A qualitative exploration of the role of primary care in supporting colorectal cancer patients.

PURPOSE: To explore experiences and support needs of people with colorectal cancer, with a focus on identifying opportunities for primary care interventions. METHODS: We conducted a new qualitative analysis of an existing dataset, comprising semi-structured interview transcripts from 39 people with...

Full description

Bibliographic Details
Main Authors: Hall, S, Gray, N, Browne, S, Ziebland, S, Campbell, N
Format: Journal article
Language:English
Published: 2012
_version_ 1826277330279989248
author Hall, S
Gray, N
Browne, S
Ziebland, S
Campbell, N
author_facet Hall, S
Gray, N
Browne, S
Ziebland, S
Campbell, N
author_sort Hall, S
collection OXFORD
description PURPOSE: To explore experiences and support needs of people with colorectal cancer, with a focus on identifying opportunities for primary care interventions. METHODS: We conducted a new qualitative analysis of an existing dataset, comprising semi-structured interview transcripts from 39 people with colorectal cancer from across the UK, interviewed in 2001-2002 for www.healthtalkonline.org . Then, we conducted semi-structured interviews with 30 people with colorectal cancer from North East Scotland and Glasgow in 2009 and analysed these new data to explore themes and challenge hypotheses that emerged from the Healthtalkonline data. RESULTS: Formal sources of support, including that from primary care, were valued by those who received them, but provision was described as sporadic both in 2002 and in 2009. However, more of the 2009 participants gave descriptions of specialist nurse and community nurse involvement, and telephone contact from general practitioners, which were welcomed. Improvements in meeting information needs, particularly on the issues of diet and sex, were identified by 2009. A recurring issue reported by patients was the distress experienced by their own friends and family; some patients found themselves having to provide, rather than receive, emotional support at this difficult time. CONCLUSIONS: There have been improvements in support for people with colorectal cancer since 2002, with more specialist and community nurse involvement, and telephone contact from general practitioners, but provision remains piecemeal. Patients would benefit if their families received support, and primary care may be in a good position to provide this. A proactive approach from general practitioners in the post-discharge period is valued.
first_indexed 2024-03-06T23:27:16Z
format Journal article
id oxford-uuid:6acd440f-bed9-4585-87fd-0f61234b5cd7
institution University of Oxford
language English
last_indexed 2024-03-06T23:27:16Z
publishDate 2012
record_format dspace
spelling oxford-uuid:6acd440f-bed9-4585-87fd-0f61234b5cd72022-03-26T18:59:47ZA qualitative exploration of the role of primary care in supporting colorectal cancer patients.Journal articlehttp://purl.org/coar/resource_type/c_dcae04bcuuid:6acd440f-bed9-4585-87fd-0f61234b5cd7EnglishSymplectic Elements at Oxford2012Hall, SGray, NBrowne, SZiebland, SCampbell, N PURPOSE: To explore experiences and support needs of people with colorectal cancer, with a focus on identifying opportunities for primary care interventions. METHODS: We conducted a new qualitative analysis of an existing dataset, comprising semi-structured interview transcripts from 39 people with colorectal cancer from across the UK, interviewed in 2001-2002 for www.healthtalkonline.org . Then, we conducted semi-structured interviews with 30 people with colorectal cancer from North East Scotland and Glasgow in 2009 and analysed these new data to explore themes and challenge hypotheses that emerged from the Healthtalkonline data. RESULTS: Formal sources of support, including that from primary care, were valued by those who received them, but provision was described as sporadic both in 2002 and in 2009. However, more of the 2009 participants gave descriptions of specialist nurse and community nurse involvement, and telephone contact from general practitioners, which were welcomed. Improvements in meeting information needs, particularly on the issues of diet and sex, were identified by 2009. A recurring issue reported by patients was the distress experienced by their own friends and family; some patients found themselves having to provide, rather than receive, emotional support at this difficult time. CONCLUSIONS: There have been improvements in support for people with colorectal cancer since 2002, with more specialist and community nurse involvement, and telephone contact from general practitioners, but provision remains piecemeal. Patients would benefit if their families received support, and primary care may be in a good position to provide this. A proactive approach from general practitioners in the post-discharge period is valued.
spellingShingle Hall, S
Gray, N
Browne, S
Ziebland, S
Campbell, N
A qualitative exploration of the role of primary care in supporting colorectal cancer patients.
title A qualitative exploration of the role of primary care in supporting colorectal cancer patients.
title_full A qualitative exploration of the role of primary care in supporting colorectal cancer patients.
title_fullStr A qualitative exploration of the role of primary care in supporting colorectal cancer patients.
title_full_unstemmed A qualitative exploration of the role of primary care in supporting colorectal cancer patients.
title_short A qualitative exploration of the role of primary care in supporting colorectal cancer patients.
title_sort qualitative exploration of the role of primary care in supporting colorectal cancer patients
work_keys_str_mv AT halls aqualitativeexplorationoftheroleofprimarycareinsupportingcolorectalcancerpatients
AT grayn aqualitativeexplorationoftheroleofprimarycareinsupportingcolorectalcancerpatients
AT brownes aqualitativeexplorationoftheroleofprimarycareinsupportingcolorectalcancerpatients
AT zieblands aqualitativeexplorationoftheroleofprimarycareinsupportingcolorectalcancerpatients
AT campbelln aqualitativeexplorationoftheroleofprimarycareinsupportingcolorectalcancerpatients
AT halls qualitativeexplorationoftheroleofprimarycareinsupportingcolorectalcancerpatients
AT grayn qualitativeexplorationoftheroleofprimarycareinsupportingcolorectalcancerpatients
AT brownes qualitativeexplorationoftheroleofprimarycareinsupportingcolorectalcancerpatients
AT zieblands qualitativeexplorationoftheroleofprimarycareinsupportingcolorectalcancerpatients
AT campbelln qualitativeexplorationoftheroleofprimarycareinsupportingcolorectalcancerpatients