Principles and practice in biobank governance

Principles and practice in biobank governance

Rapid technological advances, the establishment of large-scale biobanks, and the exchange of data across international boundaries raise a variety of questions for regulators struggling with the problem of how to govern such stores of information and the processes connected with them. Engaging with t...

Bibliografski detalji
Glavni autori:	Kaye, J, Stranger, M
Format:	Knjiga
Izdano:	Ashgate Publishing Ltd 2009

Slični predmeti

Governing biobanks: An introduction
od: Stranger, M, i dr.
Izdano: (2009)

Biobanking networks - What are the governance challenges?
od: Kaye, J
Izdano: (2009)

From single biobanks to international networks: developing e-governance
od: Kaye, J
Izdano: (2011)

From single biobanks to international networks: developing e-governance.
od: Kaye, J
Izdano: (2011)

Governing UK Biobank: the importance of ensuring public trust.
od: Tutton, R, i dr.
Izdano: (2004)

Consent and research governance in biobanks: evidence from focus groups with medical researchers.
od: Whitley, E, i dr.
Izdano: (2012)

Biobank Governance: The Cautionary Tale of Taiwan Biobank
od: Shawn H.E. Harmon, i dr.
Izdano: (2018-08-01)

From consent to institutions: designing adaptive governance for genomic biobanks.
od: O'Doherty, K, i dr.
Izdano: (2011)

From consent to institutions: Designing adaptive governance for genomic biobanks
od: O'Doherty, K, i dr.
Izdano: (2011)

Access Governance for Biobanks: The Case of the BioSHaRE-EU Cohorts
od: Kaye, J, i dr.
Izdano: (2016)

Building a foundation for Biobanking: the 2009 OECD Guidelines on Human Biobanks and Genetic Research Databases (HBGRDs)
od: Kaye, J
Izdano: (2010)

Building a foundation for biobanking: the 2009 OECD guidelines on human biobanks and genetic research databases (HBGRDs).
od: Kaye, J
Izdano: (2010)

Risk mapping for better governance in biobanking: the case of biobank.cy
od: Kaya Akyüz, i dr.
Izdano: (2024-06-01)

Embedding biobanks as tools for personalised medicine
od: Kaye, J
Izdano: (2012)

A call for global governance of biobanks
od: Haidan Chen, i dr.

Broad consent in biobanking: Reflections on seemingly insurmountable dilemmas
od: Caulfield, T, i dr.
Izdano: (2009)

Personalized assent for pediatric biobanks
od: Giesbertz, N, i dr.
Izdano: (2016)

Mapping the regulatory space for genetic databases and biobanks in England and wales
od: Kaye, J, i dr.
Izdano: (2008)

Biobanking in everyday clinical practice in psychiatry—The Munich Mental Health Biobank
od: Janos L. Kalman, i dr.
Izdano: (2022-07-01)

Do we need a uniform regulatory system for biobanks across Europe?
od: Kaye, J
Izdano: (2006)

Principles and practices of good governance : the way forward for Sabah : selected papers on principles and practices of good governance /
od: Mohd. Yaakub Johari, i dr.
Izdano: (2004)

Has the biobank bubble burst? Withstanding the challenges for sustainable biobanking in the digital era
od: Chalmers, D, i dr.
Izdano: (2016)

Equitable participation in biobanks: The risks and benefits of a "Dynamic Consent" approach
od: Prictor, M, i dr.
Izdano: (2018)

Governance through scientism: Taiwan Biobank and public controversy
od: Wan-Ju Lee, i dr.
Izdano: (2022-10-01)

Corporate governance : principles, policies and practices /
od: Tricker, R. Ian (Robert Ian)
Izdano: (2009)

Corporate Governance : Principles, Policies, and Practices /
od: Tricker, Bob, author 194903
Izdano: (2015)

Corporate governance in Malaysia : principles and practices /
od: 173843 Cheah, Foo Seong, i dr.
Izdano: (2010)

Digital government : principles and best practices /
od: Pavlichev, Alexei, i dr.
Izdano: (2004)

Equitable Participation in Biobanks: The Risks and Benefits of a “Dynamic Consent” Approach
od: Megan Prictor, i dr.
Izdano: (2018-09-01)

Returning results in biobank research: Global trends and solutions.
od: De Clercq, E, i dr.
Izdano: (2017)

Practice variation across consent templates for biobank research. A survey of German biobanks
od: Irene eHirschberg, i dr.
Izdano: (2013-11-01)

Mad scientists bend the frame of biobank governance in British Columbia
od: Heather L. Walmsley
Izdano: (2009-01-01)

Promoting good governance : principles, practices and perspectives /
od: 217304 Agere, Sam, i dr.
Izdano: (2000)

Sample, data use and protection in biobanking in Europe: legal issues.
od: Zika, E, i dr.
Izdano: (2008)

Biobanking in forestry practices: towards an agency policy?
od: Fabien Milanovic, i dr.
Izdano: (2018-10-01)

ELSI challenges and strategies of national biobank infrastructures
od: Budin-Ljøne, I, i dr.
Izdano: (2012)

IMID-Biobank: Biobank of immune-mediated inflammatory diseases (IMIDs)
od: Julià A, i dr.
Izdano: (2010-11-01)

The impact of governance principles on sport organisations’ governance practices and performance: A systematic review
od: Milena M. Parent, i dr.
Izdano: (2018-01-01)

The European General Data Protection Regulation: challenges and considerations for iPSC researchers and biobanks
od: Morrison, M, i dr.
Izdano: (2017)

Towards 'Engagement 2.0': Insights from a study of dynamic consent with biobank participants
od: Teare, H, i dr.
Izdano: (2015)