Using the RUDY study platform to capture quality of life of adults with rare diseases of the bone

Using the RUDY study platform to capture quality of life of adults with rare diseases of the bone

Manylion Llyfryddiaeth
Prif Awduron:	Pinedo Villanueva, R, Javaid, M
Fformat:	Conference item
Cyhoeddwyd:	Springer London 2016

Eitemau Tebyg

The RUDY study platform – a novel approach to patient driven research in rare musculoskeletal diseases
gan: Javaid, M, et al.
Cyhoeddwyd: (2016)

The RUDY study platform – a novel approach to patient driven research in rare musculoskeletal diseases
gan: M. K. Javaid, et al.
Cyhoeddwyd: (2016-11-01)

Physical function in UK adults with osteogenesis imperfecta: a cross-sectional analysis of the RUDY study
gan: Orlando, G, et al.
Cyhoeddwyd: (2020)

Valuation of lost productivity for people with osteogenesis imperfecta: preliminary results from the RUDY cohort
gan: Cole, SE, et al.
Cyhoeddwyd: (2022)

Valuation of lost productivity for individuals diagnosed with Osteogenesis imperfecta: follow-up findings from the Rudy Cohort Study in the UK
gan: Cole, S, et al.
Cyhoeddwyd: (2022)

The RUDY study: a novel approach to patient driven research in rare musculoskeletal diseases
gan: Watts, L, et al.
Cyhoeddwyd: (2016)

A longitudinal study of patient-reported outcomes of RUDY registry participants with X-linked hypophosphataemia in the UK
gan: Cole, S, et al.
Cyhoeddwyd: (2021)

Rudy ricciotti /
gan: 320842 Ardenne, Paul
Cyhoeddwyd: (2004)

The practice of active patient involvement in rare disease research using ICT: experiences and lessons from the RUDY JAPAN project
gan: Nao Hamakawa, et al.
Cyhoeddwyd: (2021-02-01)

The RUDY Study: Using digital technologies to enable a research partnership
gan: Teare, H, et al.
Cyhoeddwyd: (2017)

Currículum de Rudy Espinoza
gan: Revista Electrónica Educare
Cyhoeddwyd: (2005-06-01)

Dwelm (Rudie van Rensburg)
gan: Francois Bekker
Cyhoeddwyd: (2023-12-01)

Doolhof (Rudie van Rensburg)
gan: Shawna-Leze Meiring
Cyhoeddwyd: (2023-07-01)

Ys (Rudie van Rensburg)
gan: Neil van Heerden
Cyhoeddwyd: (2019-06-01)

Mindeord over Ingrid Rudie
gan: Lisbet Holtedahl
Cyhoeddwyd: (2022-03-01)

BUILDER OF BRIDGES : The Rudy Cuenca story /
gan: Dalisay, Jose Y., et al.
Cyhoeddwyd: (2010)

The Biology and Natural History of Aphaenogaster rudis
gan: David Lubertazzi
Cyhoeddwyd: (2012-01-01)

Kathy Rudy’s Feel-Good Ethics
gan: Gary Steiner
Cyhoeddwyd: (2012-02-01)

Subgroups of adults with X-linked hypophosphataemia: cluster analysis of patient-reported outcome measures of participants in a UK rare diseases cohort
gan: Cole, S, et al.
Cyhoeddwyd: (2021)

Reading Bion, Rudi Vermote, Routledge, 2019.
gan: Rui Aragão Oliveira
Cyhoeddwyd: (2020-12-01)

Rudy Ricciotti: “Architecture in the State of Panic Survival”
gan: Georgi Stanishev
Cyhoeddwyd: (2018-08-01)

Quality of life in adults with X-linked hypophosphataemia (XLH): Preservation of emotional well-being despite significant limitations in physical domains
gan: Pinedo-Villanueva, R, et al.
Cyhoeddwyd: (2017)

A Wireworm Conoderus rudis (Brown) (Insecta: Coleoptera: Elateridae)
gan: Dakshina R. Seal
Cyhoeddwyd: (2012-01-01)

A Wireworm Conoderus rudis (Brown) (Insecta: Coleoptera: Elateridae)
gan: Dakshina R. Seal
Cyhoeddwyd: (2012-01-01)

A Wireworm Conoderus rudis (Brown) (Insecta: Coleoptera: Elateridae)
gan: Dakshina R. Seal
Cyhoeddwyd: (2012-01-01)

World-antiworlds : Hannes Alfven, translated by Rudy Feichter
gan: 289305 Alfven, Hannes, et al.
Cyhoeddwyd: (1966)

RUDIE: Robust approach for underwater digital image enhancement
gan: V.Sidda Reddy, et al.
Cyhoeddwyd: (2024-12-01)

Pengaruh Film Rudy Habibie terhadap Nasionalisme Siswa
gan: Nanda Putri
Cyhoeddwyd: (2020-12-01)

Multi-layered settlement Rudi XX (excavations in 1982)
gan: Ivan Vlasenko
Cyhoeddwyd: (2017-12-01)

Imminent fracture risk and mortality differ by index fracture site and bone mineral density
gan: Pinedo-Villanueva, R, et al.
Cyhoeddwyd: (2024)

Report for CITE "SEWA Rudi Food Packaging Evaluation in India"
gan: Green, Jennifer, et al.
Cyhoeddwyd: (2018)

Victims of Modernity. The Image of Capitalist Modernisation in Jaroslav Rudiš’s Fiction
gan: Adam Zygmunt
Cyhoeddwyd: (2024-03-01)

Rudi Dutschke and György Lukács on the Problems of the Bolshevik Type Socialism
gan: Sviatoslav V. Shachin, et al.
Cyhoeddwyd: (2024-03-01)

Rudi Thomsen: Ambition and Confucianism. A Biography of Wang Mang
gan: Jens Østergård Petersen
Cyhoeddwyd: (1991-07-01)

Rudy Van Gelder in Hackensack: Defining the Jazz Sound in the 1950s
gan: Dan Skea
Cyhoeddwyd: (2001-02-01)

SEMIOTICS OF BORDER (ANALYSIS OF BATAS, A FILM OF RUDI SOEDJARWO)
gan: Sumekar Tanjung, et al.
Cyhoeddwyd: (2019-08-01)

Valuation of lost productivity of adults with X-linked Hypophosphataemia and Osteogenesis imperfecta
gan: Cole, S, et al.
Cyhoeddwyd: (2023)

Survey from CITE "SEWA Rudi Food Packaging Evaluation in India"
gan: Green, Jennifer, et al.
Cyhoeddwyd: (2018)

Anatomical and Morphometric Study of the Trachea in Pied Kingfisher Birds ( Ceryle rudis ).
gan: Nabeel Abd Murad Al-Mamoori
Cyhoeddwyd: (2016-12-01)

Complete mitochondrial genome of the Red Keelback (Pseudagkistrodon rudis Boulenger, 1906)
gan: Yi-Nan Zhou, et al.
Cyhoeddwyd: (2021-10-01)