Are people ready for personalized brain health? Perspectives of research participants in the Lifebrain consortium
<p>BACKGROUND AND OBJECTIVES:</p>A healthy brain is central to physical and mental well-being. In this multi-site, qualitative study, we investigated views and attitudes of adult participants in brain research studies on the brain and personalized brain health as well as interest in main...
| Main Authors: | , , , , , , , , , , , , , , , |
|---|---|
| Format: | Journal article |
| Language: | English |
| Published: |
Oxford University Press
2019
|
| _version_ | 1797075704698896384 |
|---|---|
| author | Friedman, BB Suri, S Solé-Padullés, C Düzel, S Drevon, CA Baaré, WFC Bartrés-Faz, D Fjell, AM Johansen-Berg, H Madsen, KS Nyberg, L Penninx, BWJH Sexton, C Walhovd, KB Zsoldos, E Budin-Ljøsne, I |
| author_facet | Friedman, BB Suri, S Solé-Padullés, C Düzel, S Drevon, CA Baaré, WFC Bartrés-Faz, D Fjell, AM Johansen-Berg, H Madsen, KS Nyberg, L Penninx, BWJH Sexton, C Walhovd, KB Zsoldos, E Budin-Ljøsne, I |
| author_sort | Friedman, BB |
| collection | OXFORD |
| description | <p>BACKGROUND AND OBJECTIVES:</p>A healthy brain is central to physical and mental well-being. In this multi-site, qualitative study, we investigated views and attitudes of adult participants in brain research studies on the brain and personalized brain health as well as interest in maintaining a healthy brain.
<p>DESIGN AND METHODS:</p>We conducted individual interviews with 44 adult participants in brain research cohorts of the Lifebrain consortium in Spain, Norway, Germany, and the United Kingdom. The interviews were audio recorded, transcribed, and coded using a cross-country codebook. The interview data were analyzed using qualitative content analysis.
<p>RESULTS:</p>Most participants did not focus on their own brain health and expressed uncertainty regarding how to maintain it. Those actively focusing on brain health often picked one specific strategy like diet or memory training. The participants were interested in taking brain health tests to learn about their individual risk of developing brain diseases, and were willing to take measures to maintain their brain health if personalized follow-up was provided and the measures had proven impact. The participants were interested in more information on brain health. No differences in responses were identified between age groups, sex, or countries.
<p>DISCUSSION AND IMPLICATIONS:</p>Concise, practical, personalized, and evidence-based information about the brain may promote brain health. Based on our findings, we have launched an ongoing global brain health survey to acquire more extensive, quantitative, and representative data on public perception of personalized brain health. |
| first_indexed | 2024-03-06T23:54:02Z |
| format | Journal article |
| id | oxford-uuid:73980b60-451b-488a-a461-32410d08c16c |
| institution | University of Oxford |
| language | English |
| last_indexed | 2024-03-06T23:54:02Z |
| publishDate | 2019 |
| publisher | Oxford University Press |
| record_format | dspace |
| spelling | oxford-uuid:73980b60-451b-488a-a461-32410d08c16c2022-03-26T19:57:29ZAre people ready for personalized brain health? Perspectives of research participants in the Lifebrain consortiumJournal articlehttp://purl.org/coar/resource_type/c_dcae04bcuuid:73980b60-451b-488a-a461-32410d08c16cEnglishSymplectic ElementsOxford University Press2019Friedman, BBSuri, SSolé-Padullés, CDüzel, SDrevon, CABaaré, WFCBartrés-Faz, DFjell, AMJohansen-Berg, HMadsen, KSNyberg, LPenninx, BWJHSexton, CWalhovd, KBZsoldos, EBudin-Ljøsne, I<p>BACKGROUND AND OBJECTIVES:</p>A healthy brain is central to physical and mental well-being. In this multi-site, qualitative study, we investigated views and attitudes of adult participants in brain research studies on the brain and personalized brain health as well as interest in maintaining a healthy brain. <p>DESIGN AND METHODS:</p>We conducted individual interviews with 44 adult participants in brain research cohorts of the Lifebrain consortium in Spain, Norway, Germany, and the