SATURN: assessing the feasibility of utilising existing registries for real-world evidence data collection to meet patients, regulatory, health technology assessment and payer requirements

Samankaltaisia teoksia

• SATURN: assessing the feasibility of utilising existing registries for real-world evidence data collection to meet patients, regulatory, health technology assessment and payer requirements
  Tekijä: L. Sangiorgi, et al.
  Julkaistu: (2024-09-01)
• Project SATURN– a real-world evidence data collaboration with existing European datasets in Osteogenesis Imperfecta to support future therapies
  Tekijä: L. Sangiorgi, et al.
  Julkaistu: (2024-05-01)
• Patients’ priorities and expectations on an EU registry for rare bone and mineral conditions
  Tekijä: Muhammad Kassim Javaid, et al.
  Julkaistu: (2021-11-01)
• Patients, payers and developers of Orphan Medicinal Products: lessons learned from 10 years’ multi-stakeholder dialogue on improving access in Europe via MoCA
  Tekijä: Maria Cavaller-Bellaubi, et al.
  Julkaistu: (2023-06-01)
• Remodeling an existing rare disease registry to be used in regulatory context: Lessons learned and recommendations
  Tekijä: Marina Mordenti, et al.
  Julkaistu: (2022-09-01)