‘Small cost to pay for peace of mind’: Women's experiences with non‐invasive prenatal testing
<p><strong>Background</strong> Non‐invasive prenatal testing (NIPT ) has been available in Australia on a user‐pays basis since 2012. Since its introduction, it has grown in popularity as a screening method for fetal aneuploidy and may become publicly funded.</p> <p>&l...
| Main Authors: | , , , , , , |
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| Format: | Journal article |
| Language: | English |
| Published: |
Wiley
2019
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| _version_ | 1797084096377126912 |
|---|---|
| author | Bowman‐Smart, H Savulescu, J Mand, C Gyngell, C Pertile, MD Lewis, S Delatycki, MB |
| author_facet | Bowman‐Smart, H Savulescu, J Mand, C Gyngell, C Pertile, MD Lewis, S Delatycki, MB |
| author_sort | Bowman‐Smart, H |
| collection | OXFORD |
| description | <p><strong>Background</strong>
Non‐invasive prenatal testing (NIPT ) has been available in Australia on a user‐pays basis since 2012. Since its introduction, it has grown in popularity as a screening method for fetal aneuploidy and may become publicly funded.</p>
<p><strong>Aims</strong>
To assess the motivations and experiences of women who have undergone NIPT in a user‐pays system in Australia.</p>
<p><strong>Materials and methods</strong>
One thousand women who had undergone NIPT through the Victorian Clinical Genetics Services in Melbourne, Australia were contacted and asked to complete a mixed‐methods survey. The number of eligible responses received was 235. Quantitative data analysis was performed in STATA IC 15.1, and qualitative data were examined using content analysis.</p>
<p><strong>Results</strong>
Women reported generally positive experiences with NIPT and 95% of respondents indicated they would undergo NIPT in a future pregnancy. Most respondents received a low‐risk result, with 2.2% receiving a high‐risk result. Respondents viewed NIPT favourably compared to invasive testing and cited reassurance as a key reason they sought it. However, a small minority of women reported negative experiences with the testing process. Women were also supportive of NIPT becoming publicly funded, with 93% of respondents indicating support. Pre‐ and post‐test counselling were identified as possible areas for improvement to ensure informed consent.</p>
<p><strong>Conclusion</strong>
In support of the existing literature, these results indicate that Australian women generally report positive experiences with NIPT . As NIPT becomes more common, with possible integration into public healthcare, further qualitative research would be valuable to examine the motivations and experiences of women undergoing NIPT .</p> |
| first_indexed | 2024-03-07T01:50:37Z |
| format | Journal article |
| id | oxford-uuid:99f76d71-1b6f-462b-8e34-555ce8e3aa71 |
| institution | University of Oxford |
| language | English |
| last_indexed | 2024-03-07T01:50:37Z |
| publishDate | 2019 |
| publisher | Wiley |
| record_format | dspace |
| spelling | oxford-uuid:99f76d71-1b6f-462b-8e34-555ce8e3aa712022-03-27T00:18:05Z‘Small cost to pay for peace of mind’: Women's experiences with non‐invasive prenatal testingJournal articlehttp://purl.org/coar/resource_type/c_dcae04bcuuid:99f76d71-1b6f-462b-8e34-555ce8e3aa71EnglishSymplectic Elements at OxfordWiley2019Bowman‐Smart, HSavulescu, JMand, CGyngell, CPertile, MDLewis, SDelatycki, MB<p><strong>Background</strong> Non‐invasive prenatal testing (NIPT ) has been available in Australia on a user‐pays basis since 2012. Since its introduction, it has grown in popularity as a screening method for fetal aneuploidy and may become publicly funded.</p> <p><strong>Aims</strong> To assess the motivations and experiences of women who have undergone NIPT in a user‐pays system in Australia.</p> <p><strong>Materials and methods</strong> One thousand women who had undergone NIPT through the Victorian Clinical Genetics Services in Melbourne, Australia were contacted and asked to complete a mixed‐methods survey. The number of eligible responses received was 235. Quantitative data analysis was performed in STATA IC 15.1, and qualitative data were examined using content analysis.</p> <p><strong>Results</strong> Women reported generally positive experiences with NIPT and 95% of respondents indicated they would undergo NIPT in a future pregnancy. Most respondents received a low‐risk result, with 2.2% receiving a high‐risk result. Respondents viewed NIPT favourably compared to invasive testing and cited reassurance as a key reason they sought it. However, a small minority of women reported negative experiences with the testing process. Women were also supportive of NIPT becoming publicly funded, with 93% of respondents indicating support. Pre‐ and post‐test counselling were identified as possible areas for improvement to ensure informed consent.</p> <p><strong>Conclusion</strong> In support of the existing literature, these results indicate that Australian women generally report positive experiences with NIPT . As NIPT becomes more common, with possible integration into public healthcare, further qualitative research would be valuable to examine the motivations and experiences of women undergoing NIPT .</p> |
| spellingShingle | Bowman‐Smart, H Savulescu, J Mand, C Gyngell, C Pertile, MD Lewis, S Delatycki, MB ‘Small cost to pay for peace of mind’: Women's experiences with non‐invasive prenatal testing |
| title | ‘Small cost to pay for peace of mind’: Women's experiences with non‐invasive prenatal testing |
| title_full | ‘Small cost to pay for peace of mind’: Women's experiences with non‐invasive prenatal testing |
| title_fullStr | ‘Small cost to pay for peace of mind’: Women's experiences with non‐invasive prenatal testing |
| title_full_unstemmed | ‘Small cost to pay for peace of mind’: Women's experiences with non‐invasive prenatal testing |
| title_short | ‘Small cost to pay for peace of mind’: Women's experiences with non‐invasive prenatal testing |
| title_sort | small cost to pay for peace of mind women s experiences with non invasive prenatal testing |
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