United Kingdom. The interviews were audio recorded, transcribed, and coded using a cross-country codebook. The interview data were analyzed using qualitative content analysis. <p>RESULTS:</p>Most participants did not focus on their own brain health and expressed uncertainty regarding how to maintain it. Those actively focusing on brain health often picked one specific strategy like diet or memory training. The participants were interested in taking brain health tests to learn about their individual risk of developing brain diseases, and were willing to take measures to maintain their brain health if personalized follow-up was provided and the measures had proven impact. The participants were interested in more information on brain health. No differences in responses were identified between age groups, sex, or countries. <p>DISCUSSION AND IMPLICATIONS:</p>Concise, practical, personalized, and evidence-based information about the brain may promote brain health. Based on our findings, we have launched an ongoing global brain health survey to acquire more extensive, quantitative, and representative data on public perception of personalized brain health. |
| spellingShingle | Friedman, BB Suri, S Solé-Padullés, C Düzel, S Drevon, CA Baaré, WFC Bartrés-Faz, D Fjell, AM Johansen-Berg, H Madsen, KS Nyberg, L Penninx, BWJH Sexton, C Walhovd, KB Zsoldos, E Budin-Ljøsne, I Are people ready for personalized brain health? Perspectives of research participants in the Lifebrain consortium |
| title | Are people ready for personalized brain health? Perspectives of research participants in the Lifebrain consortium |
| title_full | Are people ready for personalized brain health? Perspectives of research participants in the Lifebrain consortium |
| title_fullStr | Are people ready for personalized brain health? Perspectives of research participants in the Lifebrain consortium |
| title_full_unstemmed | Are people ready for personalized brain health? Perspectives of research participants in the Lifebrain consortium |
| title_short | Are people ready for personalized brain health? Perspectives of research participants in the Lifebrain consortium |
| title_sort | are people ready for personalized brain health perspectives of research participants in the lifebrain consortium |
| work_keys_str_mv | AT friedmanbb arepeoplereadyforpersonalizedbrainhealthperspectivesofresearchparticipantsinthelifebrainconsortium AT suris arepeoplereadyforpersonalizedbrainhealthperspectivesofresearchparticipantsinthelifebrainconsortium AT solepadullesc arepeoplereadyforpersonalizedbrainhealthperspectivesofresearchparticipantsinthelifebrainconsortium AT duzels arepeoplereadyforpersonalizedbrainhealthperspectivesofresearchparticipantsinthelifebrainconsortium AT drevonca arepeoplereadyforpersonalizedbrainhealthperspectivesofresearchparticipantsinthelifebrainconsortium AT baarewfc arepeoplereadyforpersonalizedbrainhealthperspectivesofresearchparticipantsinthelifebrainconsortium AT bartresfazd arepeoplereadyforpersonalizedbrainhealthperspectivesofresearchparticipantsinthelifebrainconsortium AT fjellam arepeoplereadyforpersonalizedbrainhealthperspectivesofresearchparticipantsinthelifebrainconsortium AT johansenbergh arepeoplereadyforpersonalizedbrainhealthperspectivesofresearchparticipantsinthelifebrainconsortium AT madsenks arepeoplereadyforpersonalizedbrainhealthperspectivesofresearchparticipantsinthelifebrainconsortium AT nybergl arepeoplereadyforpersonalizedbrainhealthperspectivesofresearchparticipantsinthelifebrainconsortium AT penninxbwjh arepeoplereadyforpersonalizedbrainhealthperspectivesofresearchparticipantsinthelifebrainconsortium AT sextonc arepeoplereadyforpersonalizedbrainhealthperspectivesofresearchparticipantsinthelifebrainconsortium AT walhovdkb arepeoplereadyforpersonalizedbrainhealthperspectivesofresearchparticipantsinthelifebrainconsortium AT zsoldose arepeoplereadyforpersonalizedbrainhealthperspectivesofresearchparticipantsinthelifebrainconsortium AT budinljøsnei arepeoplereadyforpersonalizedbrainhealthperspectivesofresearchparticipantsinthelifebrainconsortium |