Principles and practice in biobank governance

Principles and practice in biobank governance

Rapid technological advances, the establishment of large-scale biobanks, and the exchange of data across international boundaries raise a variety of questions for regulators struggling with the problem of how to govern such stores of information and the processes connected with them. Engaging with t...

書誌詳細
主要な著者:	Kaye, J, Stranger, M
フォーマット:	図書
出版事項:	Ashgate Publishing Ltd 2009

類似資料

Governing biobanks: An introduction
著者:: Stranger, M, 等
出版事項: (2009)

Biobanking networks - What are the governance challenges?
著者:: Kaye, J
出版事項: (2009)

From single biobanks to international networks: developing e-governance
著者:: Kaye, J
出版事項: (2011)

From single biobanks to international networks: developing e-governance.
著者:: Kaye, J
出版事項: (2011)

Governing UK Biobank: the importance of ensuring public trust.
著者:: Tutton, R, 等
出版事項: (2004)

Consent and research governance in biobanks: evidence from focus groups with medical researchers.
著者:: Whitley, E, 等
出版事項: (2012)

Biobank Governance: The Cautionary Tale of Taiwan Biobank
著者:: Shawn H.E. Harmon, 等
出版事項: (2018-08-01)

From consent to institutions: designing adaptive governance for genomic biobanks.
著者:: O'Doherty, K, 等
出版事項: (2011)

From consent to institutions: Designing adaptive governance for genomic biobanks
著者:: O'Doherty, K, 等
出版事項: (2011)

Access Governance for Biobanks: The Case of the BioSHaRE-EU Cohorts
著者:: Kaye, J, 等
出版事項: (2016)

Building a foundation for Biobanking: the 2009 OECD Guidelines on Human Biobanks and Genetic Research Databases (HBGRDs)
著者:: Kaye, J
出版事項: (2010)

Building a foundation for biobanking: the 2009 OECD guidelines on human biobanks and genetic research databases (HBGRDs).
著者:: Kaye, J
出版事項: (2010)

Risk mapping for better governance in biobanking: the case of biobank.cy
著者:: Kaya Akyüz, 等
出版事項: (2024-06-01)

Embedding biobanks as tools for personalised medicine
著者:: Kaye, J
出版事項: (2012)

A call for global governance of biobanks
著者:: Haidan Chen, 等

Broad consent in biobanking: Reflections on seemingly insurmountable dilemmas
著者:: Caulfield, T, 等
出版事項: (2009)

Personalized assent for pediatric biobanks
著者:: Giesbertz, N, 等
出版事項: (2016)

Mapping the regulatory space for genetic databases and biobanks in England and wales
著者:: Kaye, J, 等
出版事項: (2008)

Biobanking in everyday clinical practice in psychiatry—The Munich Mental Health Biobank
著者:: Janos L. Kalman, 等
出版事項: (2022-07-01)

Do we need a uniform regulatory system for biobanks across Europe?
著者:: Kaye, J
出版事項: (2006)

Principles and practices of good governance : the way forward for Sabah : selected papers on principles and practices of good governance /
著者:: Mohd. Yaakub Johari, 等
出版事項: (2004)

Has the biobank bubble burst? Withstanding the challenges for sustainable biobanking in the digital era
著者:: Chalmers, D, 等
出版事項: (2016)

Equitable participation in biobanks: The risks and benefits of a "Dynamic Consent" approach
著者:: Prictor, M, 等
出版事項: (2018)

Governance through scientism: Taiwan Biobank and public controversy
著者:: Wan-Ju Lee, 等
出版事項: (2022-10-01)

Corporate governance : principles, policies and practices /
著者:: Tricker, R. Ian (Robert Ian)
出版事項: (2009)

Corporate Governance : Principles, Policies, and Practices /
著者:: Tricker, Bob, author 194903
出版事項: (2015)

Corporate governance in Malaysia : principles and practices /
著者:: 173843 Cheah, Foo Seong, 等
出版事項: (2010)

Digital government : principles and best practices /
著者:: Pavlichev, Alexei, 等
出版事項: (2004)

Equitable Participation in Biobanks: The Risks and Benefits of a “Dynamic Consent” Approach
著者:: Megan Prictor, 等
出版事項: (2018-09-01)

Returning results in biobank research: Global trends and solutions.
著者:: De Clercq, E, 等
出版事項: (2017)

Practice variation across consent templates for biobank research. A survey of German biobanks
著者:: Irene eHirschberg, 等
出版事項: (2013-11-01)

Mad scientists bend the frame of biobank governance in British Columbia
著者:: Heather L. Walmsley
出版事項: (2009-01-01)

Promoting good governance : principles, practices and perspectives /
著者:: 217304 Agere, Sam, 等
出版事項: (2000)

Sample, data use and protection in biobanking in Europe: legal issues.
著者:: Zika, E, 等
出版事項: (2008)

Biobanking in forestry practices: towards an agency policy?
著者:: Fabien Milanovic, 等
出版事項: (2018-10-01)

ELSI challenges and strategies of national biobank infrastructures
著者:: Budin-Ljøne, I, 等
出版事項: (2012)

IMID-Biobank: Biobank of immune-mediated inflammatory diseases (IMIDs)
著者:: Julià A, 等
出版事項: (2010-11-01)

The impact of governance principles on sport organisations’ governance practices and performance: A systematic review
著者:: Milena M. Parent, 等
出版事項: (2018-01-01)

The European General Data Protection Regulation: challenges and considerations for iPSC researchers and biobanks
著者:: Morrison, M, 等
出版事項: (2017)

Towards 'Engagement 2.0': Insights from a study of dynamic consent with biobank participants
著者:: Teare, H, 等
出版事項: (2015)