Parental perspectives regarding the return of genomic research results in neurodevelopmental disorders in South Africa: anticipated impact and preferences
Few policies and little research exist regarding the disclosure of genomic results to research participants in Africa. As understanding participant preferences would be pivotal to the success of the feedback process, this study set out to address this issue by engaging with enrolled participants fro...
Main Authors: | Diedericks, A, Bruwer, Z, Laing, N, Eastman, E, De Vries, J, Newton, CR, Abubakar, A, Robinson, EB, Donald, KA |
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Format: | Journal article |
Language: | English |
Published: |
Springer
2024
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