A qualitative interview study of people living with well-controlled Type 1 diabetes

<strong>Objective:</strong> While many people with Type 1 diabetes find it difficult to achieve recommended blood glucose levels, a minority do achieve good control. Our study was conceived by patient and public (PP) partners and sought to learn about experiences of people living with we...

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Main Authors: Smith, D, Donnelly, P, Howe, J, Mumford, T, Campbell, A, Ruddock, A, Tierney, S, Weardon, A
Format: Journal article
Published: Routledge 2018
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author Smith, D
Donnelly, P
Howe, J
Mumford, T
Campbell, A
Ruddock, A
Tierney, S
Weardon, A
author_facet Smith, D
Donnelly, P
Howe, J
Mumford, T
Campbell, A
Ruddock, A
Tierney, S
Weardon, A
author_sort Smith, D
collection OXFORD
description <strong>Objective:</strong> While many people with Type 1 diabetes find it difficult to achieve recommended blood glucose levels, a minority do achieve good control. Our study was conceived by patient and public (PP) partners and sought to learn about experiences of people living with well-controlled diabetes. <strong>Design:</strong> A collaboration between academic health psychologists and five PP partners with experience of diabetes, who were trained to conduct and analyse semi-structured interviews. Fifteen adults with well-controlled Type 1 diabetes were interviewed about the history of their diabetes and their current self-management practices. Interviews were subjected to inductive thematic analysis. <strong>Results:</strong> Eight sub-themes were arranged into two overarching themes, ‘facing up to diabetes’ and ‘balance leads to freedom’. Participants described a process of acceptance and mastery of diabetes, and talked about how they gained a deeper understanding of bodily processes through trial and error. <strong>Conclusion:</strong> Based on the experiences of people with well-controlled Type 1 diabetes, interventions for people with this condition should encourage acceptance of the diagnosis and increasing confidence to experiment with behaviours (trial and error) to encourage ‘mastery’ of self-management. The research collaboration described here is an example of best practice for future researchers wanting to actively engage PP partners.
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spelling oxford-uuid:0b3a6e33-2ca7-4f83-bc28-e49434c6fc5b2022-03-26T09:28:18ZA qualitative interview study of people living with well-controlled Type 1 diabetesJournal articlehttp://purl.org/coar/resource_type/c_dcae04bcuuid:0b3a6e33-2ca7-4f83-bc28-e49434c6fc5bSymplectic Elements at OxfordRoutledge2018Smith, DDonnelly, PHowe, JMumford, TCampbell, ARuddock, ATierney, SWeardon, A<strong>Objective:</strong> While many people with Type 1 diabetes find it difficult to achieve recommended blood glucose levels, a minority do achieve good control. Our study was conceived by patient and public (PP) partners and sought to learn about experiences of people living with well-controlled diabetes. <strong>Design:</strong> A collaboration between academic health psychologists and five PP partners with experience of diabetes, who were trained to conduct and analyse semi-structured interviews. Fifteen adults with well-controlled Type 1 diabetes were interviewed about the history of their diabetes and their current self-management practices. Interviews were subjected to inductive thematic analysis. <strong>Results:</strong> Eight sub-themes were arranged into two overarching themes, ‘facing up to diabetes’ and ‘balance leads to freedom’. Participants described a process of acceptance and mastery of diabetes, and talked about how they gained a deeper understanding of bodily processes through trial and error. <strong>Conclusion:</strong> Based on the experiences of people with well-controlled Type 1 diabetes, interventions for people with this condition should encourage acceptance of the diagnosis and increasing confidence to experiment with behaviours (trial and error) to encourage ‘mastery’ of self-management. The research collaboration described here is an example of best practice for future researchers wanting to actively engage PP partners.
spellingShingle Smith, D
Donnelly, P
Howe, J
Mumford, T
Campbell, A
Ruddock, A
Tierney, S
Weardon, A
A qualitative interview study of people living with well-controlled Type 1 diabetes
title A qualitative interview study of people living with well-controlled Type 1 diabetes
title_full A qualitative interview study of people living with well-controlled Type 1 diabetes
title_fullStr A qualitative interview study of people living with well-controlled Type 1 diabetes
title_full_unstemmed A qualitative interview study of people living with well-controlled Type 1 diabetes
title_short A qualitative interview study of people living with well-controlled Type 1 diabetes
title_sort qualitative interview study of people living with well controlled type 1 diabetes
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