Using the RUDY study platform to capture quality of life of adults with rare diseases of the bone

Using the RUDY study platform to capture quality of life of adults with rare diseases of the bone

Sonraí bibleagrafaíochta
Príomhchruthaitheoirí:	Pinedo Villanueva, R, Javaid, M
Formáid:	Conference item
Foilsithe / Cruthaithe:	Springer London 2016

Míreanna comhchosúla

The RUDY study platform – a novel approach to patient driven research in rare musculoskeletal diseases
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The RUDY study platform – a novel approach to patient driven research in rare musculoskeletal diseases
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Physical function in UK adults with osteogenesis imperfecta: a cross-sectional analysis of the RUDY study
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Valuation of lost productivity for people with osteogenesis imperfecta: preliminary results from the RUDY cohort
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Valuation of lost productivity for individuals diagnosed with Osteogenesis imperfecta: follow-up findings from the Rudy Cohort Study in the UK
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The RUDY study: a novel approach to patient driven research in rare musculoskeletal diseases
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A longitudinal study of patient-reported outcomes of RUDY registry participants with X-linked hypophosphataemia in the UK
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Rudy ricciotti /
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The practice of active patient involvement in rare disease research using ICT: experiences and lessons from the RUDY JAPAN project
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The RUDY Study: Using digital technologies to enable a research partnership
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Currículum de Rudy Espinoza
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Dwelm (Rudie van Rensburg)
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Doolhof (Rudie van Rensburg)
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Ys (Rudie van Rensburg)
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Mindeord over Ingrid Rudie
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BUILDER OF BRIDGES : The Rudy Cuenca story /
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The Biology and Natural History of Aphaenogaster rudis
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Kathy Rudy’s Feel-Good Ethics
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Subgroups of adults with X-linked hypophosphataemia: cluster analysis of patient-reported outcome measures of participants in a UK rare diseases cohort
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Reading Bion, Rudi Vermote, Routledge, 2019.
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Rudy Ricciotti: “Architecture in the State of Panic Survival”
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Quality of life in adults with X-linked hypophosphataemia (XLH): Preservation of emotional well-being despite significant limitations in physical domains
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A Wireworm Conoderus rudis (Brown) (Insecta: Coleoptera: Elateridae)
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A Wireworm Conoderus rudis (Brown) (Insecta: Coleoptera: Elateridae)
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A Wireworm Conoderus rudis (Brown) (Insecta: Coleoptera: Elateridae)
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World-antiworlds : Hannes Alfven, translated by Rudy Feichter
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RUDIE: Robust approach for underwater digital image enhancement
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Pengaruh Film Rudy Habibie terhadap Nasionalisme Siswa
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Multi-layered settlement Rudi XX (excavations in 1982)
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Imminent fracture risk and mortality differ by index fracture site and bone mineral density
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Report for CITE "SEWA Rudi Food Packaging Evaluation in India"
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Victims of Modernity. The Image of Capitalist Modernisation in Jaroslav Rudiš’s Fiction
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Rudi Dutschke and György Lukács on the Problems of the Bolshevik Type Socialism
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Rudi Thomsen: Ambition and Confucianism. A Biography of Wang Mang
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Rudy Van Gelder in Hackensack: Defining the Jazz Sound in the 1950s
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SEMIOTICS OF BORDER (ANALYSIS OF BATAS, A FILM OF RUDI SOEDJARWO)
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Valuation of lost productivity of adults with X-linked Hypophosphataemia and Osteogenesis imperfecta
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Survey from CITE "SEWA Rudi Food Packaging Evaluation in India"
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Anatomical and Morphometric Study of the Trachea in Pied Kingfisher Birds ( Ceryle rudis ).
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Complete mitochondrial genome of the Red Keelback (Pseudagkistrodon rudis Boulenger, 1906)
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