Fear of dementia and the obligation to provide aggregate research results to study participants
A general obligation to make aggregate research results available to participants has been widely supported in the bioethics literature. However, dementia research presents several challenges to this perspective, particularly because of the fear associated with developing dementia. The authors argue...
| Main Authors: | , , , , |
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| Format: | Journal article |
| Language: | English |
| Published: |
Cambridge University Press
2022
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| _version_ | 1797109636796514304 |
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| author | Graham, M Farina, F Ritchie, CW Lawlor, B Naci, L |
| author_facet | Graham, M Farina, F Ritchie, CW Lawlor, B Naci, L |
| author_sort | Graham, M |
| collection | OXFORD |
| description | A general obligation to make aggregate research results available to participants has been widely supported in the bioethics literature. However, dementia research presents several challenges to this perspective, particularly because of the fear associated with developing dementia. The authors argue that considerations of respect for persons, beneficence, and justice fail to justify an obligation to make aggregate research results available to participants in dementia research. Nevertheless, there are positive reasons in favor of making aggregate research results available; when the decision is made to do so, it is critical that a clear strategy for communicating results is developed, including what support will be provided to participants receiving aggregate research results. |
| first_indexed | 2024-03-07T07:44:19Z |
| format | Journal article |
| id | oxford-uuid:ad6b803f-32fb-42d1-affd-4575fdd751da |
| institution | University of Oxford |
| language | English |
| last_indexed | 2024-03-07T07:44:19Z |
| publishDate | 2022 |
| publisher | Cambridge University Press |
| record_format | dspace |
| spelling | oxford-uuid:ad6b803f-32fb-42d1-affd-4575fdd751da2023-05-18T09:16:02ZFear of dementia and the obligation to provide aggregate research results to study participantsJournal articlehttp://purl.org/coar/resource_type/c_dcae04bcuuid:ad6b803f-32fb-42d1-affd-4575fdd751daEnglishSymplectic ElementsCambridge University Press2022Graham, MFarina, FRitchie, CWLawlor, BNaci, LA general obligation to make aggregate research results available to participants has been widely supported in the bioethics literature. However, dementia research presents several challenges to this perspective, particularly because of the fear associated with developing dementia. The authors argue that considerations of respect for persons, beneficence, and justice fail to justify an obligation to make aggregate research results available to participants in dementia research. Nevertheless, there are positive reasons in favor of making aggregate research results available; when the decision is made to do so, it is critical that a clear strategy for communicating results is developed, including what support will be provided to participants receiving aggregate research results. |
| spellingShingle | Graham, M Farina, F Ritchie, CW Lawlor, B Naci, L Fear of dementia and the obligation to provide aggregate research results to study participants |
| title | Fear of dementia and the obligation to provide aggregate research results to study participants |
| title_full | Fear of dementia and the obligation to provide aggregate research results to study participants |
| title_fullStr | Fear of dementia and the obligation to provide aggregate research results to study participants |
| title_full_unstemmed | Fear of dementia and the obligation to provide aggregate research results to study participants |
| title_short | Fear of dementia and the obligation to provide aggregate research results to study participants |
| title_sort | fear of dementia and the obligation to provide aggregate research results to study participants |
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