Stakeholders understanding of the concept of benefit sharing in health research in Kenya: a qualitative study
<p>Background: The concept of benefit sharing to enhance the social value of global health research in resource poor settings is now a key strategy for addressing moral issues of relevance to individuals, communities and host countries in resource poor settings when they participate in interna...
| Main Authors: | , , , |
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| Format: | Journal article |
| Language: | English |
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BioMed Central
2011
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| _version_ | 1797068296865972224 |
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| author | Lairumbi, G Parker, M Fitzpatrick, R English, M |
| author_facet | Lairumbi, G Parker, M Fitzpatrick, R English, M |
| author_sort | Lairumbi, G |
| collection | OXFORD |
| description | <p>Background: The concept of benefit sharing to enhance the social value of global health research in resource poor settings is now a key strategy for addressing moral issues of relevance to individuals, communities and host countries in resource poor settings when they participate in international collaborative health research. The influence of benefit sharing framework on the conduct of collaborative health research is for instance evidenced by the number of publications and research ethics guidelines that require prior engagement between stakeholders to determine the social value of research to the host communities. While such efforts as the production of international guidance on how to promote the social value of research through such strategies as benefit sharing have been made, the extent to which these ideas and guidelines have been absorbed by those engaged in global health research especially in resource poor settings remains unclear. We examine this awareness among stakeholders involved in health related research in Kenya.</p><p>Methods: We conducted in-depth interviews with key informants drawn from within the broader health research system in Kenya including researchers from the mainstream health research institutions, networks and universities, teaching hospitals, policy makers, institutional review boards, civil society organisations and community representative groups.</p><p>Results: Our study suggests that although people have a sense of justice and the moral aspects of research, this was not articulated in terms used in the literature and the guidelines on the ethics of global health research.</p><p>Conclusion: This study demonstrates that while in theory several efforts can be made to address the moral issues of concern to research participants and their communities in resource poor settings, quick fixes such as benefit sharing are not going to be straightforward. We suggest a need to pay closer attention to the processes through which ethical principles are enacted in practice and distil lessons on how best to involve individuals and communities in promoting ethical conduct of global health research in resource poor settings.</p> |
| first_indexed | 2024-03-06T22:08:42Z |
| format | Journal article |
| id | oxford-uuid:510eebdf-e2e8-4b6b-b9dd-4a6a9ee0631d |
| institution | University of Oxford |
| language | English |
| last_indexed | 2024-03-06T22:08:42Z |
| publishDate | 2011 |
| publisher | BioMed Central |
| record_format | dspace |
| spelling | oxford-uuid:510eebdf-e2e8-4b6b-b9dd-4a6a9ee0631d2022-03-26T16:17:16ZStakeholders understanding of the concept of benefit sharing in health research in Kenya: a qualitative studyJournal articlehttp://purl.org/coar/resource_type/c_dcae04bcuuid:510eebdf-e2e8-4b6b-b9dd-4a6a9ee0631dEthics (Moral philosophy)Public HealthEnglishOxford University Research Archive - ValetBioMed Central2011Lairumbi, GParker, MFitzpatrick, REnglish, M<p>Background: The concept of benefit sharing to enhance the social value of global health research in resource poor settings is now a key strategy for addressing moral issues of relevance to individuals, communities and host countries in resource poor settings when they participate in international collaborative health research. The influence of benefit sharing framework on the conduct of collaborative health research is for instance evidenced by the number of publications and research ethics guidelines that require prior engagement between stakeholders to determine the social value of research to the host communities. While such efforts as the production of international guidance on how to promote the social value of research through such strategies as benefit sharing have been made, the extent to which these ideas and guidelines have been absorbed by those engaged in global health research especially in resource poor settings remains unclear. We examine this awareness among stakeholders involved in health related research in Kenya.</p><p>Methods: We conducted in-depth interviews with key informants drawn from within the broader health research system in Kenya including researchers from the mainstream health research institutions, networks and universities, teaching hospitals, policy makers, institutional review boards, civil society organisations and community representative groups.</p><p>Results: Our study suggests that although people have a sense of justice and the moral aspects of research, this was not articulated in terms used in the literature and the guidelines on the ethics of global health research.</p><p>Conclusion: This study demonstrates that while in theory several efforts can be made to address the moral issues of concern to research participants and their communities in resource poor settings, quick fixes such as benefit sharing are not going to be straightforward. We suggest a need to pay closer attention to the processes through which ethical principles are enacted in practice and distil lessons on how best to involve individuals and communities in promoting ethical conduct of global health research in resource poor settings.</p> |
| spellingShingle | Ethics (Moral philosophy) Public Health Lairumbi, G Parker, M Fitzpatrick, R English, M Stakeholders understanding of the concept of benefit sharing in health research in Kenya: a qualitative study |
| title | Stakeholders understanding of the concept of benefit sharing in health research in Kenya: a qualitative study |
| title_full | Stakeholders understanding of the concept of benefit sharing in health research in Kenya: a qualitative study |
| title_fullStr | Stakeholders understanding of the concept of benefit sharing in health research in Kenya: a qualitative study |
| title_full_unstemmed | Stakeholders understanding of the concept of benefit sharing in health research in Kenya: a qualitative study |
| title_short | Stakeholders understanding of the concept of benefit sharing in health research in Kenya: a qualitative study |
| title_sort | stakeholders understanding of the concept of benefit sharing in health research in kenya a qualitative study |
| topic | Ethics (Moral philosophy) Public Health |
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