Patient-reported outcome measurement in primary care for people with long-term conditions: stakeholders views
<b>Objectives:</b> To explore the views of a range of stakeholders regarding whether patient-reported outcome measures (PROMs) can be developed to measure key attributes of long-term conditions (LTCs) care in England, and the potential value of a single generic measure. <b>Design:&...
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Springer
2017
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author | Gibbons, EJ Jenkinson, C Fitzpatrick, R Peters, M |
author_facet | Gibbons, EJ Jenkinson, C Fitzpatrick, R Peters, M |
author_sort | Gibbons, EJ |
collection | OXFORD |
description | <b>Objectives:</b> To explore the views of a range of stakeholders regarding whether patient-reported outcome measures (PROMs) can be developed to measure key attributes of long-term conditions (LTCs) care in England, and the potential value of a single generic measure. <b>Design:</b> Qualitative semi-structured interview study, analysed using a framework approach <b>Participants and Setting:</b> Interviews with 31 stakeholders from primary care, secondary care, social care, policy and patient-focused voluntary organisations in England. <b>Results:</b> There was broad support for a single PROM that could be used to measure outcomes for patients with any LTCs in any health or social care setting. Interviewees identified three desired uses for a PROM: to improve the quality of individual care; to increase people’s engagement in their own care; and to monitor the performance of services. Interviewees felt that a PROM for LTCs should incorporate a mixture of traditional and non-traditional domains, such as functioning, empowerment, and social participation, and be co-designed with patients and professional end-users. Stakeholders emphasised the need for a PROM to be feasible for practical implementation at the individual clinical level as a first priority. A number of concerns and potential problems were identified in relation to the application and interpretation of an LTC PROM. <b>Conclusions:</b> This study has demonstrated support for a single self-report outcome measure that reflects the priorities of people with LTCs, if such a measure can be shown to be meaningful and useful at the individual level. People with LTCs and professional end-users in health and social care should be involved in the development and evaluation of such a measure. |
first_indexed | 2024-03-07T02:33:22Z |
format | Conference item |
id | oxford-uuid:a7fb543c-256b-4b54-ba82-29020b81e3cd |
institution | University of Oxford |
last_indexed | 2024-03-07T02:33:22Z |
publishDate | 2017 |
publisher | Springer |
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spelling | oxford-uuid:a7fb543c-256b-4b54-ba82-29020b81e3cd2022-03-27T02:58:13ZPatient-reported outcome measurement in primary care for people with long-term conditions: stakeholders viewsConference itemhttp://purl.org/coar/resource_type/c_5794uuid:a7fb543c-256b-4b54-ba82-29020b81e3cdSymplectic Elements at OxfordSpringer2017Gibbons, EJJenkinson, CFitzpatrick, RPeters, M<b>Objectives:</b> To explore the views of a range of stakeholders regarding whether patient-reported outcome measures (PROMs) can be developed to measure key attributes of long-term conditions (LTCs) care in England, and the potential value of a single generic measure. <b>Design:</b> Qualitative semi-structured interview study, analysed using a framework approach <b>Participants and Setting:</b> Interviews with 31 stakeholders from primary care, secondary care, social care, policy and patient-focused voluntary organisations in England. <b>Results:</b> There was broad support for a single PROM that could be used to measure outcomes for patients with any LTCs in any health or social care setting. Interviewees identified three desired uses for a PROM: to improve the quality of individual care; to increase people’s engagement in their own care; and to monitor the performance of services. Interviewees felt that a PROM for LTCs should incorporate a mixture of traditional and non-traditional domains, such as functioning, empowerment, and social participation, and be co-designed with patients and professional end-users. Stakeholders emphasised the need for a PROM to be feasible for practical implementation at the individual clinical level as a first priority. A number of concerns and potential problems were identified in relation to the application and interpretation of an LTC PROM. <b>Conclusions:</b> This study has demonstrated support for a single self-report outcome measure that reflects the priorities of people with LTCs, if such a measure can be shown to be meaningful and useful at the individual level. People with LTCs and professional end-users in health and social care should be involved in the development and evaluation of such a measure. |
spellingShingle | Gibbons, EJ Jenkinson, C Fitzpatrick, R Peters, M Patient-reported outcome measurement in primary care for people with long-term conditions: stakeholders views |
title | Patient-reported outcome measurement in primary care for people with long-term conditions: stakeholders views |
title_full | Patient-reported outcome measurement in primary care for people with long-term conditions: stakeholders views |
title_fullStr | Patient-reported outcome measurement in primary care for people with long-term conditions: stakeholders views |
title_full_unstemmed | Patient-reported outcome measurement in primary care for people with long-term conditions: stakeholders views |
title_short | Patient-reported outcome measurement in primary care for people with long-term conditions: stakeholders views |
title_sort | patient reported outcome measurement in primary care for people with long term conditions stakeholders views |
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