Developing a quality criteria framework for patient decision aids: online international Delphi consensus process.

OBJECTIVE: To develop a set of quality criteria for patient decision support technologies (decision aids). DESIGN AND SETTING: Two stage web based Delphi process using online rating process to enable international collaboration. PARTICIPANTS: Individuals from four stakeholder groups (researchers, p...

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Main Authors: Elwyn, G, O'Connor, A, Stacey, D, Volk, R, Edwards, A, Coulter, A, Thomson, R, Barratt, A, Barry, M, Bernstein, S, Butow, P, Clarke, A, Entwistle, V, Feldman-Stewart, D, Holmes-Rovner, M, Llewellyn-Thomas, H, Moumjid, N, Mulley, A, Ruland, C, Sepucha, K, Sykes, A, Whelan, T
Format: Journal article
Language:English
Published: 2006
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author Elwyn, G
O'Connor, A
Stacey, D
Volk, R
Edwards, A
Coulter, A
Thomson, R
Barratt, A
Barry, M
Bernstein, S
Butow, P
Clarke, A
Entwistle, V
Feldman-Stewart, D
Holmes-Rovner, M
Llewellyn-Thomas, H
Moumjid, N
Mulley, A
Ruland, C
Sepucha, K
Sykes, A
Whelan, T
author_facet Elwyn, G
O'Connor, A
Stacey, D
Volk, R
Edwards, A
Coulter, A
Thomson, R
Barratt, A
Barry, M
Bernstein, S
Butow, P
Clarke, A
Entwistle, V
Feldman-Stewart, D
Holmes-Rovner, M
Llewellyn-Thomas, H
Moumjid, N
Mulley, A
Ruland, C
Sepucha, K
Sykes, A
Whelan, T
author_sort Elwyn, G
collection OXFORD
description OBJECTIVE: To develop a set of quality criteria for patient decision support technologies (decision aids). DESIGN AND SETTING: Two stage web based Delphi process using online rating process to enable international collaboration. PARTICIPANTS: Individuals from four stakeholder groups (researchers, practitioners, patients, policy makers) representing 14 countries reviewed evidence summaries and rated the importance of 80 criteria in 12 quality domains on a 1 to 9 scale. Second round participants received feedback from the first round and repeated their assessment of the 80 criteria plus three new ones. MAIN OUTCOME MEASURE: Aggregate ratings for each criterion calculated using medians weighted to compensate for different numbers in stakeholder groups; criteria rated between 7 and 9 were retained. RESULTS: 212 nominated people were invited to participate. Of those invited, 122 participated in the first round (77 researchers, 21 patients, 10 practitioners, 14 policy makers); 104/122 (85%) participated in the second round. 74 of 83 criteria were retained in the following domains: systematic development process (9/9 criteria); providing information about options (13/13); presenting probabilities (11/13); clarifying and expressing values (3/3); using patient stories (2/5); guiding/coaching (3/5); disclosing conflicts of interest (5/5); providing internet access (6/6); balanced presentation of options (3/3); using plain language (4/6); basing information on up to date evidence (7/7); and establishing effectiveness (8/8). CONCLUSIONS: Criteria were given the highest ratings where evidence existed, and these were retained. Gaps in research were highlighted. Developers, users, and purchasers of patient decision aids now have a checklist for appraising quality. An instrument for measuring quality of decision aids is being developed.
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spelling oxford-uuid:3fb6bb68-be41-45bd-9ee6-6be038552b572022-03-26T14:33:39ZDeveloping a quality criteria framework for patient decision aids: online international Delphi consensus process.Journal articlehttp://purl.org/coar/resource_type/c_dcae04bcuuid:3fb6bb68-be41-45bd-9ee6-6be038552b57EnglishSymplectic Elements at Oxford2006Elwyn, GO'Connor, AStacey, DVolk, REdwards, ACoulter, AThomson, RBarratt, ABarry, MBernstein, SButow, PClarke, AEntwistle, VFeldman-Stewart, DHolmes-Rovner, MLlewellyn-Thomas, HMoumjid, NMulley, ARuland, CSepucha, KSykes, AWhelan, T OBJECTIVE: To develop a set of quality criteria for patient decision support technologies (decision aids). DESIGN AND SETTING: Two stage web based Delphi process using online rating process to enable international collaboration. PARTICIPANTS: Individuals from four stakeholder groups (researchers, practitioners, patients, policy makers) representing 14 countries reviewed evidence summaries and rated the importance of 80 criteria in 12 quality domains on a 1 to 9 scale. Second round participants received feedback from the first round and repeated their assessment of the 80 criteria plus three new ones. MAIN OUTCOME MEASURE: Aggregate ratings for each criterion calculated using medians weighted to compensate for different numbers in stakeholder groups; criteria rated between 7 and 9 were retained. RESULTS: 212 nominated people were invited to participate. Of those invited, 122 participated in the first round (77 researchers, 21 patients, 10 practitioners, 14 policy makers); 104/122 (85%) participated in the second round. 74 of 83 criteria were retained in the following domains: systematic development process (9/9 criteria); providing information about options (13/13); presenting probabilities (11/13); clarifying and expressing values (3/3); using patient stories (2/5); guiding/coaching (3/5); disclosing conflicts of interest (5/5); providing internet access (6/6); balanced presentation of options (3/3); using plain language (4/6); basing information on up to date evidence (7/7); and establishing effectiveness (8/8). CONCLUSIONS: Criteria were given the highest ratings where evidence existed, and these were retained. Gaps in research were highlighted. Developers, users, and purchasers of patient decision aids now have a checklist for appraising quality. An instrument for measuring quality of decision aids is being developed.
spellingShingle Elwyn, G
O'Connor, A
Stacey, D
Volk, R
Edwards, A
Coulter, A
Thomson, R
Barratt, A
Barry, M
Bernstein, S
Butow, P
Clarke, A
Entwistle, V
Feldman-Stewart, D
Holmes-Rovner, M
Llewellyn-Thomas, H
Moumjid, N
Mulley, A
Ruland, C
Sepucha, K
Sykes, A
Whelan, T
Developing a quality criteria framework for patient decision aids: online international Delphi consensus process.
title Developing a quality criteria framework for patient decision aids: online international Delphi consensus process.
title_full Developing a quality criteria framework for patient decision aids: online international Delphi consensus process.
title_fullStr Developing a quality criteria framework for patient decision aids: online international Delphi consensus process.
title_full_unstemmed Developing a quality criteria framework for patient decision aids: online international Delphi consensus process.
title_short Developing a quality criteria framework for patient decision aids: online international Delphi consensus process.
title_sort developing a quality criteria framework for patient decision aids online international delphi consensus process
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