Inclusion of diverse populations in genomics research and health services: Genomix workshop report
Clinical Genetic Services and Genomic research are rapidly developing but, historically, those with the greatest need are the least to benefit from these advances. This encompasses low-income communities, including those from ethnic minority and indigenous backgrounds. The “Genomix” workshop at the...
| Main Authors: | , , , , , |
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| Format: | Journal article |
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Springer Berlin Heidelberg
2017
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| _version_ | 1797086398047584256 |
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| author | Mathew, S Barwell, J Khan, N Lynch, E Parker, M Qureshi, N |
| author_facet | Mathew, S Barwell, J Khan, N Lynch, E Parker, M Qureshi, N |
| author_sort | Mathew, S |
| collection | OXFORD |
| description | Clinical Genetic Services and Genomic research are rapidly developing but, historically, those with the greatest need are the least to benefit from these advances. This encompasses low-income communities, including those from ethnic minority and indigenous backgrounds. The “Genomix” workshop at the European Society of Human Genetics (ESHG) 2016 conference offered the opportunity to consider possible solutions for these disparities from the experiences of researchers and genetic healthcare practitioners working with underserved communities in the USA, UK and Australia. Evident from the workshop and corresponding literature is that a multifaceted approach to engaging communities is essential. This needs to be complemented by redesigning healthcare systems that improves access and raises awareness of the needs of these communities. At a more strategic level, institutions involved in funding research, commissioning and redesigning genetic health services also need to be adequately represented by underserved populations with intrinsic mechanisms to disseminate good practice and monitor participation. Further, as genomic medicine is mainstreamed, educational programmes developed for clinicians should incorporate approaches to alleviate disparities in accessing genetic services and improving study participation. |
| first_indexed | 2024-03-07T02:21:28Z |
| format | Journal article |
| id | oxford-uuid:a411a455-6af9-4876-a7eb-002eebfc9503 |
| institution | University of Oxford |
| last_indexed | 2024-03-07T02:21:28Z |
| publishDate | 2017 |
| publisher | Springer Berlin Heidelberg |
| record_format | dspace |
| spelling | oxford-uuid:a411a455-6af9-4876-a7eb-002eebfc95032022-03-27T02:31:26ZInclusion of diverse populations in genomics research and health services: Genomix workshop reportJournal articlehttp://purl.org/coar/resource_type/c_dcae04bcuuid:a411a455-6af9-4876-a7eb-002eebfc9503Symplectic Elements at OxfordSpringer Berlin Heidelberg2017Mathew, SBarwell, JKhan, NLynch, EParker, MQureshi, NClinical Genetic Services and Genomic research are rapidly developing but, historically, those with the greatest need are the least to benefit from these advances. This encompasses low-income communities, including those from ethnic minority and indigenous backgrounds. The “Genomix” workshop at the European Society of Human Genetics (ESHG) 2016 conference offered the opportunity to consider possible solutions for these disparities from the experiences of researchers and genetic healthcare practitioners working with underserved communities in the USA, UK and Australia. Evident from the workshop and corresponding literature is that a multifaceted approach to engaging communities is essential. This needs to be complemented by redesigning healthcare systems that improves access and raises awareness of the needs of these communities. At a more strategic level, institutions involved in funding research, commissioning and redesigning genetic health services also need to be adequately represented by underserved populations with intrinsic mechanisms to disseminate good practice and monitor participation. Further, as genomic medicine is mainstreamed, educational programmes developed for clinicians should incorporate approaches to alleviate disparities in accessing genetic services and improving study participation. |
| spellingShingle | Mathew, S Barwell, J Khan, N Lynch, E Parker, M Qureshi, N Inclusion of diverse populations in genomics research and health services: Genomix workshop report |
| title | Inclusion of diverse populations in genomics research and health services: Genomix
workshop report |
| title_full | Inclusion of diverse populations in genomics research and health services: Genomix
workshop report |
| title_fullStr | Inclusion of diverse populations in genomics research and health services: Genomix
workshop report |
| title_full_unstemmed | Inclusion of diverse populations in genomics research and health services: Genomix
workshop report |
| title_short | Inclusion of diverse populations in genomics research and health services: Genomix
workshop report |
| title_sort | inclusion of diverse populations in genomics research and health services genomix workshop report |
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