Patient involvement in RSV research: towards patients setting the research agenda
Respiratory syncytial virus (RSV) causes a substantial disease burden among children, elderly and immunocompromised adults. Recognition of patient involvement in research is gradually increasing. Most research is being carried out without active patient involvement other than patients participating...
| Main Authors: | , , , , |
|---|---|
| Other Authors: | |
| Format: | Journal article |
| Language: | English |
| Published: |
Oxford University Press
2022
|
| _version_ | 1797110415093661696 |
|---|---|
| author | Derksen-Lazet, ND Parmentier, CEJ Wildenbeest, JG Bont, LJ Pollard, AJ |
| author2 | RESCEU Investigators |
| author_facet | RESCEU Investigators Derksen-Lazet, ND Parmentier, CEJ Wildenbeest, JG Bont, LJ Pollard, AJ |
| author_sort | Derksen-Lazet, ND |
| collection | OXFORD |
| description | Respiratory syncytial virus (RSV) causes a substantial disease burden among children, elderly and immunocompromised adults. Recognition of patient involvement in research is gradually increasing. Most research is being carried out without active patient involvement other than patients participating as study subjects, and most knowledge gained through research only partially reaches the general public. Since 2016, the RSV Patient Advisory Board has officially been involved as an advisory group in the Respiratory Syncytial Virus Consortium in Europe (RESCEU). What started as a small single-center initiative, is now growing towards an international organization providing patient perspectives as inputs to scientists, and improving awareness of RSV. This article summarizes the history, current role, and future aims of the RSV Patient Advisory Board as an advocate to improve patient involvement in research. RSV patients and their representatives are important stakeholders in setting the global research agenda, and educating patients, professionals, and the general public. |
| first_indexed | 2024-03-07T07:54:32Z |
| format | Journal article |
| id | oxford-uuid:6de91165-5f63-459b-b77d-87326ac0d8d4 |
| institution | University of Oxford |
| language | English |
| last_indexed | 2024-03-07T07:54:32Z |
| publishDate | 2022 |
| publisher | Oxford University Press |
| record_format | dspace |
| spelling | oxford-uuid:6de91165-5f63-459b-b77d-87326ac0d8d42023-08-04T12:47:57ZPatient involvement in RSV research: towards patients setting the research agendaJournal articlehttp://purl.org/coar/resource_type/c_dcae04bcuuid:6de91165-5f63-459b-b77d-87326ac0d8d4EnglishSymplectic ElementsOxford University Press2022Derksen-Lazet, NDParmentier, CEJWildenbeest, JGBont, LJPollard, AJRESCEU InvestigatorsRespiratory syncytial virus (RSV) causes a substantial disease burden among children, elderly and immunocompromised adults. Recognition of patient involvement in research is gradually increasing. Most research is being carried out without active patient involvement other than patients participating as study subjects, and most knowledge gained through research only partially reaches the general public. Since 2016, the RSV Patient Advisory Board has officially been involved as an advisory group in the Respiratory Syncytial Virus Consortium in Europe (RESCEU). What started as a small single-center initiative, is now growing towards an international organization providing patient perspectives as inputs to scientists, and improving awareness of RSV. This article summarizes the history, current role, and future aims of the RSV Patient Advisory Board as an advocate to improve patient involvement in research. RSV patients and their representatives are important stakeholders in setting the global research agenda, and educating patients, professionals, and the general public. |
| spellingShingle | Derksen-Lazet, ND Parmentier, CEJ Wildenbeest, JG Bont, LJ Pollard, AJ Patient involvement in RSV research: towards patients setting the research agenda |
| title | Patient involvement in RSV research: towards patients setting the research agenda |
| title_full | Patient involvement in RSV research: towards patients setting the research agenda |
| title_fullStr | Patient involvement in RSV research: towards patients setting the research agenda |
| title_full_unstemmed | Patient involvement in RSV research: towards patients setting the research agenda |
| title_short | Patient involvement in RSV research: towards patients setting the research agenda |
| title_sort | patient involvement in rsv research towards patients setting the research agenda |
| work_keys_str_mv | AT derksenlazetnd patientinvolvementinrsvresearchtowardspatientssettingtheresearchagenda AT parmentiercej patientinvolvementinrsvresearchtowardspatientssettingtheresearchagenda AT wildenbeestjg patientinvolvementinrsvresearchtowardspatientssettingtheresearchagenda AT bontlj patientinvolvementinrsvresearchtowardspatientssettingtheresearchagenda AT pollardaj patientinvolvementinrsvresearchtowardspatientssettingtheresearchagenda |