An investigation of patients' motivations for their participation in genetics-related research.

An investigation of patients' motivations for their participation in genetics-related research.

DESIGN: Qualitative interview study. PARTICIPANTS: Fifty-nine patients with a family history of cancer who attend a regional cancer genetics clinic in the UK were interviewed about their current and previous research experiences. FINDINGS: Interviewees gave a range of explanations for research parti...

Descripció completa

Dades bibliogràfiques
Autors principals:	Hallowell, N, Cooke, S, Crawford, G, Lucassen, A, Parker, M, Snowdon, C
Format:	Journal article
Idioma:	English
Publicat:	2010

Ítems similars

Healthcare professionals' and researchers' understanding of cancer genetics activities: a qualitative interview study.
per: Hallowell, N, et al.
Publicat: (2009)

Distinguishing research from clinical care in cancer genetics: theoretical justifications and practical strategies.
per: Hallowell, N, et al.
Publicat: (2009)

Lay and professional understandings of research and clinical activities in cancer genetics and their implications for informed consent
per: Hallowell, N, et al.
Publicat: (2010)

Lay understanding of cancer genetics activities in the UK
per: Cooke, S, et al.
Publicat: (2007)

Confidentiality and sharing genetic information with relatives.
per: Lucassen, A, et al.
Publicat: (2010)

Confidentiality and serious harm in genetics - preserving the confidentiality of one patient and preventing harm to relatives.
per: Lucassen, A, et al.
Publicat: (2004)

Motivations for Participation in Parkinson Disease Genetic Research Among Hispanics versus Non-Hispanics
per: Karen Nuytemans, et al.
Publicat: (2019-07-01)

To participate or not to participate? A qualitative investigation of students' complex motivations for verbal classroom participation.
per: Emilee Severe, et al.
Publicat: (2024-01-01)

How do clinical genetics consent forms address the familial approach to confidentiality and incidental findings? A mixed-methods study
per: Dheensa, S, et al.
Publicat: (2017)

Genetic information: a joint account?
per: Parker, M, et al.
Publicat: (2004)

Concern for families and individuals in clinical genetics.
per: Parker, M, et al.
Publicat: (2003)

Working towards ethical management of genetic testing.
per: Parker, M, et al.
Publicat: (2002)

Ethics in practice - Genetic information: a joint account?
per: Parker, M, et al.
Publicat: (2004)

Talking about false paternity in the genetic clinic: some ethical considerations
per: Lucassen, A, et al.
Publicat: (2000)

Disclosure of individual genetic data to research participants: the debate reconsidered.
per: Bredenoord, A, et al.
Publicat: (2011)

Researchers' participation in and motivations for engaging with research information management systems.
per: Besiki Stvilia, et al.
Publicat: (2018-01-01)

Disclosure of genetics research results after the death of the patient participant: a qualitative study of the impact on relatives.
per: Ormondroyd, E, et al.
Publicat: (2007)

Using a genetic test result in the care of family members: How does the duty of confidentiality apply?
per: Parker, M, et al.
Publicat: (2018)

Ethical preparedness in genomic medicine: how NHS clinical scientists navigate ethical issues
per: Sahan, K, et al.
Publicat: (2024)

When genomic medicine reveals misattributed genetic relationships – the debate about disclosure revisited
per: Wright, C, et al.
Publicat: (2018)

Motivating participation in open science by examining researcher incentives
per: Sarah E Ali-Khan, et al.
Publicat: (2017-10-01)

Investigation of sport participation motivation and psychological resilience in football players
per: Hamza Kucuk
Publicat: (2024-03-01)

Investigating the Impact of Food Rewards on Children’s Motivation to Participate in Sport
per: Alanna Shwed, et al.
Publicat: (2023-02-01)

Motivators and barriers to research participation for individuals with cerebral palsy and their families.
per: Kristina M Zvolanek, et al.
Publicat: (2022-01-01)

Motivators and barriers to research participation for individuals with cerebral palsy and their families
per: Kristina M. Zvolanek, et al.
Publicat: (2022-01-01)

A genetic researcher’s devil’s dilemma: Warn relatives about their genetic risk or respect confidentiality agreements with research participants?
per: Lieke M. van den Heuvel, et al.
Publicat: (2021-11-01)

Barriers and Motivators to Participating in mHealth Research Among African American Men
per: Delores C. S. James PhD, RD, LD/N, et al.
Publicat: (2017-11-01)

The participation motive in the paralympics
per: Omar Fauzee, Mohd Sofian, et al.
Publicat: (2010)

Genetic testing of children: the need for a family perspective.
per: Lucassen, A, et al.
Publicat: (2014)

The Research on the Participants' Motivation to Explore the Sports Association Future Activities
per: Li-Wei Liu
Publicat: (2017-10-01)

The Research on the Participants' Motivation to Explore the Sports Association Future Activities
per: Li-Wei Liu
Publicat: (2017-10-01)

The Research on the Participants' Motivation to Explore the Sports Association Future Activities
per: Li-Wei Liu
Publicat: (2017-10-01)

Consent to research participation: understanding and motivation among German pupils
per: Jana Reetz, et al.
Publicat: (2021-07-01)

Motivations of educators for participating in an authentic astronomy research experience professional development program
per: L. M. Rebull, et al.
Publicat: (2018-06-01)

Motivators and barriers to research participation among medical students in Saudi Arabia.
per: Rakan K Alhabib, et al.
Publicat: (2023-01-01)

Motivators and barriers to research participation among medical students in Saudi Arabia
per: Rakan K. Alhabib, et al.
Publicat: (2023-01-01)

Cooperative research and development projects: researchers’ motivations for participation and the benefits and barriers they encounter
per: Carla Fontes, et al.
Publicat: (2025-01-01)

Research or clinical care: what's the difference?
per: Hallowell, N
Publicat: (2018)

Predictive genetic testing for Huntington's disease: Exploring participant experiences of uncertainty and ambivalence between clinic appointments
per: Ballard, LM, et al.
Publicat: (2024)

Exploring the Motivational Drivers of Young Adults with Diabetes for Participation in Kidney Research
per: P Mohini MEng, et al.
Publicat: (2022-11-01)