themes that emerge from the five papers, in particular: terminology and definitions; consent; special concerns around population genetic databases (biobanks) and forensic databases; international harmonisation; data protection; data access; boundary-setting; governance; and issues around balancing individual interests against public good values. |
| spellingShingle | Gibbons, S Kaye, J GOVERNING GENETIC DATABASES: COLLECTION, STORAGE AND USE. |
| title | GOVERNING GENETIC DATABASES: COLLECTION, STORAGE AND USE. |
| title_full | GOVERNING GENETIC DATABASES: COLLECTION, STORAGE AND USE. |
| title_fullStr | GOVERNING GENETIC DATABASES: COLLECTION, STORAGE AND USE. |
| title_full_unstemmed | GOVERNING GENETIC DATABASES: COLLECTION, STORAGE AND USE. |
| title_short | GOVERNING GENETIC DATABASES: COLLECTION, STORAGE AND USE. |
| title_sort | governing genetic databases collection storage and use |
| work_keys_str_mv | AT gibbonss governinggeneticdatabasescollectionstorageanduse AT kayej governinggeneticdatabasescollectionstorageanduse |