Development of a visual, patient-reported tool for assessing the multi-dimensional burden of endometriosis
OBJECTIVE:<br> Inadequate communication about endometriosis symptom burden between women and healthcare providers is a barrier for optimal treatment. This study describes the development of the EndoWheel, a patient-reported assessment tool that visualizes the multi-dimensional burden of endome...
| Main Authors: | , , , , , , , , |
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| Format: | Journal article |
| Language: | English |
| Published: |
Taylor and Francis
2021
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| _version_ | 1797069711829106688 |
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| author | As-Sanie, S Laufer, MR Missmer, SA Murji, A Vincent, KF Eichner, S Cross, S Soliman, AM Tu, F |
| author_facet | As-Sanie, S Laufer, MR Missmer, SA Murji, A Vincent, KF Eichner, S Cross, S Soliman, AM Tu, F |
| author_sort | As-Sanie, S |
| collection | OXFORD |
| description | OBJECTIVE:<br> Inadequate communication about endometriosis symptom burden between women and healthcare providers is a barrier for optimal treatment. This study describes the development of the EndoWheel, a patient-reported assessment tool that visualizes the multi-dimensional burden of endometriosis to facilitate patient-provider communication.<br> METHODS:<br> Assessment questions for the tool were developed using an iterative Delphi consensus process. A consensus phase included additional practitioners and specialists to broaden perspectives and select revised statements. Semi-structured qualitative interviews were conducted with 13 women with endometriosis to assess the scoring and content of the measures. <br>RESULTS: <br>Symptoms included in the tool were pelvic pain, vaginal bleeding, bowel/bladder symptoms, energy levels, fertility, impact on activities, emotional and sexual well-being, and self-perceived global health. Additional life impact areas included relationships, social and occupational activity, and self-perception. The 13 interviewees completed the tool in approximately 5-6 minutes (range 4.0-7.5 minutes). Most participants (92%) perceived that the tool would enable better patient-provider communication, including addressing symptoms and areas of impact not normally discussed during office visits. <br>CONCLUSION: <br>Similar to visual circular tools used in burden assessment of other chronic diseases, the tool may facilitate improved patient dialogue with providers around endometriosis treatment goals and options. |
| first_indexed | 2024-03-06T22:28:30Z |
| format | Journal article |
| id | oxford-uuid:577b6077-e67e-4c26-b8a4-47a3ffe192d0 |
| institution | University of Oxford |
| language | English |
| last_indexed | 2024-03-06T22:28:30Z |
| publishDate | 2021 |
| publisher | Taylor and Francis |
| record_format | dspace |
| spelling | oxford-uuid:577b6077-e67e-4c26-b8a4-47a3ffe192d02022-03-26T16:57:12ZDevelopment of a visual, patient-reported tool for assessing the multi-dimensional burden of endometriosisJournal articlehttp://purl.org/coar/resource_type/c_dcae04bcuuid:577b6077-e67e-4c26-b8a4-47a3ffe192d0EnglishSymplectic ElementsTaylor and Francis2021As-Sanie, SLaufer, MRMissmer, SAMurji, AVincent, KFEichner, SCross, SSoliman, AMTu, FOBJECTIVE:<br> Inadequate communication about endometriosis symptom burden between women and healthcare providers is a barrier for optimal treatment. This study describes the development of the EndoWheel, a patient-reported assessment tool that visualizes the multi-dimensional burden of endometriosis to facilitate patient-provider communication.<br> METHODS:<br> Assessment questions for the tool were developed using an iterative Delphi consensus process. A consensus phase included additional practitioners and specialists to broaden perspectives and select revised statements. Semi-structured qualitative interviews were conducted with 13 women with endometriosis to assess the scoring and content of the measures. <br>RESULTS: <br>Symptoms included in the tool were pelvic pain, vaginal bleeding, bowel/bladder symptoms, energy levels, fertility, impact on activities, emotional and sexual well-being, and self-perceived global health. Additional life impact areas included relationships, social and occupational activity, and self-perception. The 13 interviewees completed the tool in approximately 5-6 minutes (range 4.0-7.5 minutes). Most participants (92%) perceived that the tool would enable better patient-provider communication, including addressing symptoms and areas of impact not normally discussed during office visits. <br>CONCLUSION: <br>Similar to visual circular tools used in burden assessment of other chronic diseases, the tool may facilitate improved patient dialogue with providers around endometriosis treatment goals and options. |
| spellingShingle | As-Sanie, S Laufer, MR Missmer, SA Murji, A Vincent, KF Eichner, S Cross, S Soliman, AM Tu, F Development of a visual, patient-reported tool for assessing the multi-dimensional burden of endometriosis |
| title | Development of a visual, patient-reported tool for assessing the multi-dimensional burden of endometriosis |
| title_full | Development of a visual, patient-reported tool for assessing the multi-dimensional burden of endometriosis |
| title_fullStr | Development of a visual, patient-reported tool for assessing the multi-dimensional burden of endometriosis |
| title_full_unstemmed | Development of a visual, patient-reported tool for assessing the multi-dimensional burden of endometriosis |
| title_short | Development of a visual, patient-reported tool for assessing the multi-dimensional burden of endometriosis |
| title_sort | development of a visual patient reported tool for assessing the multi dimensional burden of endometriosis |
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