Reaching consensus on reporting patient and public involvement (PPI) in research: methods and lessons learned from the development of reporting guidelines
Patient and public involvement (PPI) is inconsistently reported in health and social care research. Improving the quality of how PPI is reported is critical in developing a higher quality evidence base to gain a better insight into the methods and impact of PPI. This paper describes the methods used...
Main Authors: | , , , , , , , , , , , , , , , |
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Format: | Journal article |
Language: | English |
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BMJ Publishing Group
2017
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_version_ | 1797051905765015552 |
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author | Brett, J Staniszewska, S Simera, I Seers, K Mockford, C Goodlad, S Altman, D Moher, D Barber, R Denegri, S Entwistle, A Littlejohns, P Morris, C Suleman, R Thomas, V Tysall, C |
author_facet | Brett, J Staniszewska, S Simera, I Seers, K Mockford, C Goodlad, S Altman, D Moher, D Barber, R Denegri, S Entwistle, A Littlejohns, P Morris, C Suleman, R Thomas, V Tysall, C |
author_sort | Brett, J |
collection | OXFORD |
description | Patient and public involvement (PPI) is inconsistently reported in health and social care research. Improving the quality of how PPI is reported is critical in developing a higher quality evidence base to gain a better insight into the methods and impact of PPI. This paper describes the methods used to develop and gain consensus on guidelines for reporting PPI in research studies (updated version of the Guidance for Reporting Patient and Public Involvement (GRIPP2)).There were three key stages in the development of GRIPP2: identification of key items for the guideline from systematic review evidence of the impact of PPI on health research and health services, a three-phase online Delphi survey with a diverse sample of experts in PPI to gain consensus on included items and a face-to-face consensus meeting to finalise and reach definitive agreement on GRIPP2. Challenges and lessons learnt during the development of the reporting guidelines are reported.The process of reaching consensus is vital within the development of guidelines and policy directions, although debate around how best to reach consensus is still needed. This paper discusses the critical stages of consensus development as applied to the development of consensus for GRIPP2 and discusses the benefits and challenges of consensus development. |
first_indexed | 2024-03-06T18:25:50Z |
format | Journal article |
id | oxford-uuid:07ef6969-7370-4490-8526-6f268e47ef11 |
institution | University of Oxford |
language | English |
last_indexed | 2024-03-06T18:25:50Z |
publishDate | 2017 |
publisher | BMJ Publishing Group |
record_format | dspace |
spelling | oxford-uuid:07ef6969-7370-4490-8526-6f268e47ef112022-03-26T09:10:10ZReaching consensus on reporting patient and public involvement (PPI) in research: methods and lessons learned from the development of reporting guidelinesJournal articlehttp://purl.org/coar/resource_type/c_dcae04bcuuid:07ef6969-7370-4490-8526-6f268e47ef11EnglishSymplectic Elements at OxfordBMJ Publishing Group2017Brett, JStaniszewska, SSimera, ISeers, KMockford, CGoodlad, SAltman, DMoher, DBarber, RDenegri, SEntwistle, ALittlejohns, PMorris, CSuleman, RThomas, VTysall, CPatient and public involvement (PPI) is inconsistently reported in health and social care research. Improving the quality of how PPI is reported is critical in developing a higher quality evidence base to gain a better insight into the methods and impact of PPI. This paper describes the methods used to develop and gain consensus on guidelines for reporting PPI in research studies (updated version of the Guidance for Reporting Patient and Public Involvement (GRIPP2)).There were three key stages in the development of GRIPP2: identification of key items for the guideline from systematic review evidence of the impact of PPI on health research and health services, a three-phase online Delphi survey with a diverse sample of experts in PPI to gain consensus on included items and a face-to-face consensus meeting to finalise and reach definitive agreement on GRIPP2. Challenges and lessons learnt during the development of the reporting guidelines are reported.The process of reaching consensus is vital within the development of guidelines and policy directions, although debate around how best to reach consensus is still needed. This paper discusses the critical stages of consensus development as applied to the development of consensus for GRIPP2 and discusses the benefits and challenges of consensus development. |
spellingShingle | Brett, J Staniszewska, S Simera, I Seers, K Mockford, C Goodlad, S Altman, D Moher, D Barber, R Denegri, S Entwistle, A Littlejohns, P Morris, C Suleman, R Thomas, V Tysall, C Reaching consensus on reporting patient and public involvement (PPI) in research: methods and lessons learned from the development of reporting guidelines |
title | Reaching consensus on reporting patient and public involvement (PPI) in research: methods and lessons learned from the development of reporting guidelines |
title_full | Reaching consensus on reporting patient and public involvement (PPI) in research: methods and lessons learned from the development of reporting guidelines |
title_fullStr | Reaching consensus on reporting patient and public involvement (PPI) in research: methods and lessons learned from the development of reporting guidelines |
title_full_unstemmed | Reaching consensus on reporting patient and public involvement (PPI) in research: methods and lessons learned from the development of reporting guidelines |
title_short | Reaching consensus on reporting patient and public involvement (PPI) in research: methods and lessons learned from the development of reporting guidelines |
title_sort | reaching consensus on reporting patient and public involvement ppi in research methods and lessons learned from the development of reporting guidelines |
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