Moral ambivalence and informal care for the dying

Caring for the dying presents perhaps the most challenging site of informal care. Participation in informal caring roles in such contexts has been prone to reification as a virtuous social practice, often without critical reflection as to the implications for caregivers. Here, drawing on interviews...

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المؤلفون الرئيسيون: Broom, A, Kirby, E, Kenny, K, Macartney, J, Good, P
التنسيق: Journal article
منشور في: Wiley 2016
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author Broom, A
Kirby, E
Kenny, K
Macartney, J
Good, P
author_facet Broom, A
Kirby, E
Kenny, K
Macartney, J
Good, P
author_sort Broom, A
collection OXFORD
description Caring for the dying presents perhaps the most challenging site of informal care. Participation in informal caring roles in such contexts has been prone to reification as a virtuous social practice, often without critical reflection as to the implications for caregivers. Here, drawing on interviews with carers who were providing care in the last few weeks or days of life, we develop an understanding of informal care in this setting as a morally ambiguous social practice, framed by social relations of duty, gift and virtue, but in turn encapsulating experiences of failure, shame and suffering. Such a contradictory understanding of caregiving is critical for understanding the tensions within end-of-life settings and also for countering the concealments produced by the valorization of informal care more broadly in modern societies. We present a critical analysis of informal care’s contested character at the end of life, challenging normative understandings that are complicit in producing moral ambivalence, shame and suffering for individual carers.
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spelling oxford-uuid:28be2261-b7b0-4c59-a0e8-109e7bde4c4c2022-03-26T12:14:46ZMoral ambivalence and informal care for the dyingJournal articlehttp://purl.org/coar/resource_type/c_dcae04bcuuid:28be2261-b7b0-4c59-a0e8-109e7bde4c4cSymplectic Elements at OxfordWiley2016Broom, AKirby, EKenny, KMacartney, JGood, PCaring for the dying presents perhaps the most challenging site of informal care. Participation in informal caring roles in such contexts has been prone to reification as a virtuous social practice, often without critical reflection as to the implications for caregivers. Here, drawing on interviews with carers who were providing care in the last few weeks or days of life, we develop an understanding of informal care in this setting as a morally ambiguous social practice, framed by social relations of duty, gift and virtue, but in turn encapsulating experiences of failure, shame and suffering. Such a contradictory understanding of caregiving is critical for understanding the tensions within end-of-life settings and also for countering the concealments produced by the valorization of informal care more broadly in modern societies. We present a critical analysis of informal care’s contested character at the end of life, challenging normative understandings that are complicit in producing moral ambivalence, shame and suffering for individual carers.
spellingShingle Broom, A
Kirby, E
Kenny, K
Macartney, J
Good, P
Moral ambivalence and informal care for the dying
title Moral ambivalence and informal care for the dying
title_full Moral ambivalence and informal care for the dying
title_fullStr Moral ambivalence and informal care for the dying
title_full_unstemmed Moral ambivalence and informal care for the dying
title_short Moral ambivalence and informal care for the dying
title_sort moral ambivalence and informal care for the dying
work_keys_str_mv AT brooma moralambivalenceandinformalcareforthedying
AT kirbye moralambivalenceandinformalcareforthedying
AT kennyk moralambivalenceandinformalcareforthedying
AT macartneyj moralambivalenceandinformalcareforthedying
AT goodp moralambivalenceandinformalcareforthedying