Trust, respect, and reciprocity: Informing culturally appropriate data-sharing practice in Vietnam
International science funders and publishers are driving a growing trend in data sharing. There is mounting pressure on researchers in low- and middle-income settings to conform to new sharing policies, despite minimal empirically grounded accounts of the ethical challenges of implementing the polic...
| Main Authors: | , , , , , , , |
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| Format: | Journal article |
| Language: | English |
| Published: |
SAGE Publications
2015
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| _version_ | 1826268485688229888 |
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| author | Merson, L Phong, T Nhan, L Dung, N Ngan, T Kinh, N Parker, M Bull, S |
| author_facet | Merson, L Phong, T Nhan, L Dung, N Ngan, T Kinh, N Parker, M Bull, S |
| author_sort | Merson, L |
| collection | OXFORD |
| description | International science funders and publishers are driving a growing trend in data sharing. There is mounting pressure on researchers in low- and middle-income settings to conform to new sharing policies, despite minimal empirically grounded accounts of the ethical challenges of implementing the policies in these settings. This study used in-depth interviews and focus group discussions with 48 stakeholders in Vietnam to explore the experiences, attitudes, and expectations that inform ethical and effective approaches to sharing clinical research data. Distinct views on the role of trust, respect, and reciprocity were among those that emerged to inform culturally appropriate best practices. We conclude by discussing the challenges that authors of data-sharing policies should consider in this unique context. |
| first_indexed | 2024-03-06T21:10:25Z |
| format | Journal article |
| id | oxford-uuid:3df31e5c-f9c9-46d6-b64b-acb06f099f71 |
| institution | University of Oxford |
| language | English |
| last_indexed | 2024-03-06T21:10:25Z |
| publishDate | 2015 |
| publisher | SAGE Publications |
| record_format | dspace |
| spelling | oxford-uuid:3df31e5c-f9c9-46d6-b64b-acb06f099f712022-03-26T14:22:30ZTrust, respect, and reciprocity: Informing culturally appropriate data-sharing practice in VietnamJournal articlehttp://purl.org/coar/resource_type/c_dcae04bcuuid:3df31e5c-f9c9-46d6-b64b-acb06f099f71EnglishSymplectic Elements at OxfordSAGE Publications2015Merson, LPhong, TNhan, LDung, NNgan, TKinh, NParker, MBull, SInternational science funders and publishers are driving a growing trend in data sharing. There is mounting pressure on researchers in low- and middle-income settings to conform to new sharing policies, despite minimal empirically grounded accounts of the ethical challenges of implementing the policies in these settings. This study used in-depth interviews and focus group discussions with 48 stakeholders in Vietnam to explore the experiences, attitudes, and expectations that inform ethical and effective approaches to sharing clinical research data. Distinct views on the role of trust, respect, and reciprocity were among those that emerged to inform culturally appropriate best practices. We conclude by discussing the challenges that authors of data-sharing policies should consider in this unique context. |
| spellingShingle | Merson, L Phong, T Nhan, L Dung, N Ngan, T Kinh, N Parker, M Bull, S Trust, respect, and reciprocity: Informing culturally appropriate data-sharing practice in Vietnam |
| title | Trust, respect, and reciprocity: Informing culturally appropriate data-sharing practice in Vietnam |
| title_full | Trust, respect, and reciprocity: Informing culturally appropriate data-sharing practice in Vietnam |
| title_fullStr | Trust, respect, and reciprocity: Informing culturally appropriate data-sharing practice in Vietnam |
| title_full_unstemmed | Trust, respect, and reciprocity: Informing culturally appropriate data-sharing practice in Vietnam |
| title_short | Trust, respect, and reciprocity: Informing culturally appropriate data-sharing practice in Vietnam |
| title_sort | trust respect and reciprocity informing culturally appropriate data sharing practice in vietnam |
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