Development of an exercise-specific Parkinson’s Disease Questionnaire: the PDQ-exercise
<p><strong>Background:</strong> Exercise is now a significant and key component in the management of Parkinson’s disease. However, no self-report, Parkinson’s-specific measure of exercise currently exists.</p> <p><strong>Objective:</strong> To develop a pat...
| Main Authors: | , , , |
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| Format: | Journal article |
| Language: | English |
| Published: |
Wiley
2021
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| _version_ | 1826272608988954624 |
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| author | Morley, D Dummett, S Kelly, L Jenkinson, C |
| author_facet | Morley, D Dummett, S Kelly, L Jenkinson, C |
| author_sort | Morley, D |
| collection | OXFORD |
| description | <p><strong>Background:</strong> Exercise is now a significant and key component in the management of
Parkinson’s disease. However, no self-report, Parkinson’s-specific measure of exercise
currently exists.</p>
<p><strong>Objective:</strong> To develop a patient reported outcome measure (PROM) for use in studies and
clinical trials that aim to assess the efficacy of exercise therapy for people with Parkinson’s
(PwP).</p>
<p><strong>Methods:</strong> Participants were recruited via Parkinson’s UK. To generate meaningful items,
PwP participated in exploratory cognitive interviews. To pre-test the items generated, PwP
took part in two rounds of cognitive debrief interviews. Items were subsequently tested
through an online survey that also included the 8-item Parkinson’s Disease Questionnaire
(PDQ-8) and Oxford Participation and Activities Questionnaire (Ox-PAQ).</p>
<p><strong>Results:</strong> Twenty PwP were interviewed for item generation. Analyses identified issues
related to adopting and maintaining exercise, resulting in the generation of 10 items.
Fourteen PwP took part in subsequent cognitive debrief interviews. Following the first ten
interviews, one item was removed and minor adjustments were made to the wording of two
items. Four final interviews verified that no further adjustments were required. Consequently,
9 items went forward to the validation survey which was fully completed by 398 PwP.
Inspection of floor and ceiling effects resulted in the removal of two further items. A principal
components analysis identified a single 7-item factor explaining 61.6% of variance. Further
analyses indicated that the measure demonstrates sound reliability and validity.</p>
<p><strong>Conclusions:</strong> Results indicate that the PDQ-Exercise is an acceptable, reliable and valid
PROM. Further assessment of its psychometric properties is in progress.</p> |
| first_indexed | 2024-03-06T22:15:17Z |
| format | Journal article |
| id | oxford-uuid:532d448d-7a72-4be4-b518-724fe7416f19 |
| institution | University of Oxford |
| language | English |
| last_indexed | 2024-03-06T22:15:17Z |
| publishDate | 2021 |
| publisher | Wiley |
| record_format | dspace |
| spelling | oxford-uuid:532d448d-7a72-4be4-b518-724fe7416f192022-03-26T16:29:59ZDevelopment of an exercise-specific Parkinson’s Disease Questionnaire: the PDQ-exerciseJournal articlehttp://purl.org/coar/resource_type/c_dcae04bcuuid:532d448d-7a72-4be4-b518-724fe7416f19EnglishSymplectic ElementsWiley2021Morley, DDummett, SKelly, LJenkinson, C<p><strong>Background:</strong> Exercise is now a significant and key component in the management of Parkinson’s disease. However, no self-report, Parkinson’s-specific measure of exercise currently exists.</p> <p><strong>Objective:</strong> To develop a patient reported outcome measure (PROM) for use in studies and clinical trials that aim to assess the efficacy of exercise therapy for people with Parkinson’s (PwP).</p> <p><strong>Methods:</strong> Participants were recruited via Parkinson’s UK. To generate meaningful items, PwP participated in exploratory cognitive interviews. To pre-test the items generated, PwP took part in two rounds of cognitive debrief interviews. Items were subsequently tested through an online survey that also included the 8-item Parkinson’s Disease Questionnaire (PDQ-8) and Oxford Participation and Activities Questionnaire (Ox-PAQ).</p> <p><strong>Results:</strong> Twenty PwP were interviewed for item generation. Analyses identified issues related to adopting and maintaining exercise, resulting in the generation of 10 items. Fourteen PwP took part in subsequent cognitive debrief interviews. Following the first ten interviews, one item was removed and minor adjustments were made to the wording of two items. Four final interviews verified that no further adjustments were required. Consequently, 9 items went forward to the validation survey which was fully completed by 398 PwP. Inspection of floor and ceiling effects resulted in the removal of two further items. A principal components analysis identified a single 7-item factor explaining 61.6% of variance. Further analyses indicated that the measure demonstrates sound reliability and validity.</p> <p><strong>Conclusions:</strong> Results indicate that the PDQ-Exercise is an acceptable, reliable and valid PROM. Further assessment of its psychometric properties is in progress.</p> |
| spellingShingle | Morley, D Dummett, S Kelly, L Jenkinson, C Development of an exercise-specific Parkinson’s Disease Questionnaire: the PDQ-exercise |
| title | Development of an exercise-specific Parkinson’s Disease Questionnaire: the PDQ-exercise |
| title_full | Development of an exercise-specific Parkinson’s Disease Questionnaire: the PDQ-exercise |
| title_fullStr | Development of an exercise-specific Parkinson’s Disease Questionnaire: the PDQ-exercise |
| title_full_unstemmed | Development of an exercise-specific Parkinson’s Disease Questionnaire: the PDQ-exercise |
| title_short | Development of an exercise-specific Parkinson’s Disease Questionnaire: the PDQ-exercise |
| title_sort | development of an exercise specific parkinson s disease questionnaire the pdq exercise |
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