Using the RUDY study platform to capture quality of life of adults with rare diseases of the bone

Using the RUDY study platform to capture quality of life of adults with rare diseases of the bone

Dades bibliogràfiques
Autors principals:	Pinedo Villanueva, R, Javaid, M
Format:	Conference item
Publicat:	Springer London 2016

Ítems similars

The RUDY study platform – a novel approach to patient driven research in rare musculoskeletal diseases
per: Javaid, M, et al.
Publicat: (2016)

The RUDY study platform – a novel approach to patient driven research in rare musculoskeletal diseases
per: M. K. Javaid, et al.
Publicat: (2016-11-01)

Physical function in UK adults with osteogenesis imperfecta: a cross-sectional analysis of the RUDY study
per: Orlando, G, et al.
Publicat: (2020)

Valuation of lost productivity for people with osteogenesis imperfecta: preliminary results from the RUDY cohort
per: Cole, SE, et al.
Publicat: (2022)

Valuation of lost productivity for individuals diagnosed with Osteogenesis imperfecta: follow-up findings from the Rudy Cohort Study in the UK
per: Cole, S, et al.
Publicat: (2022)

The RUDY study: a novel approach to patient driven research in rare musculoskeletal diseases
per: Watts, L, et al.
Publicat: (2016)

A longitudinal study of patient-reported outcomes of RUDY registry participants with X-linked hypophosphataemia in the UK
per: Cole, S, et al.
Publicat: (2021)

Rudy ricciotti /
per: 320842 Ardenne, Paul
Publicat: (2004)

The practice of active patient involvement in rare disease research using ICT: experiences and lessons from the RUDY JAPAN project
per: Nao Hamakawa, et al.
Publicat: (2021-02-01)

The RUDY Study: Using digital technologies to enable a research partnership
per: Teare, H, et al.
Publicat: (2017)

Currículum de Rudy Espinoza
per: Revista Electrónica Educare
Publicat: (2005-06-01)

Dwelm (Rudie van Rensburg)
per: Francois Bekker
Publicat: (2023-12-01)

Doolhof (Rudie van Rensburg)
per: Shawna-Leze Meiring
Publicat: (2023-07-01)

Ys (Rudie van Rensburg)
per: Neil van Heerden
Publicat: (2019-06-01)

Mindeord over Ingrid Rudie
per: Lisbet Holtedahl
Publicat: (2022-03-01)

BUILDER OF BRIDGES : The Rudy Cuenca story /
per: Dalisay, Jose Y., et al.
Publicat: (2010)

The Biology and Natural History of Aphaenogaster rudis
per: David Lubertazzi
Publicat: (2012-01-01)

Kathy Rudy’s Feel-Good Ethics
per: Gary Steiner
Publicat: (2012-02-01)

Subgroups of adults with X-linked hypophosphataemia: cluster analysis of patient-reported outcome measures of participants in a UK rare diseases cohort
per: Cole, S, et al.
Publicat: (2021)

Reading Bion, Rudi Vermote, Routledge, 2019.
per: Rui Aragão Oliveira
Publicat: (2020-12-01)

Rudy Ricciotti: “Architecture in the State of Panic Survival”
per: Georgi Stanishev
Publicat: (2018-08-01)

Quality of life in adults with X-linked hypophosphataemia (XLH): Preservation of emotional well-being despite significant limitations in physical domains
per: Pinedo-Villanueva, R, et al.
Publicat: (2017)

A Wireworm Conoderus rudis (Brown) (Insecta: Coleoptera: Elateridae)
per: Dakshina R. Seal
Publicat: (2012-01-01)

A Wireworm Conoderus rudis (Brown) (Insecta: Coleoptera: Elateridae)
per: Dakshina R. Seal
Publicat: (2012-01-01)

A Wireworm Conoderus rudis (Brown) (Insecta: Coleoptera: Elateridae)
per: Dakshina R. Seal
Publicat: (2012-01-01)

World-antiworlds : Hannes Alfven, translated by Rudy Feichter
per: 289305 Alfven, Hannes, et al.
Publicat: (1966)

RUDIE: Robust approach for underwater digital image enhancement
per: V.Sidda Reddy, et al.
Publicat: (2024-12-01)

Pengaruh Film Rudy Habibie terhadap Nasionalisme Siswa
per: Nanda Putri
Publicat: (2020-12-01)

Multi-layered settlement Rudi XX (excavations in 1982)
per: Ivan Vlasenko
Publicat: (2017-12-01)

Imminent fracture risk and mortality differ by index fracture site and bone mineral density
per: Pinedo-Villanueva, R, et al.
Publicat: (2024)

Report for CITE "SEWA Rudi Food Packaging Evaluation in India"
per: Green, Jennifer, et al.
Publicat: (2018)

Victims of Modernity. The Image of Capitalist Modernisation in Jaroslav Rudiš’s Fiction
per: Adam Zygmunt
Publicat: (2024-03-01)

Rudi Dutschke and György Lukács on the Problems of the Bolshevik Type Socialism
per: Sviatoslav V. Shachin, et al.
Publicat: (2024-03-01)

Rudi Thomsen: Ambition and Confucianism. A Biography of Wang Mang
per: Jens Østergård Petersen
Publicat: (1991-07-01)

Rudy Van Gelder in Hackensack: Defining the Jazz Sound in the 1950s
per: Dan Skea
Publicat: (2001-02-01)

SEMIOTICS OF BORDER (ANALYSIS OF BATAS, A FILM OF RUDI SOEDJARWO)
per: Sumekar Tanjung, et al.
Publicat: (2019-08-01)

Valuation of lost productivity of adults with X-linked Hypophosphataemia and Osteogenesis imperfecta
per: Cole, S, et al.
Publicat: (2023)

Survey from CITE "SEWA Rudi Food Packaging Evaluation in India"
per: Green, Jennifer, et al.
Publicat: (2018)

Anatomical and Morphometric Study of the Trachea in Pied Kingfisher Birds ( Ceryle rudis ).
per: Nabeel Abd Murad Al-Mamoori
Publicat: (2016-12-01)

Complete mitochondrial genome of the Red Keelback (Pseudagkistrodon rudis Boulenger, 1906)
per: Yi-Nan Zhou, et al.
Publicat: (2021-10-01)