Patient and public involvement: Two sides of the same coin or different coins altogether?
Patient and public involvement (PPI) has gained widespread support in health research and health policy circles, but there is little consensus on the precise meaning or justifications of PPI. We argue that an important step towards clarifying the meaning and justification for PPI is to split apart t...
| Main Authors: | , , , , |
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| Format: | Journal article |
| Language: | English |
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Wiley
2019
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| _version_ | 1826281865926934528 |
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| author | McCoy, MS Warsh, J Rand, L Parker, M Sheehan, M |
| author_facet | McCoy, MS Warsh, J Rand, L Parker, M Sheehan, M |
| author_sort | McCoy, MS |
| collection | OXFORD |
| description | Patient and public involvement (PPI) has gained widespread support in health research and health policy circles, but there is little consensus on the precise meaning or justifications of PPI. We argue that an important step towards clarifying the meaning and justification for PPI is to split apart the familiar acronym and draw a distinction between patient and public involvement. Specifically, we argue that patient involvement should refer to the practice of involving individuals in health research or policy on the basis of their experience with a particular condition, while public involvement should refer to the practice of involving individuals in health policy or research based on their status as members of a relevant population. Analyzing cases from the UK, Australia, and the USA, we show how our proposed distinction can deliver much needed clarity to conversations on PPI, while guiding the development and evaluation of future PPI-based policies. |
| first_indexed | 2024-03-07T00:35:15Z |
| format | Journal article |
| id | oxford-uuid:812ce0dd-f4f4-40e8-945b-0f457e071807 |
| institution | University of Oxford |
| language | English |
| last_indexed | 2024-03-07T00:35:15Z |
| publishDate | 2019 |
| publisher | Wiley |
| record_format | dspace |
| spelling | oxford-uuid:812ce0dd-f4f4-40e8-945b-0f457e0718072022-03-26T21:28:38ZPatient and public involvement: Two sides of the same coin or different coins altogether?Journal articlehttp://purl.org/coar/resource_type/c_dcae04bcuuid:812ce0dd-f4f4-40e8-945b-0f457e071807EnglishSymplectic Elements at OxfordWiley2019McCoy, MSWarsh, JRand, LParker, MSheehan, MPatient and public involvement (PPI) has gained widespread support in health research and health policy circles, but there is little consensus on the precise meaning or justifications of PPI. We argue that an important step towards clarifying the meaning and justification for PPI is to split apart the familiar acronym and draw a distinction between patient and public involvement. Specifically, we argue that patient involvement should refer to the practice of involving individuals in health research or policy on the basis of their experience with a particular condition, while public involvement should refer to the practice of involving individuals in health policy or research based on their status as members of a relevant population. Analyzing cases from the UK, Australia, and the USA, we show how our proposed distinction can deliver much needed clarity to conversations on PPI, while guiding the development and evaluation of future PPI-based policies. |
| spellingShingle | McCoy, MS Warsh, J Rand, L Parker, M Sheehan, M Patient and public involvement: Two sides of the same coin or different coins altogether? |
| title | Patient and public involvement: Two sides of the same coin or different coins altogether? |
| title_full | Patient and public involvement: Two sides of the same coin or different coins altogether? |
| title_fullStr | Patient and public involvement: Two sides of the same coin or different coins altogether? |
| title_full_unstemmed | Patient and public involvement: Two sides of the same coin or different coins altogether? |
| title_short | Patient and public involvement: Two sides of the same coin or different coins altogether? |
| title_sort | patient and public involvement two sides of the same coin or different coins altogether |
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